Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reflux?


Gez

Recommended Posts

Gez Rookie

Many of you say that you suffered from heartburn or reflux before going gluten free. As a fellow sufferer can you tell me if the heartburn and reflux eventually went away and how long that took. Also How many of you also had a hiatal hernia and were relieved of the symptoms of heartburn. I

I've been gluten free for 2 weeks and I feel so much better that i feel like I'm in somebody else's body but I still have some reflux. Grateful for any responses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SillyBoo Newbie

I found that my heartburn and reflux disappeared in the first month or so after going gluten-free. However, that was one of the last symptoms that appeared for me before I was diagnosed. The longer-standing problems seem to take longer to resolve, in my experience. Was this a primary symptom for you?

If your reflux persists, you might consider checking out other possible food issues that could be contributing.

Good luck!

Ursa Major Collaborator

I used to have severe reflux, and I also have a hiatal hernia.

My reflux got much better when eliminating nightshade foods (potatoes, tomatoes, peppers, eggplant) a few years before figuring out that I am gluten intolerant.

It practically went away after removing gluten, eggs and rice from my diet as well (I've always known that dairy was a problem, and pretty much eliminated it nearly 30 years ago).

Two nights ago I made a gluten-free Black Forest cake. Since I used two round cakes, I cut the rounded top part off the bottom one and ate that with whipped cream while I assembled the cake.

That night I had the absolute worst acid reflux I've had in my life! I was unable to lie down to sleep until six in the morning. And even then I had to lie on several pillows so my upper body was elevated.

As I said, that was a gluten-free cake. So, just being gluten-free may not be enough for you, it certainly isn't for me.

Gez Rookie

Thanks! I started with reflux out of the blue 12 years ago and was diagnosed with a very small HH. I always felt there was more to it since I felt so awful and just couldn't eat bread because of the violent reflux.I'm waiting for my biopsy result but my Doc thinks as I had 3 negative blood tests it won't be coeliac disease but an intolerance to gluten.

I definitely feel reborn since cutting it out. I've also stopped eating dairy but I suppose my oeophagus and gut will be inflamed...I'm just wondering how much time it will take and if I should be looking at eating more simple food. :(:(

DeerGirl Apprentice

I too have reflux. I noticed improvement with my reflux within a few days. But your description sounds particularly bad.

Don't know if this helps...

  1. I elevate the head of my bed 6-8" (using extra pillows under your head will make your reflux worse as it changes your alignment and puts pressure on your stomach).
  2. Have you tried sleeping on your left side (prevents stomach contents from getting in contact with the opening of your esophagus)?
  3. Try not to eat within a few hours of going to bed. Same with alcohol.
  4. You may find that certain foods or drinks will bother you regardless of your gluten status. (e.g., common offenders are: chocolate, orange juice, alcohol, acid foods, tomatoes, garlic, raw onions...)
  5. Trying a mild diet while your body gets adjusted may not be a bad idea.
  6. Don't forget to check your medications - over the counter and prescription that you might take for reflux too.
  7. Vitamin/mineral deficiencies can make healing happen slower so your esophagus and stomach might just take more time.
  8. The HH may or may not affect your reflux, since it is a physical (structural) issue.

itchygirl Newbie
Thanks! I started with reflux out of the blue 12 years ago and was diagnosed with a very small HH.

Has the doc done the proper testing to evaluate if this is acid reflux or bile reflux? I used to get awful bile reflux before I went gluten-free

my doc was pretty amazed that it cleared up....

Open Original Shared Link

Gez Rookie

Thanks everyone. I'll check on the bile thing. It's true ...just because it's glutren free doesn't mean it won't cause reflux , as I've found.

I'm in England and we don't get told much about the results of procedures. I got my letter to return to see the consultant today stating "there was nothing seriously wrong with me" which obviously means my villi were in tact! Meanwhile I'l take all your advice and eat more simply --meat veg and rice perhaps.

many thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



babygirl1234 Rookie

i have gas reflex and it hasnt gone away i was DX with it when i was DX with celiac disease,

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      3

      New issue

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      My journey is it gluten or fiber?

    3. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

    4. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,101
    • Most Online (within 30 mins)
      7,748

    Steve Olson
    Newest Member
    Steve Olson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
    • knitty kitty
      If you haven't noticed a difference yet, bump up your Thiamax.  Add in another Thiamax with breakfast and lunch.  Increase the NeuroMag as well.  You can add in another Benfotiamine, too.   Thiamine is safe and nontoxic even in high doses.  Taking more is fine. I had to bump mine up several times when first starting.  It's a matter of finding what works for you.  Everyone is different.   Stick with it.  Some of the health improvements are very subtle and gradual.   Keep going!  You're doing great!
    • knitty kitty
      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance nor a dairy allergy.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  When the villi grow back, the villi can resume making lactase again.  I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine.  Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness.  Histamine release is what causes us to wake up in the morning.  Unfortunately, excessive histamine can cause insomnia.  Our bodies can make histamine, but foods we eat contain different amounts of histamine, too.  Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems.   I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, has been most helpful.   The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract.  After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet.  It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables.  I learned to recognize when I had consumed too much histamine from different combinations of foods.  Everyone is different and can tolerate different amounts of histamine in their food.  B Vitamins help us make enzymes that break down histamine.  Vitamin D helps regulate and calm the immune system.  Supplementing with Thiamine helps prevent mast cells from releasing histamine.  Keeping a food-mood-poo'd journal helps identify problematic foods.   I hope you will consider trying the AIP diet.
    • trents
      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.