Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Isn't It Ironic...


luvs2eat

Recommended Posts

luvs2eat Collaborator

My all time favorite food to bake was bread. I used to make beautiful braided challah breads and big round crusty country loaves... I still do make them. Only now I can't eat them.

The loss of bread since my diagnosis (August 2003) has been the hardest for me. Whenever someone asked what my favorite food in the world was, I always said, "Homemade bread... and butter... that's one food, right??"

With all that's happening in the world... I know this is so not important. I'm just missing bread today. I've yet to find a good celiac bread and ... trust me... I've tried a bunch of recipes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DrLeonard Newbie

Have you ever noticed that when you're telling someone about the gluten-free diet for the first time, how they go through this list of foods saying "So you can't have ____?"

And when they get to bread, they so often get emotional about it: "So you can't have a sandwich? Or a hamburger? Or a hot dog?" Life would be so much easier if there was good, gluten-free bread around.

That's my venting coming off the holidays, where it seemed that everyone I knew was eating turkey sandwiches for two weeks. I miss turkey sandwiches. There are certainly more important things going on in the world, yet I'd still want the person who invented great gluten-free bread to win a Nobel Prize of some kind.

Guest PastorDave

I always liked Italian food myself. I found some good pasta's (more expensive because they are actually from Italy) but never a good pizza crust (don't tell my wife :P ) My mom (also Celiac) was the bread lover in our family, when we got her a bread machine (pre-diagnosis) she thought she was in heaven, she could make home-made bread with her schedule.

Oh well...it's better to know what's wrong than to be as sick as a dog and not know why. At least that's what I keep telling myself. :D

Guest PastorDave
Have you ever noticed that when you're telling someone about the gluten-free diet for the first time, how they go through this list of foods saying "So you can't have ____?"

Have you ever had anyone ask if you could have white bread??? After all it's not "wheat" bread? I love that one.

IrishGirl71 Rookie

My mother's always offering me breaded stuff like fried chicken.

ahhh...patience is a virtue...

celiac3270 Collaborator
Have you ever noticed that when you're telling someone about the gluten-free diet for the first time, how they go through this list of foods saying "So you can't have ____?"

And when they get to bread, they so often get emotional about it: "So you can't have a sandwich? Or a hamburger? Or a hot dog?" Life would be so much easier if there was good, gluten-free bread around.

OH, YES! :rolleyes: .....the list goes on and on. Then many start to think that I can eat hardly anything. They start asking about milk, meat, vegetables, fruits....also funny.....what would I be eating then?

Have you ever had anyone ask if you could have white bread??? After all it's not "wheat" bread? I love that one.

Yes, another good one came from my dad when I was first diagnosed and he and my brother were clueless. He thought that with cereals I could have corn flakes since it's CORN flakes and not something like frosted mini WHEATS......lol

I don't miss tasty bread like many...well, not sliced bread...i can make do with ener-G and kinnickinick. I miss italian bread...used to love that, too...and I miss everything that's sorta bready/pastay: pizza, cheese ravioli, bagels, etc.

DrLeonard Newbie

celiac3270, I just had a gluten-free frozen pizza from Amy's---plain cheese, but still pretty good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tyki Newbie

I used the Gluten Free Pantry Sandwich Bread mix through this past holiday season. You see, tyki's favorite grandmother taught her years ago how to make nutmeat bread (its more like a bread roll with ground nuts where cinamon would be in a cinamon roll) like her mother-in-law from Czechoslovakia had taught her.

Nutmeat bread for the holidays is a family tradition. From the time I figured out I was gluten intolerant, nutmeat bread was the thing I was most upset about. I am the only one in the family that makes it, and I really didn't want to do without. And it was making me angry that I would make it and not be able to have even one piece.

My hubby convinced me to try the Sandwich Bread mix, and it was a pain to roll it out between sheets of plastic wrap.But once the dough was rolled out, the ground nuts, sugar, cinnamon, and raisins were spread around like a blanket on the dough and then rolled into a long thin loaf. The rolled loaves were very fragile when we slid them onto the baking sheets. But as they baked, they smelled just like I remembered nutmeat bread smelling.

I carried fresh baked loaves of nutmeat bread to every family gathering this Thanksgiving and Christmas. Guess what.....no one in the family could tell the difference until they saw me take a piece of nutmeat bread. Then they all said, "but you've been so careful about being gluten free." Then I just smiled and said, "Yep, and this was made with a gluten free substitute."

I was able to use the mix to substitute for a family tradition, and keep the tradition alive. On my side of the family, it helped keep everyone a little healthier, you see my dad is convinced that now that I made the connection, he can see signs that others in the family may have gluten intolerance at the root of some problems they have had and couldn't figure out.

cdford Contributor

Ah, for those days when my mill and three bread machines sat atop my kitchen counter. Twice a week, I faithfully milled my own wheat and carefully baked whole grain bread for my family. After all, what could be better for us (and our cholesterol, and our digestion, ...) than fresh baked bread with honey and a little butter? Little did I know that I was precipitating a catastrophe in our home by setting up the trigger for multiples of us to show up with celiac. Of all the things I cannot have, this is the one that will bring tears to my eyes. At least I can use my new mill to create buckwheat for pancakes and amaranth or teff to add nutrition to other dishes.

darlindeb25 Collaborator
;) after over 3 years of being gluten-free, i was happy to think that my kids were all excepting the fact that i cant have gluten :) --my oldest didnt want to believe me and he would tell the others, "it's just a crazy diet mom is on" <_< ----he had ran to town to pick up a few things and called to ask his 7 yr old daughter what she wanted him to bring her from mcdonalds, then asked if i wanted anything, or was there anything i could have cause he knew i couldnt have a burger B)--he had gone to town to pick up rolls for our family dinner, after mcdonalds he calls from the grocery store and asks, "ask mom what kind of rolls she can have?"----someday i am sure it will all connect :lol: deb
Twister2 Contributor

My biggest temptation is when I walk though a store that makes homemade bread and the smell just fills the whole store. I swear my mouth starts watering every time! Dave...I miss good pasta the most! Italian food has always been my favorite. My husband and I are planning a vacation right now and he suggested we go to Italy the other night. I just about cried. We have been to Italy before and the pasta is like nothing you have ever had! I'd be off the diet before I got off the plane......... :rolleyes:

veggf Newbie

Tyki,

Thank you, thank you, I'm so excited to hear that you made gluten-free nutmeat bread. It sounds very similar to potica (a Slovenian food). I've been very disappointed that I couldn't eat potica since dx. I'll have to try it with the mix.

Thank You!!!

jboom Newbie

What I wouldn't give to eat a hot dog or hamburger on a bun. I don't even like hot dogs but they look soooo good on a bun. Hamburgers just aren't the same with out a bun either. I just had to sit through lunch and watch everyone at the table eat burritos. :(

PastorDave try the Chebe Pizza Crust. I think I like them better than regular crust. ;)

luvs2eat Collaborator

I tried the pizza crust from Bette Hagman's book and found it to be quite good. We cooked it on one of those Pizza Pizazz things and everyone thought it was geat!

cynicaltomorrow Contributor

I just get so irritated when I'm talking about the diet with my friends and then they say something stupid, haha. Like, all my friends know I can't have gluten or dairy... and then my friend the other night was like... well you can have hot chocolate! And, I was like "HELLO... chocolate!" It's always entertaining to say the least. I find it interesting that everyone's response is always "Wow... that sucks." When in actuality, this is probably the best thing to ever happen to me. If I kept on eating like I was, I probably would've had a lot of problems later on in life. Maybe even not so later on.

tyki Newbie

veggf,

For all I know my "nutmeat bread" could be your potica. You see my maternal grandfather immigrated to the US from Morovia (part of the Austro-Hungarian Empire). He liked to refer to himself as a Bohunk. Part of his family lives now in Prague.

It was his mother who taught my grandmother to make the nutmeat bread. With the way so many things were Anglicized when they came to the US, my great-grandmother may have just translated the name of what she was making to be more understandable to my grandmother. When they arrived in the US my grandfather's name was changed from Josef to Joseph, and his mother's name was changed from Josefa to Josephine.

So perhaps instead of clinging to the name potica, she just said she was making nutmeats and bread, aka nutmeat bread. A variation that the family used to make (unfortunately I didn't get the recipe for the filling) was to use poppy seeds instead of ground walnuts.

After writing this, I looked up potica on the web and read through several recipes, the filling I am using is not quite as complex as the recipes I saw on the web, but it looks amazingly like what I have been fixing for years.

celiac3270 Collaborator
What I wouldn't give to eat a hot dog or hamburger on a bun. I don't even like hot dogs but they look soooo good on a bun. Hamburgers just aren't the same with out a bun either. I just had to sit through lunch and watch everyone at the table eat burritos. 

PastorDave try the Chebe Pizza Crust. I think I like them better than regular crust. 

Definitely try chebe...i'd recommend making the crust using the regular chebe bread mix, though, rather than the mix for the pizza crust....turns out better using that one to make the crust in my opinion.

tarnalberry Community Regular

cynical - you can still have hot chocolate. plain powdered cocoa has no dairy (or gluten), and you can make it with soy milk if you want it creamy. many dark chocolates also contain no dairy (or gluten). I particularly like Scharfen-Burgher's cocoa powder.

cynicaltomorrow Contributor
cynical - you can still have hot chocolate. plain powdered cocoa has no dairy (or gluten), and you can make it with soy milk if you want it creamy. many dark chocolates also contain no dairy (or gluten). I particularly like Scharfen-Burgher's cocoa powder.

Oh yeah, I know. I have made it with soy milk and chocolate syrup. My friend wanted me to get it from a gas station though, haha.

jendenise Rookie

It's been a while since I've been here... Quick question does most regular hot chocolates (like the kind from quicky marts) have gluten in them??? Thanks

darlindeb25 Collaborator
;) it shouldnt--i worked at speedway and their hot cocoa didnt--i read it to be sure, ubt i never drank it--i dont like hot cocoa much--sorry-----deb
lovegrov Collaborator

None of us can guarantee you that some unknown hot chocolate is gluten-free, but all that I've checked have been. Stephens, Quick, Swiss Miss.

richard

mrsfiles Newbie

Hi everyone,

I'm pretty new to Celiac (2 1/2 years). I cried the first time I tried the frozen pre-made gluten-free breads out there. Nothing I did would make them palatable enough for me. My wonderful husband bought me a great programmable bread machine and I have since learned to make a great variety of breads with Bette Hagman's gluten-free Gourmet Bakes Bread recipes. With the machine, all it takes is throwing in the ingredients, starting the machine (which is programmed to skip the 2nd kneading & rising that gluten-free breads do not need), and within 3 hours, I have tasty bread at my disposal. My sandwiches do not fall apart, and I use any crumbs for gluten-free croutons or gluten-free bread crumbs. Take heart! It does get a little easier with time, research and advice from fellow Celiacs. :D

sunflower Newbie
A variation that the family used to make (unfortunately I didn't get the recipe for the filling) was to use poppy seeds instead of ground walnuts.

tyki,

there is a similar Polish cake with poppy seed filling. It is called makowiec (pronounced makovietz), though I'd translate that as "poppy seed cake" rather than "bread"... It is also a traditional Christmas cake in Poland.

Here are a few recipes that I found on the Web, although they are not gluten-free, I think you could try making them with a gluten-free flour substitute ( I never had enough patience to try to make gluten-free yeast dough myself, but the filling should be OK ;) ).

here's a recipe for makowiec and for the poppy seed filling (and for a few more Polish cakes):

Open Original Shared Link

and a recipe for potica ;)

Open Original Shared Link

I hope you enjoy it ;)

once and again Rookie

I never liked bread, pasta or pizza that much - so I really don't miss them that much. What I really miss is being able to bake cookies and biscuits. I used to go through 20 lbs. of flour between Thanksgiving and New Year's! <_< I didn't eat that much of it - gave most of it away. This is my first holiday season since being diagnosed and I didn't trust myself not to eat cookies warm from the oven. Rugelach, pecan tassies, triple chocolate cookies with nuts.... I missed the tradition. Maybe next year I'll feel comfortable enough that I can still bake for others and not be tempted to taste.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    5. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,845
    • Most Online (within 30 mins)
      7,748

    Paulaannefthimiou
    Newest Member
    Paulaannefthimiou
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.