Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching Not From Dh Or Psoriasis


mushroom

Recommended Posts

mushroom Proficient

Please help; this itching is getting more than I can bear.

I do have psoriasis (4 years), so know what that does. I do not have, as far as I can ascertain, from the descriptions and pictures, DH. I have no blisters or lesions, nothing that looks like chickenpox which the pictures show. This is a blanket red skin rash which is inflamed and seriously itches. It is worse in bed at night especially when I get overheated (it is summer here), almost like a heat rash).But I also itch in areas that have no redness, and I also have hives develop and disappear at random on various parts of my torso. To the best of my knowledge I have eliminated all gluten from my house and life--pantry, bathroom, cosmetics and cleaners. I have only eaten gluten out once in the last month and there was a little CC but not much. My major gluten symptoms have gone away, only to be replaced by this intolerable itching which is keeping me awake more than the gluten ever used to.

I have been advised by my ND to eat fish (I don't like farmed salmon so have been eating lots of canned tuna and sardines (almost every day), and am wondering if I am getting a metal toxicity reaction -- mostly New Zealand tuna and sardines. Any advice or help would be greatly appreciated. In the meantime these items are off the menu!!

Neroli


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Have you looked into the possibility of a candida infection? I'd try caprylic acid capsules, and at the same time avoid all sugars, yeasts, vinegars, and fruit.

What was the reason that your doctor suggested fish? Is it was for the omega-3s, you could have flax seeds, walnuts, and chia seeds. This might actually supply more O-3s, at the same time as avoiding those heavy metals.

HTH

mushroom Proficient
Have you looked into the possibility of a candida infection? I'd try caprylic acid capsules, and at the same time avoid all sugars, yeasts, vinegars, and fruit.

What was the reason that your doctor suggested fish? Is it was for the omega-3s, you could have flax seeds, walnuts, and chia seeds. This might actually supply more O-3s, at the same time as avoiding those heavy metals.

HTH

Thank you, RiceGuy; I had not considered candida. Will have to look into that.

I was used to getting my O-3's from flaxseed but the ND felt I would be better off with the fish. I find we all have our preferences/prejudices when it comes to O-3 sources. I did not know about chia seeds (like you grow on the pottery ornaments??) Sure hope I don't sprout like that, I've got enough skin problems already!!

  • 1 month later...
mushroom Proficient

Hi all:

Just a quick update on the red itchy rash that was driving me nuts. I decided to do an elimination diet of sorts--soy, dairy (the rest like cheese and yogurt) and corn. I was really careful about the soy part because I had been diagnosed as sensitive to it years before with the skin test, but had never actually been bothered by it (or eaten much of it). I would avoid it if there were a choice but a little bit in a salad dressing, say, I would not worry too much about.

So when I went gluten free I could not give up my cookies so purchased gluten free cookies. Ate some chocolate, occasionally bought gluten free venison sausages, etc. Well, when I really started reading the labels on these products I had substituted in I discovered that when they took out the gluten they added soy!! Lots of it. In everything! So it turns out that the rash and itching were caused by the soy. When the soy went away so did the rash and itching. Now I can't even have chocolate anymore except the Lindt extra dark. I am doing that hard. :angry: Also had to give up even my "fake" ice cream. Seems like they put soya lecithin in almost everything.

I finally have some gluten free cookbooks and a pantry stocked with most things. Have been unable to find any sorghum (juar, jowar) flour down here yet, no Teff, etc.,so a lot of the recipes in Carole's and Bette's cookbooks are not on the menu yet. I think I will be back in Nevada in June so will have to carry an extra empty bag for baking supplies. Will also have to find a new airline to fly because Air New Zealand are limiting us to one 30 kg piece of luggage. Now who except superman can manage that? Certainly not an "older-looking" lady (as one of my docs too kindly put in a report) with rheumatoid arthritis! May have to fly to Sydney and try to pick up something from there as only ANZ and Qantas fly out of Auckland any more. And I hate Qantas as much as the koala bear does.

End of rant.

Cheers to all. Am feeling a bit happier, and am going to see a new rheumatologist next week. I think I will have to find a med. I am not intolerant of because being gluten free is not controlling the arthritis and it is really flaring up again. Pity because my hair is just growing back in at the front.

Neroli

BRUMI1968 Collaborator

Look for coconut bliss ice cream. And check out Enjoy Life brand for soy-free stuff. Coconut blissssssssssssss.

  • 2 weeks later...
Graceanna Newbie
Look for coconut bliss ice cream. And check out Enjoy Life brand for soy-free stuff. Coconut blissssssssssssss.

I have psoriasis, psoriatic arthritis and coeliac. I recently cut out dairy and took soya milk instead. No problems. I read about soya lecithin as a supplement good for psoriasis as source of omega 3. Took this supplement and my feet are burning and toes inflamed. Could I be soy intollerant? Maybe I should be on rice milk. Interested in your thoughts. I never thought that soy could be a problem.

BRUMI1968 Collaborator

Soy is one of the highest allergen foods (soy, wheat, corn, dairy, eggs). I'm unaware if soy lecithin is a problem for most folks with soy problems.

I tested as positive to antibody response to soy in a stool analysis (meaning, my body creates antibodies to soy - acting as though it is the enemy) though I've never attributed any symptoms specifically to it. I don't touch it. There is also a decent bit of evidence that soy has other problems associated with it (blocks absorption of minerals, is estrogenic, etc.)

So I'm not sure what to say, other than that soy is a high allergen food, so it is certainly possible that the supplement bugged your system.

I wish I could be more help with the itching.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator
Thank you, RiceGuy; I had not considered candida. Will have to look into that.

I was used to getting my O-3's from flaxseed but the ND felt I would be better off with the fish. I find we all have our preferences/prejudices when it comes to O-3 sources. I did not know about chia seeds (like you grow on the pottery ornaments??) Sure hope I don't sprout like that, I've got enough skin problems already!!

You can get the omegas from fish oil. Carlson's is a very reputable brand that has good practices to be sure you're not getting the heavy metals. It doen't taste bad either. Some have a slight lemon flavor. I gave it to my son and figured I'd better try it too to make sure I wasn't torturing him. He never complained.

RiceGuy Collaborator

Another possible cause of skin problems is foods which are high in iodine, such as sea vegetables. So it is probably a good idea to avoid kelp and other things derived from seaweed. Iodine is known to have a tendency to make DH worse, because the immune system uses iodine to help heal the skin.

Guest Talia
Another possible cause of skin problems is foods which are high in iodine, such as sea vegetables. So it is probably a good idea to avoid kelp and other things derived from seaweed. Iodine is known to have a tendency to make DH worse, because the immune system uses iodine to help heal the skin.

I am also struggling with the skin problemsand celeiac I have had psoriasis, since birth,

scalp, bottom, . it moves around on my scalp. I itch so much,. I know it is food related.. i just have to be dilegent and write down everything I put in my mouth. reading this site is so amazing, the things I think are ok, end up beign disasters... like dream rice milk(had gluten) , which i didn't know unitl I read this.

I am tryint to stick with iodine free salt, I think I will just make up a little spice bottle to carry with me when we eat out.

Also has anyone had reactions to apples? Pectin maybe is an issue, I started eating an apple last night,, and alomost as soon as i started eating it , i was inflamed.

Good luck to you

talia

dally099 Contributor
I am also struggling with the skin problemsand celeiac I have had psoriasis, since birth,

scalp, bottom, . it moves around on my scalp. I itch so much,. I know it is food related.. i just have to be dilegent and write down everything I put in my mouth. reading this site is so amazing, the things I think are ok, end up beign disasters... like dream rice milk(had gluten) , which i didn't know unitl I read this.

I am tryint to stick with iodine free salt, I think I will just make up a little spice bottle to carry with me when we eat out.

Also has anyone had reactions to apples? Pectin maybe is an issue, I started eating an apple last night,, and alomost as soon as i started eating it , i was inflamed.

Good luck to you

talia

hi, i can totally sympathise, last year i had this on my feet and my hands, i wanted to take the cheese grater to them. i found out it was the soy in my diet, as well i now take a hantihystamine daily, and have special creams, get in to see an allergist again, as well as a skin docter, its probably something you are in injesting, take care!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,394
    • Most Online (within 30 mins)
      7,748

    Graceland.h
    Newest Member
    Graceland.h
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.