Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugh

Oriana

By Oriana
in Coping with Celiac Disease

Recommended Posts

Oriana Newbie
Oriana
Posted

So, I have been sticking to this diet very carefully. I've been eating fresh fruits and veggies, rice, etc. I was doing sooo well. today I ate fresh veggies and a can of baked beans. I read the ingredients very carefully. I saw nothing that I did not recognize and nothing was gluten! Then a little while later I had problems. A few hours later. All it could possibly have been was those beans. I thought back about what I ate yesterday and I had nothing but fresh foods that I made myself... I'm just really frustrated because how can you keep from getting glutened if products that do not say they contain gluten still contain it!? Its so frustrating. I guess its just going to take me a long time to learn what I can and can't eat. Now I'm scared to eat anything that isn't a fresh vegetable. grr

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

You may not have been glutened. Rice and beans sometimes (not always, strangely) give me similar symptoms as gluten. Gluten is a lectin, and lectin foods include all grains (rice is a grain) and beans, amongst others.

Lisa Mentor
Lisa
Posted

I don't know your personal history but generally for most people it takes some time to heal.

It took me several months before I could eat a meal and it followed a "normal" route. If your villi are damaged think of your intestines like a water slide....whooooosh. :blink:

When the villi grow back they are able to absorb nutrients from the food we eat.

YoloGx Rookie
YoloGx
Posted
So, I have been sticking to this diet very carefully. I've been eating fresh fruits and veggies, rice, etc. I was doing sooo well. today I ate fresh veggies and a can of baked beans. I read the ingredients very carefully. I saw nothing that I did not recognize and nothing was gluten! Then a little while later I had problems. A few hours later. All it could possibly have been was those beans. I thought back about what I ate yesterday and I had nothing but fresh foods that I made myself... I'm just really frustrated because how can you keep from getting glutened if products that do not say they contain gluten still contain it!? Its so frustrating. I guess its just going to take me a long time to learn what I can and can't eat. Now I'm scared to eat anything that isn't a fresh vegetable. grr

Its possible there was cross contamination, but then again a lot of people with celiac initially can't digest beans very well--except for green ones that is. I still can't eat several kinds of them very often. My ex can't handle them hardly if at all. And yes its true, I find if I have potatoes instead of rice with soaked, slow cooked beans (really a safer route) its way more digestible. Actually if I use lentils or split pea they are easier to digest for me too. I often soak them for 24 hours so they are partially sprouted. I usually slow cook them with some meat which makes them a lot tastier--and then add a bunch of vegetables. This makes them way easier to digest.

Oriana Newbie
Oriana
Posted
  • Author

I usually eat beans because I don't eat meat. And I haven't had any problems until the baked beans. its weird. I don't really understand if it wasn't gluten then what it was. If it was the fact of beans I don't understand why it wouldn't have happened before this. I didn't even eat rice with them yesterday, I normally do but yesterday I had beans and fresh veggies for that meal. I don't know.. All I know to do is just keep trying and not eat those beans again. grr.

ravenwoodglass Mentor
ravenwoodglass
Posted
I usually eat beans because I don't eat meat. And I haven't had any problems until the baked beans. its weird. I don't really understand if it wasn't gluten then what it was. If it was the fact of beans I don't understand why it wouldn't have happened before this. I didn't even eat rice with them yesterday, I normally do but yesterday I had beans and fresh veggies for that meal. I don't know.. All I know to do is just keep trying and not eat those beans again. grr.

Does the can list any natural and/or artificial flavors? It could have been lurking in there. I don't know what brand you purchased but Hormel makes some gluten-free and they have a list on their website of the ones that are.

Darn210 Enthusiast
Darn210
Posted

Also check your can opener as a possible source of cc . . . most of them develop a ring of "buildup". I replaced mine. What brand of beans was it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Oriana Newbie
Oriana
Posted
  • Author

Thank you everyone for your replies. I think the brand was Daucy. My roommate took out the trash so I didn't get to check for "natural flavors" but I might go to the store tomorrow and read the can again and see! And make sure thats the brand name! hehe I remember what the can looks like! I haven't eaten that in years. So we'll see! But thanks again everyone!

dksart Apprentice
dksart
Posted

I usually make sure with the manufacturer if a product is not specifically labeled Gluten-free. The last time I didn't do that, I got poisoned. I was so excited to find a convenience product in Sam's that I could eat. It was chicken Marsala and it said "just add your own pasta." I ran home and made some Tinkyada fettuccine and baked this delicious looking tray of chicken breasts in a deep brown wine sauce with mushrooms. I even doctored it up with some fresh herbs, lemon zest and capers. It took a little over ten minutes to know that it WAS too good to be true. I called the company and they informed me that they sometimes used different thickeners and were not sure if there was wheat in one of them! Plus there was no warning about "this made in a facility...." blah, blah, blah.

Never again. Whole fresh foods and a minimal amount of canned or frozen. No processed, preserved or packaged poisons for me!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748
    patanddiane
    Newest Member
    patanddiane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.