Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long For The Gluten Reaction To Show Up?

MELINE

Recommended Posts

MELINE Enthusiast
MELINE
Posted

Question......If I get glutened today is it possible that the reaction comes in 2,3 or more days?????? I had 4 slices of bread this morning and I am still feeling ok (biopsy on Friday and doc said I should have some gluten for the biopsy to be positive, yes I know that it is not going to change anything but just in case...) I am gluten sensitive, it is for sure, I just do not get it why today nothing happened.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

I never know when my reaction will come. I could run to the bathroom with severe D within twenty minutes, or it could suddenly hit me the next day or the day after.

So, just because you haven't reacted yet, you likely still will. On the other hand, some people stop having obvious reactions once they are healed. I guess you'll soon find out which category you fall in!

MELINE Enthusiast
MELINE
Posted
  • Author

thank you ursa...I guess I haven't healed yet cause 3 weeks earlier eczema started almost right away....But now nothing like this....any way

Last question: the only wierd thing I had today, 2 hours after eating bread, was a strong pain in the chest that felt like it was my heart. It was a pain I remember well from my gluten period. Is that a symptom????

Thanks again ursa...

jerseyangel Proficient
jerseyangel
Posted
Last question: the only wierd thing I had today, 2 hours after eating bread, was a strong pain in the chest that felt like it was my heart. It was a pain I remember well from my gluten period. Is that a symptom????

I get symptoms after about 2 hours--that hasn't changed in almost 3 years. The actual symptoms that I get have changed, though. The pain in your chest is most likely reflux--I had that so bad at one point that I went through cardiac testing to make sure it wasn't my heart.

It's not unusual for some people's symptoms to hit a day or two later--or in as little as a few minutes. It's so individual.

MELINE Enthusiast
MELINE
Posted
  • Author
The pain in your chest is most likely reflux--I had that so bad at one point that I went through cardiac testing to make sure it wasn't my heart.

......so it is a symptom??? I guess you say it actually is....And yes today I thought I had a heart attack.....

jerseyangel Proficient
jerseyangel
Posted
......so it is a symptom??? I guess you say it actually is....And yes today I thought I had a heart attack.....

Yes, reflux is most definately a symptom :)

fedora Enthusiast
fedora
Posted

HI,

I would like to add something about the chest pain. I had a horrible one last night, but mine is not reflux. Though I believe for many it is. I have skeletal issues. My bones go out of place all the time. I joke that I wish I was married to a chiropractor. I do believe this is glutten intolarant related. When I get my terrible chest pains, it is because my breast plate is out of place. It hurts in the middle of my chest, in my back, and pulls on my lower ribs. The only relief I get is to lay down straight on my back and push on the upper part of my breast plate. With reflux, laying down makes it worse. For me sitting up makes my pain worse.

Just wanted to add another option.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted
  • Author
HI,

I would like to add something about the chest pain. I had a horrible one last night, but mine is not reflux. Though I believe for many it is. I have skeletal issues. My bones go out of place all the time. I joke that I wish I was married to a chiropractor. I do believe this is glutten intolarant related. When I get my terrible chest pains, it is because my breast plate is out of place. It hurts in the middle of my chest, in my back, and pulls on my lower ribs. The only relief I get is to lay down straight on my back and push on the upper part of my breast plate. With reflux, laying down makes it worse. For me sitting up makes my pain worse.

Just wanted to add another option.

Really? Is that thing happening????? Sounds painful.....I hope you don't get it very often....

Options are more than welcome!!! But I guess what you describing is not my case....Just guessing...

MELINE Enthusiast
MELINE
Posted
  • Author
Yes, reflux is most definately a symptom :)

sorry sorry sorry sorry if I've tired you.....Pls can you explain me the meaning of "most definately" ??? It means "sure 110%" or it means "very possible"?

sorry....not my natal language...

jerseyangel Proficient
jerseyangel
Posted
sorry sorry sorry sorry if I've tired you.....Pls can you explain me the meaning of "most definately" ??? It means "sure 110%" or it means "very possible"?

sorry....not my natal language...

:D I don't mind at all. When I say "most definately" I mean that yes--reflux is a symptom of a gluten reaction. It's also a symptom of Celiac--many people have it before being diagnosed and it improves when on the gluten free diet.

The pain in your chest is probably from either acid from your stomach or gas that shoots upward. I tend to have gas with a gluten reaction that shoots upward--I get pain and pressure in the center of my chest and also pressure at the base of my throat.

Sorry I wasn't more clear before, if there's anything else you would like to ask, please do :)

MELINE Enthusiast
MELINE
Posted
  • Author
:D I don't mind at all. When I say "most definately" I mean that yes--reflux is a symptom of a gluten reaction. It's also a symptom of Celiac--many people have it before being diagnosed and it improves when on the gluten free diet.

The pain in your chest is probably from either acid from your stomach or gas that shoots upward. I tend to have gas with a gluten reaction that shoots upward--I get pain and pressure in the center of my chest and also pressure at the base of my throat.

Sorry I wasn't more clear before, if there's anything else you would like to ask, please do :)

!!!!! :D You are helping me a lot! Now I understand completely but thank you for making me feel free to ask if there was anything not clear!

The pain in the chest you are describing is exactly what I felt today. And that pressure at the base of the throat....Oh yes it is horrible....so that is a symptom...Good to know I pobably not gonna have my first heart attack......

MDRB Explorer
MDRB
Posted

My doctor told me that I would need to have at least one gluten filled meal every day for a month before the biopsy otherwise I could get an false negative. Even though a lot of people get stomach symptoms within minutes of ingesting gluten, it takes weeks for the damage to the villi to become bad enough to be noticeable on a biopsy. Had you been gluten free for long before this?

gfp Enthusiast
gfp
Posted
!!!!! :D You are helping me a lot! Now I understand completely but thank you for making me feel free to ask if there was anything not clear!

The pain in the chest you are describing is exactly what I felt today. And that pressure at the base of the throat....Oh yes it is horrible....so that is a symptom...Good to know I pobably not gonna have my first heart attack......

Its also quite treatable (short term).

You possibly keep coughing too (or clearing your throat). Pre-diagnosis I had this so bad I was breathing in so much stomach acid it paralysed my lungs.

Omneparazole will stop the acid (short term) and make sure your bed is elevated at the head end (A few thick books under the matress etc.)

Acid reflux can feel like a heart attack ...the good news is its not. If you can get the omneparazole then it will relieve the stomach and this will give you some rest.

MELINE Enthusiast
MELINE
Posted
  • Author
My doctor told me that I would need to have at least one gluten filled meal every day for a month before the biopsy otherwise I could get an false negative. Even though a lot of people get stomach symptoms within minutes of ingesting gluten, it takes weeks for the damage to the villi to become bad enough to be noticeable on a biopsy. Had you been gluten free for long before this?

At first I didn't know that and then I've started a topic in the forum about my biopsy and everyone kept telling me that after 4 months of gluten-free diet there is no way I could ever have a positive biopsy with just 2 days of some gluten. I told my doc and he said he believes that even with 2 days he is going to see it......I trust the forum's experience but I had some gluten today and yesterday just in case and that's all and I am going to have the biopsy not to see if I am a celiac but to find out why I keep feeling nausea and having pain. He said that even with negative biopsy he is definately sure I am a celiac because of the eczema and the other extremely severe symptoms that immediately or within few days disappear when I go gluten-free.

So you are confirming once more what everybody told me and I thank you for doing that. :)

MELINE Enthusiast
MELINE
Posted
  • Author
Its also quite treatable (short term).

You possibly keep coughing too (or clearing your throat). Pre-diagnosis I had this so bad I was breathing in so much stomach acid it paralysed my lungs.

Omneparazole will stop the acid (short term) and make sure your bed is elevated at the head end (A few thick books under the matress etc.)

Acid reflux can feel like a heart attack ...the good news is its not. If you can get the omneparazole then it will relieve the stomach and this will give you some rest.

Thanks for the treating advise..I am ok now but I will find some omneparazole to have in my pharmacy box just in case.And yes yes yes I was coughing all day long yesterday..... :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease...
    2. Jordan Carlson
      - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine...
    3. wellthatsfun
      - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free...
    4. Tanisha L
      - Tanisha L commented on Scott Adams's article in Kids and Celiac Disease
      1

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

      I am a 47yr old African American woman and did not receive a celiac diagnosis until 2yrs ago. This late diagnosis proved to be challenging to me because it was a culture shock to me. I have a cultural background of Hispanic and West Indian and a lot of our foods are heavy flour based. I was told be my dietician that unfortunately African American families...
    5. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,997
    • Most Online (within 30 mins)
      7,748
    IwannabHealthy
    Newest Member
    IwannabHealthy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Help understand results

      By trents · Posted

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.