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Newly Dx In Howell, Mi


Jenn928

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Jenn928 Rookie

I live in Howell, MI and i just got an out of the blue dx of celiac disease after many different tests for stomach issues and other, I was dx with a biopsy which I understand is the best way. I am really struggling with the emotional part of eating this way and am overwhelmed with knowing what I can and can't eat.

Was just wondering if there was anyone in my area that would be interested in talking more on the subject, could offer tips and recommendations on products etc in the area and gluten-free restaurants. Also does anyone know of a support group in this area.

Thank you for any help you can offer.

Jennifer

Howell, MI


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Renae Newbie
I live in Howell, MI and i just got an out of the blue dx of celiac disease after many different tests for stomach issues and other, I was dx with a biopsy which I understand is the best way. I am really struggling with the emotional part of eating this way and am overwhelmed with knowing what I can and can't eat.

Was just wondering if there was anyone in my area that would be interested in talking more on the subject, could offer tips and recommendations on products etc in the area and gluten-free restaurants. Also does anyone know of a support group in this area.

Thank you for any help you can offer.

Jennifer

Howell, MI

Hi. I am in Lansing and Lansing does have a Celiac support group that meets tonight Feb 26 at 7 pm. It meets at a church in Lansing at the corner of Haag and Miller Rd. (I do not have Celiac but my 9 yr old daughter does.) Lots of good people with lots of help will be there.

Renae

  • 2 weeks later...
Tall-Laydee Newbie

I live in Ferndale and was also recently diagnosed (Feb 11). My sister lives in Howell and she mentioned that the V.G.'s in Howell have good gluten-free selections and there's a place called vitamin planet on Latson & Grand River that has several gluten-free foods. She mentioned brown-rice tortillas that I can't wait to try! The owner/manager there can help, my sister talked to him and said he was great.

Also, I don't know if you have a Whole Foods or a Trader Joe's out by you but both of those stores have a wide variety of options...just be aware Whole Foods should really be called "Whole Paycheck"!

Good luck with everything! I'm happy to talk if you want, I've learned A LOT in the past month. :)

  • 2 weeks later...
hapy4dolphins Contributor

HI, I'm in Lansing and am a part of the local Lansing Celiac Group. That might be too far for you?!?!

There is another celiac group too in Farmington Hills, is that closer?

can always e mail me too.

Nicole

hapy4dolphins Contributor

Here is the link to the Farmington Hills Celiac group Open Original Shared Link

Nicole

hapy4dolphins Contributor

Here you go, I found this on the CSA website.

Dr. Luba Nowek, Howell

517-552-9336, drluba@yahoo.com

  • 3 weeks later...
Jenn928 Rookie

Thanks all, glad to see there are some people in my area. Do most of you belong to a support group? I am wondering if that is the one thing that will help me. Lately I have been struggling, I intentionally ate gluten the other day, feeling depressed because I recently lost my job. Now I feel awful and feel like I took a big step backward. Since dec'07 I have gone through the denial, grieving and acceptance or at least I thought.

So I am wondering if joining a support group would be the missing link to help me stay the path if you know what I mean.

I heard there was a food fair in farmington hills, and thought that would be a good 1st event to attend. As anyone gone to that?

Thanks for all your help, I had forgotten I posted in here!


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mommida Enthusiast

I usually go. I think they charged less at the door last year.

Celiac specialties has the best donuts! This could be just what you need right now. Gluten free food that tastes good and a huge crowd of other gluten free people.

Wow it's this Saturday, April 12th 10:00 to 2:00.

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  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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