Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lemphoma


MELINE

Recommended Posts

MELINE Enthusiast

Hello everyone

My new doctor said I must have a biopsy to exclude lemphoma....He did not want to say anything more untill we have the results of the biopsy. I can't understand...is it cancer? I am googling it but there is so much information I do not know which one is the right one..anyone with that problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

Did the doctor mean Lymphoma? Don't alarm yourself quite yet ... some doctors like to rule out some diseases first before doing other tests. Were there specific symptoms that made him want to check for that?

Doctors scared my brother doing just the same thing! (and it was NOT cancer)

MELINE Enthusiast

Is it lymphoma?? sorry my english is not very good. In greek it is called lemphoma and I thought that was the word....Anyway.....Glad your brother is ok. Doctor said we should check it because I was missdiagnosed for 12 years, I kept getting gluten and now that I've been gluten free for 4 months I still have severe intestine pain and nausea (about 5 times / month)..He said that there is a chance and that we should check it......I still do not know what lymphoma is....He said it is not something fatal and that's all....

jerseyangel Proficient

My GI also said that it's important for us to be screened for lymphoma. It's something that Celiacs need to be aware of.

Mine uses an upper GI to check, though, not an endoscopy.

MELINE Enthusiast
My GI also said that it's important for us to be screened for lymphoma. It's something that Celiacs need to be aware of.

Mine uses an upper GI to check, though, not an endoscopy.

He said gastroscopy and colonoscopy....I am a little bit confused I do not know the difference with endoscopy....anyway....ok of course I'll check it since he said so...but I am a little bit terrified...

2kids4me Contributor

gastroscopy = they look at the stomach

endocscopy = looking at the stoamch and then small intestine (the part of the gut that is right after the stomach)

colonoscopy = looking at the large intestine.

In each type of examination they use a thin flexible tube with a light and camera on the end, they can also take small tissue samples with this "tube". The name of the tube is an "endoscope"

Many endoscopic procedures are considered to be relatively painless and, at worst, associated with mild discomfort.

Endoscopy means looking inside and typically refers to looking inside the body for medical reasons using an instrument called an endoscope.

Please talk to the nurse or the doctor about your fears and have them explain it to you. It is scary when doctors wnat to do tests, and normal to be fearful. Post here as often as you need to!

It sounds like your doctor is very good - he is wanting to be thorough and that is a good thing. :)

Take care and let us know how things turn out...and how you are doing :)

Sandy

Is it lymphoma?? sorry my english is not very good. In greek it is called lemphoma and I thought that was the word..

Cool, now I know some greek!

MELINE Enthusiast
gastroscopy = they look at the stomach

endocscopy = looking at the stoamch and then small intestine (the part of the gut that is right after the stomach)

colonoscopy = looking at the large intestine.

In each type of examination they use a thin flexible tube with a light and camera on the end, they can also take small tissue samples with this "tube". The name of the tube is an "endoscope"

Many endoscopic procedures are considered to be relatively painless and, at worst, associated with mild discomfort.

Endoscopy means looking inside and typically refers to looking inside the body for medical reasons using an instrument called an endoscope.

Please talk to the nurse or the doctor about your fears and have them explain it to you. It is scary when doctors wnat to do tests, and normal to be fearful. Post here as often as you need to!

It sounds like your doctor is very good - he is wanting to be thorough and that is a good thing. :)

Take care and let us know how things turn out...and how you are doing :)

Sandy

Cool, now I know some greek!

sandy thank you so much for the support....I hope too my doctor is worth trusting him. He swears I am not going to feel pain at all, and I just called him about lymphoma and he said that ok there is a possibility but it is something we can deal with. I will let you know about the results...

And guess what.....

Yoy actually speak greek....endoscopy, colonoscopy, gastroscopy are Greek words...It is so cute you trying to explain endoscopy....endo = in, scopy= see, colon=ass...(sorry for the bad word....), gastro=stomach (it is actually ancient greek not modern greek...so you can say you speak like sokrates....much cooler he he ).....I just did not know their medical meaning....I mean ok endoscopy means looking inside, but inside WHAT thing?? Thank you for the explanations..

You are really being helpful here you know. You (may) not understand it but it is really good for me just to know that I can speak to someone about it. I haven't said anything to my boyfiend or my friends cause I don't want to upset them. Of course they will support me no matter what but I just want to protect them in case the whole thing turns out to be nothing bad (I hope that this will be the case).

Thanks again sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchygirl Newbie

I'm really glad your doctor is being careful! :)

I wish everybody's doc was as good....

Open Original Shared Link

There is a strong association between celiac disease and gastrointestinal lymphoma. Lymphoma is four to 40 times more common, and death from lymphoma is 11 to 70 times more common, in patients with celiac disease. Delay in diagnosis-and possibly a diagnosis of celiac disease in adulthood as opposed to in childhood-may be associated with poorer outcomes. Several studies suggest that adherence to a GFD reduces the risk of lymphoma in patients with celiac disease.
MELINE Enthusiast
I'm really glad your doctor is being careful! :)

I wish everybody's doc was as good....

:rolleyes:

ravenwoodglass Mentor
And guess what.....

Yoy actually speak greek....endoscopy, colonoscopy, gastroscopy are Greek words...It is so cute you trying to explain endoscopy....endo = in, scopy= see, colon=ass...(sorry for the bad word....), gastro=stomach (it is actually ancient greek not modern greek...so you can say you speak like sokrates....much cooler he he ).....I just did not know their medical meaning....I mean ok endoscopy means looking inside, but inside WHAT thing?? Thank you for the explanations..

Thanks again sandy

Your doctor sounds like a good one. You have gotten some good feedback on that.

I just want to thank you for bringing back lots of memories with this post. We had lots of fun in terminology class making new words out of the greek roots. Not wanting to be a rectodynia here, although many here have considered me one :D , and send things off topic. Just wanted to thank you for the memory jog.

MELINE Enthusiast
Your doctor sounds like a good one. You have gotten some good feedback on that.

I just want to thank you for bringing back lots of memories with this post. We had lots of fun in terminology class making new words out of the greek roots. Not wanting to be a rectodynia here, although many here have considered me one :D , and send things off topic. Just wanted to thank you for the memory jog.

:P glad I made you smile!!!

MELINE Enthusiast

so I had my gastroscopy, colonoscopy and biopsy today and thank god no lymphoma for me!!!! the other results will be ready in about 2 weeks, but doc said nothing bad (cancer..) with my intestine or my stomach. I feel better now!!

kenlove Rising Star

Its great news!!!

Now you know its ntohing like that you can relax much more I guess.

Take care

ken

so I had my gastroscopy, colonoscopy and biopsy today and thank god no lymphoma for me!!!! the other results will be ready in about 2 weeks, but doc said nothing bad (cancer..) with my intestine or my stomach. I feel better now!!
ravenwoodglass Mentor
so I had my gastroscopy, colonoscopy and biopsy today and thank god no lymphoma for me!!!! the other results will be ready in about 2 weeks, but doc said nothing bad (cancer..) with my intestine or my stomach. I feel better now!!

Wonderful news!!!!!!

2kids4me Contributor

What a relief - That is wonderful news. :)

Sandy

MELINE Enthusiast

thank you all for the support!!!

(Hi ken!!)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,213
    • Most Online (within 30 mins)
      7,748

    Sassy620
    Newest Member
    Sassy620
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
×
×
  • Create New...