Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosing Dh


buffettbride

Recommended Posts

buffettbride Enthusiast

So, we inadvertently discovered Hubby's gluten intolerance when our whole house went gluten-free last May after our daughter's diagnosis.

We noticed his GI symptoms (which we didn't realize were symptoms at the time) plus the blistery rash on his fingers cleared up when he would go without gluten for weeks at a time (the non-Celiacs eat gluten when not at home).

We figured we'd go for the DH/Celiac diagnosis via the skin test to avoid endoscopy. Well, we've contacted an allergist/asthma center, a dermatologist, and a GI docotor in our area, and none of them do the skin test. How can this be?????

A medical diagnosis is pretty important to Hubby, but we'd like to do it without an endoscopy if possible. For having such an easy time getting my daughter diagnosed, it's been nothing short of hitting a brick wall with Hubby.

Any thoughts or suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

My first thought would be to contact a local support group and ask for someone they can recommend ... either that their members see, or maybe is an advisory member to the group.

Open Original Shared Link

Good luck!

Also: https://www.celiac.com/articles/277/1/Unite...tors/Page1.html

buffettbride Enthusiast
My first thought would be to contact a local support group and ask for someone they can recommend ... either that their members see, or maybe is an advisory member to the group.

Open Original Shared Link

Good luck!

Also: https://www.celiac.com/articles/277/1/Unite...tors/Page1.html

The Denver chapter site is no longer running, but I do have a contact name so I'll try there. What a big pain!

happygirl Collaborator

Try calling local GI and/or Derm units at the hospitals and ask them if they have members who can.

rpf1007 Rookie

I went to the dermatologist when I first got the rash and he did the biopsy in the office. It's weird that the one you talked to won't do it. Usually it is the dermatologists that do skin biopsies for all kinds of things...hopefully you will find one that will. Mine did two- one of a blister and one of the skin directly beside the blister. Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      37

      Severe severe mouth pain

    2. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      37

      Severe severe mouth pain

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      37

      Severe severe mouth pain

    4. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      37

      Severe severe mouth pain

    5. - Claudia Perkinson commented on Scott Adams's article in Gluten-Free Travel
      1

      Top Celiac Disease Travel Destinations and How to Eat Gluten-Free Abroad

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,084
    • Most Online (within 30 mins)
      7,748

    BlueIcyRose
    Newest Member
    BlueIcyRose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
    • knitty kitty
      A gastroenterologist doing an endoscopy.  Biopsies would be taken to be examined microscopically.  Do your anti-rejection medications cause digestive problems?
    • Caligirl57
      Thank you Knitty Kitty, what type of doctor would diagnose Barrett’s esophagus? What is involved in the testing? Thanks!
    • knitty kitty
      @Ginger38,  Are you taking a B Complex vitamin?  Vitamin D?  Thiamine in the form TTFD or Benfotiamine? I think increasing my B Complex vitamins and taking additional Thiamine and Vitamin C and zinc helps along with the Lysine.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.