Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medicinal Mushrooms And Autoimmune Disorders


Cinnamon

Recommended Posts

Cinnamon Apprentice

I've been searching around for some supplements that might help my gluten sensitive family. I think Slippery Elm is good because it's supposed to coat and protect the intestinal lining, and so far it seems pretty good. But my main concern is that, having gone off gluten, everyone's confused immune systems will turn on other organs or go after other foods which previously were no problem. It seems like it's a common thing for someone to go off gluten and feel great, only to find that now other foods are intolerable. Other autoimmune diseases are more likely once you've had one, as well. So I've been trying to research things that might help the immune system.

One of the things I've been reading about is that medicinal mushrooms have substances in them that both stimulate and help modulate the immune system. But I really don't want to stimulate it, just modulate it. I essentially want to say, "look, Mr. Small Intestine is your friend. Yes, he was harboring your enemy, that gluten guy, for a while. Don't take it personally. And Mr. Thyroid, well he had nothing to do with this, you didn't have to punch his lights out. Take a deep breath and just relax." I don't want to make the immune system stronger, just smarter.

Has anyone tried the mushrooms? I was in the health food store the other day and saw them in a powdered capsule form and bought them, but I'm kind of afraid to try them. I don't want to stimulate the immune system and make things worse, but if they would modulate the immune system, it might prevent other diseases and maybe other intolerances, and perhaps make accidental glutening reactions less severe.

Anyone have any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moldlady Rookie

Hi Cinnamon,

A few mushrooms/fungi have been found to fight other fungi. They will kill off with their mycotoxins the fungus that is living in your body and therefore help your immune system recover. This is a good thing but do go slow as the killing off of fungus in the body no matter how you do it will cause some die off reactions.

Go slow and remember to drink plenty of good clean water, have AC on hand, take a detox bath, eat plenty of good fiber in veggies and low sugar fruits to bind with the toxins released. All of that will speed up the detox process and bind with toxins and take them out of the body.

ML

VioletBlue Contributor

I use Slippery Elm because of it's anti-inflamatory properties. I also take Elderberry daily. Elderberry is considered by some to be a type of natural anti-biotic and it naturally contains a good dose of A B and C vitamins. Most common medicinal herbs in the daisy family cause a reaction for me, but the Slippery Elm and the Elderberry have yet to be an issue.

gluten15 Apprentice

I'm kinda confused about the mushroom thing right now. I had been taking Garden Of Life RM-10..but stopped taking it because I was also trying to work a candida into things and I thought that mushrooms weren't allowed for this..plus..aren't mushrooms overall sort of something we are warned to stay away from because of fungal type stuff?

Or would the mushrooms in the Garden Of Life RM-10 completely different. Am I way off base and overthinking this?

I have always sort of been confused by mushroom supps. On one hand they sound exciting..yet other things I read about mushrooms make me want to stay away from all mushrooms.

Thoughts and opinions would be very much appreciated please.

Thanks again.

moldlady Rookie

I agree, it is confusing. I do not eat mushrooms and I do not eat foods that contain fungus in them. Just as a precaution in case the spores or mycelia decide to morph into something that starts to become a problem.

There are certain rare types of fungus however that do kill other fungi. These are the specific ones I think that can actually help the immune system fight off systemic fungus. Nystatin is derived from a fungus and kills fungus in the intestinal tract.

ML

Cinnamon Apprentice

Thank you for your replies. I guess it's hard to know whether they are a good thing or a bad thing. It's probably better not to take the powdered capsule kind, since it gives you many times as much as you'd get if you just ate some mushrooms. I guess the jury is still out on this one.

BramelyHall Newbie
Thank you for your replies. I guess it's hard to know whether they are a good thing or a bad thing. It's probably better not to take the powdered capsule kind, since it gives you many times as much as you'd get if you just ate some mushrooms. I guess the jury is still out on this one.

I haven't used mushrooms but just wanted to tell you Slippery Elm can be dangerous for pregnant women. It relaxes smooth walled muscle tissue and can cause miscarrriages. It has a a history of use as an abortificant too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CJS Rookie
Hi Cinnamon,

A few mushrooms/fungi have been found to fight other fungi. They will kill off with their mycotoxins the fungus that is living in your body and therefore help your immune system recover. This is a good thing but do go slow as the killing off of fungus in the body no matter how you do it will cause some die off reactions.

Go slow and remember to drink plenty of good clean water, have AC on hand, take a detox bath, eat plenty of good fiber in veggies and low sugar fruits to bind with the toxins released. All of that will speed up the detox process and bind with toxins and take them out of the body.

ML

CJS Rookie

What is AC?

CJS

[
Hi Cinnamon,

A few mushrooms/fungi have been found to fight other fungi. They will kill off with their mycotoxins the fungus that is living in your body and therefore help your immune system recover. This is a good thing but do go slow as the killing off of fungus in the body no matter how you do it will cause some die off reactions.

Go slow and remember to drink plenty of good clean water, have AC on hand, take a detox bath, eat plenty of good fiber in veggies and low sugar fruits to bind with the toxins released. All of that will speed up the detox process and bind with toxins and take them out of the body.

ML

moldlady Rookie
What is AC?

CJS

[

Hi CJS,

AC is activated charcoal. Absorbs toxins very well and also gas/bloat. If you are on meds it will absorb that too so do be careful. Take at least 4 hours after meds.

ml

Cinnamon Apprentice

Thanks so much for your help. I think I'll try Goji Berries instead of the mushrooms. Supposedly they help the immune system distinguish between what is self and what is not self, as well as a whole bunch of other things. Sounds safer. And thanks for telling me about the Slippery Elm causing miscarriages. I didn't know that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.