Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk Questions


GhostLady

Recommended Posts

GhostLady Newbie

I also posted these questions under my thread "Desperately seeking opinions and advice" in the pre diagnosis section but I thought I would also post it here for those that don't want to read my long and boring post over there.

I have not yet been diagnosed with celiac. I am still going through testing, therefore I am still eating gluten. For the last few days I have been keeping a food/symptom log to take to my Dr. on Tuesday. Most of my symptoms do seem to be related to gluten but now I am thinking that milk might also be a problem.

Every time I ingest even a little bit of milk, I get really nauseous. So far it seems to only happen with milk. I can eat butter/margarine and cheese without any problems. I haven't eaten any other dairy since I started the log so I'm not sure about anything else yet.

Is it possible that I only have a problem with milk and not all dairy???

Is it also possible that it could only be something in whole milk and not all milk?

I used to only drink 2% milk and didn't notice any problems with that. (of course I wasn't keeping a log then either) I haven't tried to switch back to 2 % or skim yet so I can't say for sure but I was just wondering if there is something in just whole milk that might be causing me problems.

I'm so new to all of this so I'm still learning about what ingredients are in what. Any help would be greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HAK1031 Enthusiast

It's possible that your sensitivity just hasn't escalated to the point where you can't tolerate processed dairy. I haven't had a glass of milk in 6 months, but if I have one yogurt it's usually not the end of the world. I don't do cheese though- never liked it much, and now it makes me sick. And I can usually have dairy in baked goods, or cheddar popcorn, things like that.

Almost all celiacs are lactose intolerant to a degree at first. It may go away overtime, but I would lay off all dairy for a few months to heal after dx.

irish daveyboy Community Regular
Every time I ingest even a little bit of milk, I get really nauseous. So far it seems to only happen with milk. I can eat butter/margarine and cheese without any problems. I haven't eaten any other dairy since I started the log so I'm not sure about anything else yet.

Is it possible that I only have a problem with milk and not all dairy???

Is it also possible that it could only be something in whole milk and not all milk?

I used to only drink 2% milk and didn't notice any problems with that. (of course I wasn't keeping a log then either) I haven't tried to switch back to 2 % or skim yet so I can't say for sure but I was just wondering if there is something in just whole milk that might be causing me problems.

I'm so new to all of this so I'm still learning about what ingredients are in what. Any help would be greatly appreciated.

.

Hi 'GhostLady',

If you are 'Lactose' intolerant, as a general rule the

HIGHER a fat content the LOWER the Lactose.

.

2% milk would have more lactose than Full Milk.

Butter, cheese etc would be higher in fat and have less lactose than Milk.

.

So using a LOW Fat or NO Fat milk or milk product (while it is generally healthier)

It is HIGHER in Lactose (up to 52% in some cases of Skim milk powder)

.

Open Original Shared Link

.

Hope this helps.

.

Best Regards,

David

GhostLady Newbie

Thank you both for your replies.

HAK1031,

You are probably right. I had already planned to give up dairy for a while until I heal and then try to reintroduce it later. I am starting the gluten-free, df, diet next Saturday as soon as my testing is complete.

David,

Thank you for the info. That makes sense. The weird thing is that I seem to do better with the milk that is lower in fat. I feel worse after consuming whole milk. I would think it should be the other way around. I haven't been keeping the food log very long though so it's hard to say at this point. It might not even be the milk causing my symptoms. It could just be a left over symptom from some gluten I'd had earlier. Either way, I am going to give up gluten and dairy soon. Hopefully I will be able to go back to dairy in a few months without any problems.

Thank you both again...

ThatlldoGyp Rookie

Hi, no disrespect, but Irish is confused. Cheese has very LITTLE lactose in it. Go here: Most lactose intolerant people (including myself) can tolerate it just fine!

Open Original Shared Link

"Most of the lactose is removed from the cheese with the whey during the manufacturing process. As a result, most ripened cheeses contain about 95 percent less lactose (.4 to 1 gram per serving) than whole milk (9-12 grams per serving), and less even than Lactaid milk (3 grams per serving), a brand of fluid milk that has most of the lactose specially removed."

try taking a lactase pill. If you have celiac it is probable that you do not have the tips of your villi where lactase is produced by your own body. This is a great forum, it is my fav and I read every day for about an hour... but you do need to check up on things if you find they are not jiving with your own experience! You are able to drink lower fat milk and not whole, so I am wondering if it is milkfat without the cultures of cheese and yogurt helping your gut out? How do you do with cream or ice cream? Usually if you can do skim ok, but whole or cream makes you ill, then you want to think possible IBS because of the fat bothering you.

Cultured Butter also has minimal lactose, but I have read conflicting info about regular N. American butter and lactose content... so to avoid the whole issues, I always buy cultured butter (made from buttermilk) go here:

Open Original Shared Link

but he is right that the less rich the milk, the higher the lactose the milk! go here this is a great link, it also discusses IBS and milk issues. :

Open Original Shared Link

I am sorry to keep editing, but here is a link that I thought would be the most helpful to you:

Open Original Shared Link

Open Original Shared Link

and here:

Open Original Shared Link

  • 2 weeks later...
libbymcm Newbie

I been diagnosed with Coeliac Disease (in late 2005) after years of discomfort, and only then as a result of an emergency which required me to be treated by a specialist other than my usual one ... who had not found the problem. However, I am beginning to wonder if I have a lactose problem too - it seems to be most evident after eating cream which seems to run counter to the opinions in this list which mention that the higher the fat content, the less lactose. The symptoms are noticeable and as a devotee of creme brulee, I have been trying to ignore the possible connection. I have been having panna cotta lately too - and have noticed a trend to feeling very uncomfortable after that too - so it is beginning to be a picture. However, yoghurt does not seem to be a problem, neither does aged cheese. I have noted that brie and other soft cheeses often leave me feeling less than well. I have totally eliminated gluten from my diet ( although there some possible breaches when others are cooking - although I try to be 100% free at all times). Does anyone have any ideas on this? I have been avoiding dealing with this - but there does now seem to be a patter, Regards Libby

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,802
    • Most Online (within 30 mins)
      7,748

    BoroMike
    Newest Member
    BoroMike
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.