Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spreadin The Word


rachael128

Recommended Posts

rachael128 Newbie

hey everybody,

so the other day I was reading a magazine, and you know how they always have the newest horrible illness or some horrific accident or in most girl magazines anyways the newest diet, well I was thinking wouldn't it be great if they ran an article on celiac disease - you know spread the word a little :D.

So what do you guys think about a little letter writing? I was thinking everyone could consider sending in a letter/email to their favorite magazine (Seventeen, People, Cosmo etc..) about how they should consider writing an article on celiac disease.

Anyways tell me what you guys think about this idea??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nikky Contributor

i think thats a wonderful idea, good on you :)

  • 1 month later...
katiemk07 Newbie

I've been really interested in this as well. I've been writing to congressmen from my home state, Georgia, about cosponsoring a bill concerning Celiac but more needs to be done that everyday people will see. I was watching the movie Sydney White, with Amanda Bynes, the other day and they mentioned having a gluten-free diet, which was pretty cool. I would love to help you get something started. I know there has been a case of Celiac Disease on the TV show House but I think it would be awesome if other shows, like Grey's Anatomy, did something too so that people could learn about these things. Also Elizabeth Hasselbeck from the View has Celiac so maybe if she could help with something on the show.

  • 2 months later...
raen Apprentice

i think "teen vouge" may be the best bet, they are the only fashion magazine that doesn't make my brain cry or groan at teh sheer ignorance of todays youth. they put articles about "issues effecting teens today" - including health concerns on a regular basis, from that staff infection outbreak to girls who want to be anorexic.

but being realistic, how many teens want to hear "hey you've been feeling bad, maybe you can fix it by giving up pizza and all your other bad eating habits your friends find cool!" theres no point in spreading the word to teens, most of them would rather cut off their own hand than be socially abnormal. my brother is one of them, he wont get tested despite showing symptoms and knowing exactly what celiac is and all of its potential consequences.

spreading the word to their parents and teachers is much more helpful - i had a vague idea of what a gluten allergy was for 3 years now, but never looked into it until my mother saw a TV special and pressured me to.

CeliacAlli Apprentice
hey everybody,

so the other day I was reading a magazine, and you know how they always have the newest horrible illness or some horrific accident or in most girl magazines anyways the newest diet, well I was thinking wouldn't it be great if they ran an article on celiac disease - you know spread the word a little :D.

So what do you guys think about a little letter writing? I was thinking everyone could consider sending in a letter/email to their favorite magazine (Seventeen, People, Cosmo etc..) about how they should consider writing an article on celiac disease.

Anyways tell me what you guys think about this idea??

We should it would be really cool...but i am kinda shy about it, so maybe we could write a letter on here and sign on behalf of celiacs??

kbtoyssni Contributor
but being realistic, how many teens want to hear "hey you've been feeling bad, maybe you can fix it by giving up pizza and all your other bad eating habits your friends find cool!" theres no point in spreading the word to teens, most of them would rather cut off their own hand than be socially abnormal. my brother is one of them, he wont get tested despite showing symptoms and knowing exactly what celiac is and all of its potential consequences.

spreading the word to their parents and teachers is much more helpful - i had a vague idea of what a gluten allergy was for 3 years now, but never looked into it until my mother saw a TV special and pressured me to.

I don't completely agree. I know teens don't want to feel different, but if celiac and alternate diets are mentioned more in magazines and shown in teen TV shows and movies, it will make eating gluten-free more socially acceptable. The more people hear about the disease, the less weird it becomes. It's also good to start mentioning celiac at a younger age so people are familiar with it so if they get sick later in life they'll know about it. I am so thankful someone had mentioned celiac to me years before I got sick so that when I did get sick I knew to try a gluten-free diet. My doctors certainly weren't going to be able to help me and without that mention, I wouldn't have been able to help myself, either.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.