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psipsina

Mri Contrast?

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Hey y'all. I had a MRI last week and really felt glutened after it. I had a bad headache and was super sleepy and out of it . . . I barely remember the night after the scan. Well now I have what looks like DH popping up all over my body. It started on the arm where I was injected with contrast for the MRI and has moved all over my body over the past week. It started right after the MRI. I was out of town in someone else's kitchen so it is possible that I got glutened but I never felt sick until the MRI and usually I can feel it when I get gluten in me. I had another MRI last October and I felt really sick after that one too but chocked it up to being confined in one position for so long and all the banging. I've never had DH symptoms before but I'm pretty sure thats what this rash is because it looks exactly like the pictures and is in all the right spots. Has anyone ever had anything similar happen with MRI contrast?? Thanks.


Pre-diagnosis misdiagnoses: endometriosis, migraines, psoriatic arthritis, psoriasis

Diagnosed April 2006 with multiple food sensitivities (gluten, yeast, eggs, cow dairy, legumes, some nuts and veggies) and a systemic candida infection -no pre-diagnosis symptoms since!

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my son just had a mri begining of march. After contrast he said he didn't feel good either. Was nauseated. Heard that GI/Celiacs sometimes are sensitive to Iodine which is the contrast.


Whole family is allergic to Gluten, eggs, dairy, most are allergic to garlic. Few other various allergies.

Did you know it's best to wait until 21 months to give a baby wheat??

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some types of contrast have a basis from shellfish, so if you have a shellfish sensitivity, that may be an issue. the iodine may also be at play.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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Hi. I had an MRI with contrast about 3 years ago. And while I didn't feel sick I broke out in a rash the next day. It spread around my body. My doctor said it was a reaction to the dye and to never let anyone inject me with the dye again. He said there were other things they could use besides iodine for a contrast.

Kim

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i HAVE 2 MRI's coming up next week

It is with galian.....or something like that ........they said...'gad' on the script

i have allergies to shellfish so never use the iodine base.

did have a brain MRI with 'gad' and it was ok.

pray this week with the 'gad' goes ok...........

Anyone have info on this.........pleeeeeeeeease post about it.

they said the gad had just water and mercury.......i think..........YIKES..........BUT BETTER THAN SHELLFISH. WON'T DO IT FOR THE BRAIN W/O. IT THEY SAID.

The 2 this week don't need contrast so will double ck when i am there. Will wait for the brain one.

judy


Judy in Southern CA

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Oh, and Judy...

The shellfish allergy is usually not a problem with CT contrast anymore (the stuff with iodine) but definitely let the tech know and speak with the Radiologist if you are concerned about it.

It is routine to give contrast for the brain MRI...barring any allergy or major kidney problems, they would never do one without.

You can usually speak with the radiologist if you have concerns about your test and/or the contrast they will give you.

Hope that helps.

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Oh, and Judy...

The shellfish allergy is usually not a problem with CT contrast anymore (the stuff with iodine) but definitely let the tech know and speak with the Radiologist if you are concerned about it.

It is routine to give contrast for the brain MRI...barring any allergy or major kidney problems, they would never do one without.

You can usually speak with the radiologist if you have concerns about your test and/or the contrast they will give you.

Hope that helps.

Thanks so much for the info

judy


Judy in Southern CA

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i HAVE 2 MRI's coming up next week

It is with galian.....or something like that ........they said...'gad' on the script

i have allergies to shellfish so never use the iodine base.

did have a brain MRI with 'gad' and it was ok.

pray this week with the 'gad' goes ok...........

Anyone have info on this.........pleeeeeeeeease post about it.

they said the gad had just water and mercury.......i think..........YIKES..........BUT BETTER THAN SHELLFISH. WON'T DO IT FOR THE BRAIN W/O. IT THEY SAID.

The 2 this week don't need contrast so will double ck when i am there. Will wait for the brain one.

judy

JUDY!

IS EVERYTHING OK? JUST READ THIS ABOUT YOUR 2 MRIs THIS WEEK.

I WILL KEEP YOU IN MY THOUGHTS AND I HOPE ALL GOES WELL WITH THEM.

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JUDY!

IS EVERYTHING OK? JUST READ THIS ABOUT YOUR 2 MRIs THIS WEEK.

I WILL KEEP YOU IN MY THOUGHTS AND I HOPE ALL GOES WELL WITH THEM.

Thanks so much Julie

I guess we'll know after tomorrow nite.

This is the 4th time they have had to re write the scrpts, get different referals, and pre certs.

now i have 2 MRI's back to back tomorrow at 6:15 pm

Now they will be doing dye with the both of them.

but one one injection........but have to do for the brain stem one.

appreciate your thoughts

Judy


Judy in Southern CA

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Judy, you are in my prayers. :wub:


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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......Has anyone ever had anything similar happen with MRI contrast?? Thanks.

I think you bring up an interesting question, I suspect the MRI and I wonder if many others have reacted to an MRI. I hope you feel better soon. :)


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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Judy, how did it go?

HI JULIE AND ALL OF YOU GUYS

I really like to post positive hopeful posts but with this link I guess this post will just be a heads up for us.

http://www.mri-dye-recall.com/gadolinium_side_effects

I didn't read till I got home and had itching and a headache in about an hr. Then the lymphodemea area on my L leg started getting very red......from knee to waist. I get this, I've found when glutened or some food allergic reaction. Very shaky, and of course brain fog.

Was still there the following morning.......like glut-end w/o the 'd' thank God.

Called the MRI center and they had me talk to a radiologist and i asked him to amend my report with the symptoms I had. Asked first if he was aware of celiac disease. He'd never heard of it.

This is a big respected hospital too.

long story short without allot of details ..........just not up to a long post today............This is just info to be aware of........there are many links to this on goggle but this one wasn't from attorneys as didn't want those.........

I know that this injection does not have iodine.....but this MRI injection still seems to have risks for some of us.........even tho it is 99.9% safe per the radiologist.......... :ph34r: who of course didn't know about celiac.

I know for me............they could only do one of the 2 tests ordered that nite and wanted me back tonight to finish.

well, I canceled it. No more dye for me ever. Yes they can do w/o dye for the others but i need a break to be kind to my body. ;)

would love to have other celiac's who have had not problems with this chime in too.

oh, she wanted to put NATURAL VIT E CAPSULES ON SHOULDER AS A MARKER FOR MACHINE....OF COURSE IT WAS WHEAT BASED SO I DECLINED..............THE OTHER SHE WAS GOING TO USE AS A BACK UP WAS SOY BEAN BASED.

LOVE YOU ALL FOR YOUR SUPPORT

JUDY


Judy in Southern CA

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Sorry you didn't have a very pleasant experience Judy.

Thanks for that link, I had heard on the news the dye is pretty dangerous stuff.

wow Julie, I sure never heard any of this on the news.

Everyone says it 'so safe' :ph34r:

There are just so many links on google that are amazing.

Wish i had read those.

Judy


Judy in Southern CA

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Just in time!

I'm sorry you had such a bad reaction, but thank you for posting! I came back from the orthopedic dr. today, with an order for a hip MRI for next week. He was suggesting gad, (the dye) but said if I had an allergic reaction last time I can go without. I had the dye a few years ago and didn't like it so much. Would you consider a red itchy rash on my arm around the injection site, thick feeling in my throat/tongue, warmth everywhere, headache, the "normal reaction" that they say can happen or an allergic reaction? My allergies/intolerances were actually in low gear at the time of that last MRI, and they are up now, so after seeing your post and the link, I don't think I want to risk it. Last time the gad/dye was injected into an iv...this time it would be injected right into my hip. Would that make it less risky?

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Just in time!

so after seeing your post and the link, I don't think I want to risk it. Last time the gad/dye was injected into an iv...this time it would be injected right into my hip. Would that make it less risky?

I don't know if it would be LESS risky or not. Frankly after reading up on it it seems if there was any reaction the first time.......they say not to take again.

I know from my 'personal experience' i would not ever take that dye again....but this is just me.

my internist and the radiologist didn't put much credence in what happen to me..........but then they just go by the research and not my body. My body doesn't like it..........that's all i know.

if they give you the option to NOT have the dye........i wouldn't. My next MRI is to be scheduled and It didn't need dye just the brain one did and they refused to do it with out and since i didn't have a reaction to it the first time i thought i was OK. But the second time..........it was not a good response.

good luck

Judy


Judy in Southern CA

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Yikes!

Sorry you had such a reaction Judy. It sounds like nasty stuff to deal with.

Judy, did they make you take a blood test first to screen your kidneys. I'm supposed to get screened for creatinine, GFR, and Buix (something like that, can't understand the script)??? It's to make sure your kidneys are functioning properly to allow the gadolinium to exit out bodies. Apparently, those with kidney problems can't excrete the gadolinium and it becomes toxic to our body.

I'm scheduled for an MRI of my head next friday with the gadolinium. Did someone say they have to use the gadolineum for an MRI of the head?


Joni

Dx'd with Celiac Disease 8/01/07

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You should be screened for kidney function (creatinine, BUN) and can calculate GFR. Most people that have very serious reactions have kidney issues.

Doing a brain MRI with contrast is routine- unless the patient has a prior allergy to the contrast or bad kidney function. It really limits the exam to do it without. Some things you just don't see without contrast.

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Hi bellyfat

gosh i just hate to post and scare people :ph34r: but knowledge is power so i guess we just have to find what's best for our bodies.

Others posted on this thread that's it's usually given for brain scans. Yes i had blood work done 37 days before the test and all was ok but then they said protocol was for 30 days before test so i had it done 3 days before and they said all that blood work was good.

i don't know what to say to comfort you but I'd sure talk to a radiologist as someone else suggested before you go in for it......not the day of it.

there was no dr there when they did my test........just the tech doing it but she did call a dr to come down to approve the way she wanted to arrange this metal plate over me.

please keep us posted, ok. Some one on another forum posted some info for me and it was above my head but i could link if you want or pm anyone interested.

i'll be checking on you both and offering prayers

Judy

EDIT--rpf1007--thanks for the info...we must have been posting at the same time.

I just think we all need to be aware of this info. I sure don't know if celiac or kidney issues make us for intollerant to it.

maybe rpf1007 can shed some more lite on the topic.

I sure would appreciate more info from you as you seem to know alot about this issue.


Judy in Southern CA

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Judy,

I'm honestly not sure why some react with GI issues to contrast and some do not. Some people do get GI disturbances after contrast...which would probably not be considered an allergy...more of an intolerance. (Not that it makes it any better for the person who is intolerant!) Rashes would be considered more of an allergic reaction and those should be discussed with the Radiologist prior to any future injections. Since MRI contrast and CT contrast are different...allergy to one doesn't mean that you can't get the other...but again, speak with the radiologist.

I will try and do some research about people with celiac disease and reactions/intolerances and get back to you. As far as I know it hasn't really been studied.

I emailed the producers of Magnevist (one brand of gadolinium MRI contrast) and got no response. Very helpful!

Unfortunately I'm working graveyard shifts in April and won't be able to talk to too many people about it.

I will let you know if I find anything out.

Rachel

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Judy,

I'm honestly not sure why some react with GI issues to contrast and some do not. Some people do get GI disturbances after contrast

I emailed the producers of Magnevist (one brand of gadolinium MRI contrast) and got no response. Very helpful!

I will let you know if I find anything out. Rachel

Thanks so much Rachel. It would be so helpful to me.

I didn't get the 'd' this time......only other issues I listed in above posts.

I think that they listed the contrast they used by name and i'll see if i can find it

so appreciate your help

good luck on the grave yard shift.

judy


Judy in Southern CA

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