Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tooth Decay And Very Noticeable Hair Loss


radgirl

Recommended Posts

Panopticism Rookie

Your best bet is just to not use anything unless you're 100% certain it's gluten free. For the hair, check your ingredients, MAKE SURE THERE IS NO WHEAT IN YOUR SHAMPOO/CONDITIONER. The shampoo and conditioners I was using listed Hydrolyzed wheat protein. I stopped using them, and my hair is soft again, but unfortunately other people who use the same shower as I do refuse to change to something else, and as a result, I get itchy feet every time I shower. It's pretty strange.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchygirl Newbie
Not to contradict, however for me just using baking soda to brush with works great. Plus it helps keep down the residual candida.

Yolo if you're not into flouride, the Caphosol I mentioned has no floride, only calcium and phosphate. Makes me feel like a mad chemist mixing it up B)

Caphosol is a preparation comprising two separately packaged aqueous solutions, a phosphate solution (Caphosol A) and a calcium solution (Caphosol B) which, when both ampule solutions are combined in equal volumes, form a solution supersaturated with respect to both calcium and phosphate ions.
radgirl Enthusiast
Your best bet is just to not use anything unless you're 100% certain it's gluten free. For the hair, check your ingredients, MAKE SURE THERE IS NO WHEAT IN YOUR SHAMPOO/CONDITIONER. The shampoo and conditioners I was using listed Hydrolyzed wheat protein. I stopped using them, and my hair is soft again, but unfortunately other people who use the same shower as I do refuse to change to something else, and as a result, I get itchy feet every time I shower. It's pretty strange.

Oh yes, my hair products are gluten free. I have been using Dove and my styling aids are gluten free as well. A couple of weeks ago, I ended up using a hair color with wheat germ oil in it. I about flipped because the color was already in my hair and it was too late. So, to avoid minimal ingestion, I had my mom wash my hair well, in the sink and then I showered. I think I was ok. I'm really bothered though by the amount of contradicting information. One person says this, someone says something else. one company says yes, another says no. I'm fed up with it. This is my life we are talking about - our lives. I need to be as safe as possible. I know that there is no way to be 100% completely safe, but for the love of Pete, if you know there is a possibility or a trace, something, anything, tell me so I can make the right decision.

Panopticism Rookie

I make my own food and hygiene products from natural ingredients. I trust myself! :lol: Been given the same bull**** from all the companies I've called. Customer service hotlines are useless. It's true that you have to be careful, with all the recent studies on Celiac disease and how it may lead to REALLY scary stuff if left untreated. People think I'm just being overcautious sometimes and refuse to accept the fact that it's not at all like lactose intolerance.

radgirl Enthusiast
I make my own food and hygiene products from natural ingredients. I trust myself! :lol: Been given the same bull**** from all the companies I've called. Customer service hotlines are useless. It's true that you have to be careful, with all the recent studies on Celiac disease and how it may lead to REALLY scary stuff if left untreated. People think I'm just being overcautious sometimes and refuse to accept the fact that it's not at all like lactose intolerance.

I'll take lactose intolerance over this crap any day of the week! I'm with you! For the most part, I do trust the companies when I call. But when I get contradicting information, my trust goes out the window. I know that no production line can ever be 100% tracked (unless it's a dedicated facility or line), but give me a break. You should know your QA and have a standards and procedures in line that should make this pretty darn safe. Don't give me this crap of, "oh well, we don't put any gluten in there, but we also don't know where the materials come from to make our product". Since celiac disease/GI and the like on are the rise, companies better start upping the standards to make things safe and start complying with what the customers needs. Or else we will go elsewhere to find what we need. And don't say it will cost more, because it won't. Ok, rant/vent = over.

MELINE Enthusiast

does anyone know about kerastage products?? (it is a trademark for shampoos...It's french I don't know if you are using it...)

radgirl Enthusiast
does anyone know about kerastage products?? (it is a trademark for shampoos...It's french I don't know if you are using it...)

I believe that product is produced by L'Oreal or Revlon. I don't know anything about it. Have you tried calling the manufacturer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast
I believe that product is produced by L'Oreal or Revlon. I don't know anything about it. Have you tried calling the manufacturer?

I've never called any manufacturer before and ask him if there is gluten in his product...I guess I'll have to do that....I'm always afraid they are going to laugh at me..silly me...I'll get over it and have that question. Thank you!

YoloGx Rookie
Yolo if you're not into flouride, the Caphosol I mentioned has no floride, only calcium and phosphate. Makes me feel like a mad chemist mixing it up B)

If there is some problem using baking soda please let me know. I am not aware of any problem. No chemicals, just easy...And my teeth are great. Especially since as I say I do take various mineral supplements I listed previously -- plus fibronylitic agents which reduce scarring and inflammation and help me metabolize those above minerals I am taking. Marshmallow root taken internally helps soothe and heal the intestines too--and thus mineral absorption is better and down wind the teeth and gums.

  • 3 weeks later...
Kristin81 Newbie

Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

radgirl Enthusiast
Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

Kristin, this is a great question and by no means naive. I've wondered the same thing. Hopefully someone can shed more light on this issue.

ravenwoodglass Mentor
Does anyone know if there is a direct correlation between hair products that contain gluten and hair loss? I've been on a gluten free diet for a month, but just learned that my Aveda conditioner has gluten in it. Of course I stopped using it immediately, but I was under the impression that celiac has to do with ingested gluten. Forgive me if this is a naive observation, I'm pretty new at this. But if anyone has any info on gluten hair products causing hair loss, I'd be very interested.

Yes there is. Gluten is absorbed through mucous membranes, including those in the nose and mouth. Even a tiny amount that accidentally gets into your system will keep the autoimmune process going. For those of us who lose hair it is often this autoimmune process that is more at fault for the loss than poor nutritional uptake but both can be a factor.

Kristin81 Newbie
Yes there is. Gluten is absorbed through mucous membranes, including those in the nose and mouth. Even a tiny amount that accidentally gets into your system will keep the autoimmune process going. For those of us who lose hair it is often this autoimmune process that is more at fault for the loss than poor nutritional uptake but both can be a factor.

Raven - Thanks for the reply :) This gives me more hope that my hair will stop falling out and actually begin to re-grow soon!

jasmari Newbie

Hi there.

I started having hair loss problems last summer and it's been falling out steadily since then. My only saving grace is that I see new hair coming in but it's still getting so thin. I too had hair in the tub, on the pillow, etc. I saw a determatologist who ran all kinds of tests. All we could pin point was the low iron. Even the celiac bloodwork came back normal. However, I recently had a biopsy and that showed positive for celiac (I guess this happens). In any case, I'm confident that the celiac is at the root (no pun intended) of the problem. From what I've read on this subject, once the body starts responding to the gluten free diet, this usually takes care of the hair loss problem.

I know how you feel. It's a huge emotional issue especially for women and I"m so tired of people telling me to stop worrying. Hang in there!

Rita

jasmari Newbie

Hi there.

I started having hair loss problems last summer and it's been falling out steadily since then. My only saving grace is that I see new hair coming in but it's still getting so thin. I too had hair in the tub, on the pillow, etc. I saw a determatologist who ran all kinds of tests. All we could pin point was the low iron. Even the celiac bloodwork came back normal. However, I recently had a biopsy and that showed positive for celiac (I guess this happens). In any case, I'm confident that the celiac is at the root (no pun intended) of the problem. From what I've read on this subject, once the body starts responding to the gluten free diet, this usually takes care of the hair loss problem.

I know how you feel. It's a huge emotional issue especially for women and I"m so tired of people telling me to stop worrying. Hang in there!

Rita

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.