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Too Much Fiber?


maddysmom

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maddysmom Newbie

My daughter has been gluten free for 7 days. We saw huge improvements after day 3. However she is now having bloody stools and more mucus. Could this be from too much fiber? Anyone else see things get worse before getting better? She has been diagnosed with Solitary Rectal Ulcer Syndrome and she has experienced bleeding quite frequently in the past. Thank You.


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Ursa Major Collaborator

Is she still consuming dairy and soy? Those could be the culprit.

maddysmom Newbie

Yes she is still eating dairy. That might have to be the next thing to go. I did ask her GI about a milk allergy about a year ago and she said that she was tested and was not allergic. Is this something that I should test her for or just take her off dairy for a bit and see? Any suggestions?

HAK1031 Enthusiast

Take her off dairy. The villi (fingerlike projections along the intestines that increase its surface area to maximize absorbtion) are what is damaged when a celiac eats gluten, and the tips of the villi are what produce lactase, the enzyme that digests milk sugar. So even if your daughter is not allergic/intolerant to casein (the milk protein)almost all celiacs will have a problem digesting dairy until they are healed. As for soy, I don't really know why it bothers us, but it does in many people. I substituted all milk products with soy products, but then soy started to bug me...I am now soy-lite.

However, I would also call your doctor in the morning...I'm not familiar with your daughter's condition, but bloody stools can be a cause for concern. Good luck.

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
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    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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