Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Second Day Going Gluten Free


mrs turbo

Recommended Posts

mrs turbo Newbie

Today is the second day of our household being gluten free. Our son whom we are doing this diet because of is in an extremely bad mood. Is this common , is it gluten withdraw?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom23boys Contributor
Today is the second day of our household being gluten free. Our son whom we are doing this diet because of is in an extremely bad mood. Is this common , is it gluten withdraw?

All 5 of us in this house had a nasty withdraw.

GlutenGalAZ Enthusiast

My husband eats gluten but he noticed a change in my attitude and mood the first couple of months that I started eating gluten free. I read a lot on here about anxiety, depression and moods (I read them to him as well).

I was really shocked how I was and did not know why, but it has gotten A LOT better for me. I would go through days where the smallest thing annoyed me and I was in a pissy mood to days where I was really quiet (I am normally a very talkative positive person). Over time things have gotten a lot better.

In the beginning you can get discouraged b/c you don't know why you are moody but it does get better. Same thing with the sick feeling....I felt really sick while my body was healing that also got better over the first couple of months as well (also feeling sluggish/tired).

GOOD LUCK :)

dbmamaz Explorer

When I quit gluten and dairy, I felt dizzy for over a week. My boys tend to get really mean and grumpy when they are in pain or feeling sick (they dont seem to realize they are in pain, they just get mean), so theres a good chance this is a withdrawal. And yes, other folks on this site have said it made them cranky

CeliacMom2008 Enthusiast

This is great info! My hubby started gluten-free last Friday and he has been...well...not at his best. When our son went gluten-free his mood greatly improved. I guess I was expecting a repeat of that. I was thinking it was just anxiety and being overwhelmed, but maybe it is withdrawl. His first blood test came back neg. (we're waiting on second test), but his health looks like a textbook Celiac case (to this Celiac-newbie), so he's going to try gluten-free. He's working toward one month and then re-evaluate. I'm hopeful he'll see at least some improvement by then to keep him motivated. I'll share with him tonight about this thread.

Once again, I'm thankful for this site!!

crittermom Enthusiast

I went on the Candida diet when I was first diagnosed with Fibromyalgia hoping it was actually a full body yeast infection. (It wasn't) On this diet you can't eat anything that feeds yeast. Basically I was eating meat and veggies, no fruits with some spices. I went through absolutely terrible withdrawals. I couldn't figure out how this was suppose to make me feel better. It was terrible but it went away in about a week. I have been thinking about going gluten-free with my kids as I did feel better and there have been studies about it helping FM patients, however I am a little hesitant just because of the whole withdrawal thing. Good luck and I hope he he feels better soon.

  • 4 weeks later...
Octoberme Apprentice

Hi there. I am a newbie to the gluten free diet, and unfortunatly self-diagnosed for now as I could just not live with the pain while waiting for the specialist.

Anyway, I was wondering if it is normal to have dizzy spells, sometimes feel naseated, and feel very lethargic and weak with no energy when first coming off gluten / wheat?

Thanks :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayBraMom Apprentice

Is it any better now? this post is almost a month old! I remember my daughter back then beeing 12 month old getting very clingy for aobut a month or so! since I was still breastfeeeding her until she was 14 month old, I had to cut oput gluten too and let me tell you, you do go through some type of withdrawal and it does not feel good. You feel constantly like you are starving, your mood fluctuates and so on. I feel for anybody who goes through it and feels it so bad, it's tough! It wikllg et better thoguh!

Hi there. I am a newbie to the gluten free diet, and unfortunatly self-diagnosed for now as I could just not live with the pain while waiting for the specialist.

Anyway, I was wondering if it is normal to have dizzy spells, sometimes feel naseated, and feel very lethargic and weak with no energy when first coming off gluten / wheat?

Thanks :-)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    2. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    5. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.