Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mri Contrast?

psipsina

By psipsina
in Food Intolerance & Leaky Gut

Recommended Posts

psipsina Rookie
psipsina
Posted

Hey y'all. I had a MRI last week and really felt glutened after it. I had a bad headache and was super sleepy and out of it . . . I barely remember the night after the scan. Well now I have what looks like DH popping up all over my body. It started on the arm where I was injected with contrast for the MRI and has moved all over my body over the past week. It started right after the MRI. I was out of town in someone else's kitchen so it is possible that I got glutened but I never felt sick until the MRI and usually I can feel it when I get gluten in me. I had another MRI last October and I felt really sick after that one too but chocked it up to being confined in one position for so long and all the banging. I've never had DH symptoms before but I'm pretty sure thats what this rash is because it looks exactly like the pictures and is in all the right spots. Has anyone ever had anything similar happen with MRI contrast?? Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rick-spiff Rookie
rick-spiff
Posted

my son just had a mri begining of march. After contrast he said he didn't feel good either. Was nauseated. Heard that GI/Celiacs sometimes are sensitive to Iodine which is the contrast.

tarnalberry Community Regular
tarnalberry
Posted

some types of contrast have a basis from shellfish, so if you have a shellfish sensitivity, that may be an issue. the iodine may also be at play.

  • 2 weeks later...
SpecialK Newbie
SpecialK
Posted

Hi. I had an MRI with contrast about 3 years ago. And while I didn't feel sick I broke out in a rash the next day. It spread around my body. My doctor said it was a reaction to the dye and to never let anyone inject me with the dye again. He said there were other things they could use besides iodine for a contrast.

Kim

Judyin Philly Enthusiast
Judyin Philly
Posted

i HAVE 2 MRI's coming up next week

It is with galian.....or something like that ........they said...'gad' on the script

i have allergies to shellfish so never use the iodine base.

did have a brain MRI with 'gad' and it was ok.

pray this week with the 'gad' goes ok...........

Anyone have info on this.........pleeeeeeeeease post about it.

they said the gad had just water and mercury.......i think..........YIKES..........BUT BETTER THAN SHELLFISH. WON'T DO IT FOR THE BRAIN W/O. IT THEY SAID.

The 2 this week don't need contrast so will double ck when i am there. Will wait for the brain one.

judy

rpf1007 Rookie
rpf1007
Posted

MRI contrast uses gadolinium...there is no iodine in it. It is the CT contrast that has iodine in it.

rpf1007 Rookie
rpf1007
Posted

Oh, and Judy...

The shellfish allergy is usually not a problem with CT contrast anymore (the stuff with iodine) but definitely let the tech know and speak with the Radiologist if you are concerned about it.

It is routine to give contrast for the brain MRI...barring any allergy or major kidney problems, they would never do one without.

You can usually speak with the radiologist if you have concerns about your test and/or the contrast they will give you.

Hope that helps.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judyin Philly Enthusiast
Judyin Philly
Posted
Oh, and Judy...

The shellfish allergy is usually not a problem with CT contrast anymore (the stuff with iodine) but definitely let the tech know and speak with the Radiologist if you are concerned about it.

It is routine to give contrast for the brain MRI...barring any allergy or major kidney problems, they would never do one without.

You can usually speak with the radiologist if you have concerns about your test and/or the contrast they will give you.

Hope that helps.

Thanks so much for the info

judy

Green12 Enthusiast
Green12
Posted
i HAVE 2 MRI's coming up next week

It is with galian.....or something like that ........they said...'gad' on the script

i have allergies to shellfish so never use the iodine base.

did have a brain MRI with 'gad' and it was ok.

pray this week with the 'gad' goes ok...........

Anyone have info on this.........pleeeeeeeeease post about it.

they said the gad had just water and mercury.......i think..........YIKES..........BUT BETTER THAN SHELLFISH. WON'T DO IT FOR THE BRAIN W/O. IT THEY SAID.

The 2 this week don't need contrast so will double ck when i am there. Will wait for the brain one.

judy

JUDY!

IS EVERYTHING OK? JUST READ THIS ABOUT YOUR 2 MRIs THIS WEEK.

I WILL KEEP YOU IN MY THOUGHTS AND I HOPE ALL GOES WELL WITH THEM.

Judyin Philly Enthusiast
Judyin Philly
Posted
JUDY!

IS EVERYTHING OK? JUST READ THIS ABOUT YOUR 2 MRIs THIS WEEK.

I WILL KEEP YOU IN MY THOUGHTS AND I HOPE ALL GOES WELL WITH THEM.

Thanks so much Julie

I guess we'll know after tomorrow nite.

This is the 4th time they have had to re write the scrpts, get different referals, and pre certs.

now i have 2 MRI's back to back tomorrow at 6:15 pm

Now they will be doing dye with the both of them.

but one one injection........but have to do for the brain stem one.

appreciate your thoughts

Judy

rinne Apprentice
rinne
Posted

Judy, you are in my prayers. :wub:

rinne Apprentice
rinne
Posted
......Has anyone ever had anything similar happen with MRI contrast?? Thanks.

I think you bring up an interesting question, I suspect the MRI and I wonder if many others have reacted to an MRI. I hope you feel better soon. :)

jerseyangel Proficient
jerseyangel
Posted
Judy, you are in my prayers. :wub:

Mine too, Buddy :)

Green12 Enthusiast
Green12
Posted

Judy, how did it go?

Judyin Philly Enthusiast
Judyin Philly
Posted
Judy, how did it go?

HI JULIE AND ALL OF YOU GUYS

I really like to post positive hopeful posts but with this link I guess this post will just be a heads up for us.

Open Original Shared Link

I didn't read till I got home and had itching and a headache in about an hr. Then the lymphodemea area on my L leg started getting very red......from knee to waist. I get this, I've found when glutened or some food allergic reaction. Very shaky, and of course brain fog.

Was still there the following morning.......like glut-end w/o the 'd' thank God.

Called the MRI center and they had me talk to a radiologist and i asked him to amend my report with the symptoms I had. Asked first if he was aware of celiac disease. He'd never heard of it.

This is a big respected hospital too.

long story short without allot of details ..........just not up to a long post today............This is just info to be aware of........there are many links to this on goggle but this one wasn't from attorneys as didn't want those.........

I know that this injection does not have iodine.....but this MRI injection still seems to have risks for some of us.........even tho it is 99.9% safe per the radiologist.......... :ph34r: who of course didn't know about celiac.

I know for me............they could only do one of the 2 tests ordered that nite and wanted me back tonight to finish.

well, I canceled it. No more dye for me ever. Yes they can do w/o dye for the others but i need a break to be kind to my body. ;)

would love to have other celiac's who have had not problems with this chime in too.

oh, she wanted to put NATURAL VIT E CAPSULES ON SHOULDER AS A MARKER FOR MACHINE....OF COURSE IT WAS WHEAT BASED SO I DECLINED..............THE OTHER SHE WAS GOING TO USE AS A BACK UP WAS SOY BEAN BASED.

LOVE YOU ALL FOR YOUR SUPPORT

JUDY

Green12 Enthusiast
Green12
Posted

Sorry you didn't have a very pleasant experience Judy.

Thanks for that link, I had heard on the news the dye is pretty dangerous stuff.

Judyin Philly Enthusiast
Judyin Philly
Posted
Sorry you didn't have a very pleasant experience Judy.

Thanks for that link, I had heard on the news the dye is pretty dangerous stuff.

wow Julie, I sure never heard any of this on the news.

Everyone says it 'so safe' :ph34r:

There are just so many links on google that are amazing.

Wish i had read those.

Judy

pattyc Newbie
pattyc
Posted

Just in time!

I'm sorry you had such a bad reaction, but thank you for posting! I came back from the orthopedic dr. today, with an order for a hip MRI for next week. He was suggesting gad, (the dye) but said if I had an allergic reaction last time I can go without. I had the dye a few years ago and didn't like it so much. Would you consider a red itchy rash on my arm around the injection site, thick feeling in my throat/tongue, warmth everywhere, headache, the "normal reaction" that they say can happen or an allergic reaction? My allergies/intolerances were actually in low gear at the time of that last MRI, and they are up now, so after seeing your post and the link, I don't think I want to risk it. Last time the gad/dye was injected into an iv...this time it would be injected right into my hip. Would that make it less risky?

Judyin Philly Enthusiast
Judyin Philly
Posted
Just in time!

so after seeing your post and the link, I don't think I want to risk it. Last time the gad/dye was injected into an iv...this time it would be injected right into my hip. Would that make it less risky?

I don't know if it would be LESS risky or not. Frankly after reading up on it it seems if there was any reaction the first time.......they say not to take again.

I know from my 'personal experience' i would not ever take that dye again....but this is just me.

my internist and the radiologist didn't put much credence in what happen to me..........but then they just go by the research and not my body. My body doesn't like it..........that's all i know.

if they give you the option to NOT have the dye........i wouldn't. My next MRI is to be scheduled and It didn't need dye just the brain one did and they refused to do it with out and since i didn't have a reaction to it the first time i thought i was OK. But the second time..........it was not a good response.

good luck

Judy

Joni63 Collaborator
Joni63
Posted

Yikes!

Sorry you had such a reaction Judy. It sounds like nasty stuff to deal with.

Judy, did they make you take a blood test first to screen your kidneys. I'm supposed to get screened for creatinine, GFR, and Buix (something like that, can't understand the script)??? It's to make sure your kidneys are functioning properly to allow the gadolinium to exit out bodies. Apparently, those with kidney problems can't excrete the gadolinium and it becomes toxic to our body.

I'm scheduled for an MRI of my head next friday with the gadolinium. Did someone say they have to use the gadolineum for an MRI of the head?

rpf1007 Rookie
rpf1007
Posted

You should be screened for kidney function (creatinine, BUN) and can calculate GFR. Most people that have very serious reactions have kidney issues.

Doing a brain MRI with contrast is routine- unless the patient has a prior allergy to the contrast or bad kidney function. It really limits the exam to do it without. Some things you just don't see without contrast.

Judyin Philly Enthusiast
Judyin Philly
Posted

Hi bellyfat

gosh i just hate to post and scare people :ph34r: but knowledge is power so i guess we just have to find what's best for our bodies.

Others posted on this thread that's it's usually given for brain scans. Yes i had blood work done 37 days before the test and all was ok but then they said protocol was for 30 days before test so i had it done 3 days before and they said all that blood work was good.

i don't know what to say to comfort you but I'd sure talk to a radiologist as someone else suggested before you go in for it......not the day of it.

there was no dr there when they did my test........just the tech doing it but she did call a dr to come down to approve the way she wanted to arrange this metal plate over me.

please keep us posted, ok. Some one on another forum posted some info for me and it was above my head but i could link if you want or pm anyone interested.

i'll be checking on you both and offering prayers

Judy

EDIT--rpf1007--thanks for the info...we must have been posting at the same time.

I just think we all need to be aware of this info. I sure don't know if celiac or kidney issues make us for intollerant to it.

maybe rpf1007 can shed some more lite on the topic.

I sure would appreciate more info from you as you seem to know alot about this issue.

rpf1007 Rookie
rpf1007
Posted

Judy,

I'm honestly not sure why some react with GI issues to contrast and some do not. Some people do get GI disturbances after contrast...which would probably not be considered an allergy...more of an intolerance. (Not that it makes it any better for the person who is intolerant!) Rashes would be considered more of an allergic reaction and those should be discussed with the Radiologist prior to any future injections. Since MRI contrast and CT contrast are different...allergy to one doesn't mean that you can't get the other...but again, speak with the radiologist.

I will try and do some research about people with celiac disease and reactions/intolerances and get back to you. As far as I know it hasn't really been studied.

I emailed the producers of Magnevist (one brand of gadolinium MRI contrast) and got no response. Very helpful!

Unfortunately I'm working graveyard shifts in April and won't be able to talk to too many people about it.

I will let you know if I find anything out.

Rachel

Judyin Philly Enthusiast
Judyin Philly
Posted
Judy,

I'm honestly not sure why some react with GI issues to contrast and some do not. Some people do get GI disturbances after contrast

I emailed the producers of Magnevist (one brand of gadolinium MRI contrast) and got no response. Very helpful!

I will let you know if I find anything out. Rachel

Thanks so much Rachel. It would be so helpful to me.

I didn't get the 'd' this time......only other issues I listed in above posts.

I think that they listed the contrast they used by name and i'll see if i can find it

so appreciate your help

good luck on the grave yard shift.

judy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    3. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748
    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.