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Number 17 Positive Or What


Jeano

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Jeano Newbie

I have been tested for Celaic disease with a blood test, the doctors office called today and said I was slightly positive??? I asked what does slightly means I am or Im not? She said well it means positive they look for some number test 11-17 and my # is 17, and said I should begin a gluten free diet asap and see if it helps my symptoms... I am a little lost does this mean I am Celiac?


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happygirl Collaborator

You need to call the doctor back. Ask for a follow up appointment. You'll need to know if they are planning on doing follow up testing. You can't go gluten free for certain procedures, like an endoscopy with biopsy, which confirms the diagnosis. Don't go gluten free until you discuss this further with your doctor.

Also ask for which blood tests were run, what the reference ranges are, and what your score was.

ravenwoodglass Mentor

If you have a postive blood test that does confirm that gluten is poison to you. If you are choosing to also have a biopsy done, and that is your choice, you will need to continue eating gluten until after the biopsy. If you are not going to have a biopsy done then you can go ahead and start your healing. No matter what the results of the biopsy are you still need to do the diet, biopsies can miss damage so they can rule celiac in but not out. You have found a good place for info and support, welcome.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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