Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fell Off The Wagon

Muzz

Recommended Posts

Muzz Rookie
Muzz
Posted

I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted
I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)

____________________________________________________________________________________________________

______________

Hi Muzz:

I think it is pretty much unique for each individual. From what I have read some have incredible changes right away, others just keep plugging on and pretty soon become aware they are feeling better. For me, the arthritis symptoms abated in two months (but unfortunately last night they started coming back so it may have just been a normal flare/regression :( . My bloating and insomnia and other gastro symptoms took about two or three weeks to recede, but come back the next day if I get glutened, but fortunately only last a day or so. We all go "off the wagon" at some point, sometimes intentionally, sometimes accidentally. I was in the supermarket and they were offering samples of a new hummus dip. I carefully checked out that it was gluten free before I tried it, and then realised I had sampled it on a piece of melba toast!! Ouch. Told him he should have some Sakata crackers. My psoriasis is still receding little by little, probably never will totally go away because that is the nature of the beast, but at least I don't feel like I have chicken pox any more, like I did for the last three years. (I have been gluten-free since November)

Don't give up, because the improvement will come, and it will get easier to resist the pizza once that happens.

Neroli

psawyer Proficient
psawyer
Posted

Reactions vary. After only six days without gluten, a relapse to gluten will not be that alien to your system, so a noticeable adverse effect is unlikely. It does take time for your body to recover from years of exposure to gluten.

Move forward. No more gluten. You can do it.

RiceGuy Collaborator
RiceGuy
Posted

Once you see improvements, it will be much easier to resist. But, you do need to hold on to your willpower long enough to get those benefits. Yes, it does take time for many, though not everyone, to get real improvement. I was gluten-free for six months before I noticed much of anything, and during that time I wondered every so often if I was on the right track. Then suddenly, like out of nowhere, boom! Boy oh boy did things start changing! Then I really knew I had struck gold.

dbmamaz Explorer
dbmamaz
Posted

I know it sounds weird, but you might want to bring something for you to eat which is similar to what's being served. I havent tried it since I'm also off dairy, but Amy's apparently makes awesome gluten-free pizza.

On the other hand, cutting out dairy too might help your symptoms ease up more quickly . ..

Muzz Rookie
Muzz
Posted
  • Author

TY all....I'll just consider this a minor relapse :) I was going to take something to munch on at the party but got in a hurry and forgot. My family isn't a prob, they're used to seeing me not eat much at family functions ;)

gfcookie Newbie
gfcookie
Posted
I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)

you won't start to feel better untill you totally cut gluten out. you probably reversed the small amount of healing that you had over the past week. try again. you will notice a difference pretty soon, some of it is pyschological that you are finally on the road to getting better. but it can take up to six months or a year for your tummy to fully heal. don't give up. But, you won't get better eating gluten "light", and having a few pieces of pizza a week.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Muzz Rookie
Muzz
Posted
  • Author
you won't start to feel better untill you totally cut gluten out. you probably reversed the small amount of healing that you had over the past week. try again. you will notice a difference pretty soon, some of it is pyschological that you are finally on the road to getting better. but it can take up to six months or a year for your tummy to fully heal. don't give up. But, you won't get better eating gluten "light", and having a few pieces of pizza a week.

TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

gfcookie Newbie
gfcookie
Posted
TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

even things that you never even thought could be gluten related could improve when you go gluten-free, because your body will be healing, and before, when your body was "sick", alot of things were probably not working right in your body! stick to it! you can do it!

aikiducky Apprentice
aikiducky
Posted

One of my most annoying symptoms is fatigue and brain fog. I don't mind the GI symptoms so much. One thing that helps me is taking a vitamin B complex that has all the vit. B's in it, when I get glutenend I take an extra dose. Just check that the ones you get are gluten free!

Pauliina

BFreeman Explorer
BFreeman
Posted

____________________________________________________________________________________________________

______________

My psoriasis is still receding little by little, probably never will totally go away because that is the nature of the beast, but at least I don't feel like I have chicken pox any more, like I did for the last three years. (I have been gluten-free since November)

Does a gluten free diet help psoriasis? We are gluten free at home because husband needs to be, but I have psoriasis (not bad; on hands and elbows). It wouldn't be so hard to go totally gluten-free myself since I'm used to the "rules."

BF

ravenwoodglass Mentor
ravenwoodglass
Posted
Does a gluten free diet help psoriasis? We are gluten free at home because husband needs to be, but I have psoriasis (not bad; on hands and elbows). It wouldn't be so hard to go totally gluten-free myself since I'm used to the "rules."

BF

The gluten free diet may very well help. One thing I know for sure is that in Turkey my 'gluten intolerant' gene is deemed one for psoriasis. My DD had a large patch on her elbow that she had for years that did go away after a couple months on the diet. You have nothing to lose by giving it a shot.

Gwen B Rookie
Gwen B
Posted
TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

Fatigue is also my big complaint at the moment. Even after being gluten-free for 3 months some days (not just the few after a cc incident) I get up with my kids but am so tired by the time they have gone to school that I feel I just want to sleep. Not sure if this is a symptom and beginning to doubt whether I am gluten intolerant because I have not tested with a gluten challenge yet. I take vit B12, multivit and often a 'thyroid support' supplement thinking it might help. I didn't have any bad thyroid numbers before going gluten-free and my other vit levels were deemed 'normal' although not high for all the vitamins I am taking! At least I don't have stomach ache all the time :) now. I hope it's just good days/not so good days for a few months and eventually I'll know the difference.

Muzz Rookie
Muzz
Posted
  • Author

Hubby went to the market and got me gluten-free cookies, bread and pizza mix..and last week he bought us a bread machine so now I have so excuse to fall off the wagon again... ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me...
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt. I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for...
    5. catnapt
      - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748
    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.