Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! I Keep Getting Glutened! Ugh!


horsefarmer4

Recommended Posts

horsefarmer4 Apprentice

HI GUYS, I NEED SOME HELP. I'M STILL PRETTY NEW AT THIS ANY I'VE BEEN HAVING A LITTLE TROUBLE LATELY. I DID GOOD FOR TWO MONTHS- THEN I WENT OFF FOR ABOUT TWO MONTHS AND FOR THE PAST THREE MONTHS I'VE BEEN STRUGGLING. EVERY THREE DAYS I GET GLUTENED. IS IT JUST ME OR DOES YOUR SYSTEM GET MORE SENSITIVE TO IT?

SO ANYWAYS, I NEED SOME IDEAS TO DO THE ELIMINATION DIET. I NEED A FEW VERY SAFE AND SATISFYING BUT CHEAP FOODS? THINGS I CAN LIVE ON SO I FEEL BETTER AND THEN START TO EXPLORE OTHER FOODS. :D THANKS FOR ANY HELP YOU CAN OFFER.-TINA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Sorry that you are having a hard time.

Start a food journal. Record everthing that you eat and that will help you find out what the culprit is. Alot of foods can be irritants because you aren't healed.

When I feel bad, I go back to the basics. Simple unprocessed foods. Meats, seafood, rice, fresh veggies, potatoes and fruit.

YoloGx Rookie
HI GUYS, I NEED SOME HELP. I'M STILL PRETTY NEW AT THIS ANY I'VE BEEN HAVING A LITTLE TROUBLE LATELY. I DID GOOD FOR TWO MONTHS- THEN I WENT OFF FOR ABOUT TWO MONTHS AND FOR THE PAST THREE MONTHS I'VE BEEN STRUGGLING. EVERY THREE DAYS I GET GLUTENED. IS IT JUST ME OR DOES YOUR SYSTEM GET MORE SENSITIVE TO IT?

SO ANYWAYS, I NEED SOME IDEAS TO DO THE ELIMINATION DIET. I NEED A FEW VERY SAFE AND SATISFYING BUT CHEAP FOODS? THINGS I CAN LIVE ON SO I FEEL BETTER AND THEN START TO EXPLORE OTHER FOODS. :D THANKS FOR ANY HELP YOU CAN OFFER.-TINA

Hi Tina,

Yes you do become more sensitive. Though its worth it since overall you feel better. I look forward when they finish devjisinga pill lthat will make eating out easier. However for at home staying off gluten should be easy. Just don't use gluten products in you animal feed!! I suggest when you do go out invest in getting a cold pack and pack your food. It may seem weird but being sick is just out of the question.

I suggest you follow more of the paleo diet--meat, vegetables including roots and squashes and some fruit and if you aren't allergic nuts and seeds.

I find eating washed cooked quinoa very good as a grain staple in the morning especially. Plus I like making teff, quinoa, amaranth pancakes with a very small bit of potato flour thrown in as a binder (mashed bananamight work too) and cooked quinoa to make it more fluffy. I use baking soda and salt with melte d butter or coconut oil. I fry them with butter since th coconut oil makes them stick.

I top them with some fat and sugar free organic yogurt and some fruit and sunflower seeds. The Ethiopians however use teff pancakes as kind of plates for most of thier meals which they then eat after. The teff really sticks with you for the day and is completely gluten free as is quinoa and amaranth. Make sure when you get various fours they are not contaminated from gluten flours.

I usually eat potato or yam or sweet potato at night for dinner as a starch. You could use baked squash however or any number of roots.

Hope this helps. From what I hear this diet would be good for almost anyone. Humans have only been eating grains at he earliest for the last 15,000 years. And its way less than that if you are a north European. So we just aren't adapted for it.

dbmamaz Explorer

I quit gluten and dairy, and felt better for a few weeks, but then still kept getting instestinal distress. I did some testing - reacted to 1/3 of the 150 food A.L.C.A.T test panel, and of the 46 foods tested at the allergist, only 10 had no reaction. He suggested I eat foods which had a +1 reaction as well as a 0 reaction, but I'm only eating them if they did NOT react on the A.L.C.A.T test.

My current diet is only 20 foods, but I am adding things back in every 3 days - its easy to see the reaction now, since I'm feeling good. I tried some chips and reacted - they were fried in canola, so now i'm avoiding that. I had some herbal tea last night, and reacted to that. I tried a b-complex this morning, and reacted to that. I would not have noticed these reactions so clearly before when I was eating so many reactive foods.

The tests arent cheap, esp the alc.at. My current safe foods are:soy, corn, potato, sweet potato, brocolli, green bean, lettuce, spinach, celery, tomato, avacado, grape, cantaloupe, Orange, Peach, black tea, Olive. I was able to add sunflower seeds. I reacted to every meat the allergist tested me for.

Its really a big task to cut down so far - i'm cooking seperately for the family. But I trust that, by the end of this, I will know exactly which foods are bothering me. I also suspect I'll never eat wheat again, even tho my celiac panel was negative, because it was a strong reaction on both of the other tests.

good luck figuring it out - a food diary is probaby easier for most people, I just couldnt remember to write down my foods.

YoloGx Rookie
I quit gluten and dairy, and felt better for a few weeks, but then still kept getting instestinal distress. I did some testing - reacted to 1/3 of the 150 food A.L.C.A.T test panel, and of the 46 foods tested at the allergist, only 10 had no reaction. He suggested I eat foods which had a +1 reaction as well as a 0 reaction, but I'm only eating them if they did NOT react on the A.L.C.A.T test.

My current diet is only 20 foods, but I am adding things back in every 3 days - its easy to see the reaction now, since I'm feeling good. I tried some chips and reacted - they were fried in canola, so now i'm avoiding that. I had some herbal tea last night, and reacted to that. I tried a b-complex this morning, and reacted to that. I would not have noticed these reactions so clearly before when I was eating so many reactive foods.

The tests arent cheap, esp the alc.at. My current safe foods are:soy, corn, potato, sweet potato, brocolli, green bean, lettuce, spinach, celery, tomato, avacado, grape, cantaloupe, Orange, Peach, black tea, Olive. I was able to add sunflower seeds. I reacted to every meat the allergist tested me for.

Its really a big task to cut down so far - i'm cooking seperately for the family. But I trust that, by the end of this, I will know exactly which foods are bothering me. I also suspect I'll never eat wheat again, even tho my celiac panel was negative, because it was a strong reaction on both of the other tests.

good luck figuring it out - a food diary is probaby easier for most people, I just couldnt remember to write down my foods.

I just wanted to add that in time your intestines will heal and its likely you will become less reactive fro the effects of likely leaky gut syndrome.

I also found I often could have something once or twice a week but not more often especially at first. Plus sometimes I found I could not eat certain things with other specific things but they were fine by themselves.

These days I discover I need to cook my fruit so I won't have an allergic reaction.

Taking herbs and or supplements and enzymes to heal the gut helps speed up the process of healing--assuming you aren't allergic to them. I have posts elsewhere that get into the specifics.

Hope this helps!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,041
    • Most Online (within 30 mins)
      7,748

    Vfoley422
    Newest Member
    Vfoley422
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.