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I'm Worried I'm Allergic To Dairy Too!


Dolcenotte

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Dolcenotte Contributor

Today I ate all gluten free and was planning on have gluten included in my dinner for the sake of the endoscopy soon. I had 2 cups of 1% organic valley chocolate milk ( it seems like that is gluten free,correct me if i am wrong), faje yogurt with gluten free granola, some fruit, and 2 pieces of trader joe's string cheese. My stomach is busting out of my pants and hard as rock like it is on a regular day with a mixture of foods. Is this just because I have gluten in my stomach on a regular basis because I haven;t rid myself of it yet or do you think this might be a lactose intolerance? Dairy is so important to me, more so than wheat products. I've been saying, "Take away my wheat if you must, but don't dare take away my dairy!" I hope this is not the case. What do you think?


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Juliebove Rising Star

Lactose intolerance and dairy allergy are two different things. For years I was told I had lactose intolerance. I knew milk made me very sick and so did ice cream, but I thought cheese did not. Wrong! Turns out it was responsible for all the ear, nose and throat infections I had over the years.

I thought I could never do without dairy. But once I realized how much better I felt when off of it, I will never go back. I immediately lose 12 pounds once I stopped eating it and my stomach was flatter.

You can get rice based yogurt and cheese (check to make sure there is no casein), rice based ice creams, or you can have Coconut Bliss or some sorbets. There is Parma! An nut based faux cheese for pasta. Or you can use nutritional yeast as a topping.

happygirl Collaborator

If you are eating gluten and you do have Celiac, you have malabsorption which can cause a lot of problems/symptoms. So it may not necessarily be a 'certain' food, but the fact that you have untreated Celiac.

Green12 Enthusiast

It's not uncommon for celiacs to have issues with casein, the protein in dairy products, as well. Because of the damaged villi the casein is difficult to digest.

Some doctors even advise their patients after a diagnosis to avoid dairy for 6 months, and then reintroduce it on a trial basis to see if symptoms continue.

The symptoms you describe here sound pretty intense, you might want to eliminate the dairy and see if it alleviates your discomfort.

Dolcenotte Contributor

thank you for your replies. Is there a specific test that can determine lactose intolerance or casein allergies? I'm going to the gastroenterologist tomorrow afternoon. I was thinking when i eliminate gluten from my diet, I'll be able to tell if dairy bothers me if I'm still getting bloated and feeling the same after about a week to a month after i begin the diet. And from there if im having trouble I will eliminate dairy for a while and see what happens. Is this a good idea?

Juliebove Rising Star
thank you for your replies. Is there a specific test that can determine lactose intolerance or casein allergies? I'm going to the gastroenterologist tomorrow afternoon. I was thinking when i eliminate gluten from my diet, I'll be able to tell if dairy bothers me if I'm still getting bloated and feeling the same after about a week to a month after i begin the diet. And from there if im having trouble I will eliminate dairy for a while and see what happens. Is this a good idea?

You can get a RAST test for food allergies. They will test you on all the things you commonly eat. But I don't think the Dr. you are going to can do that. I could be wrong though. Mine was done through a Naturopath, but allergists can do it too.

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    • trents
      Understood. And don't beat yourself up about this. Many are in the same boat as you, having experimented with the gluten-free diet before getting formerly tested. It is a logical, common sense approach when you don't have the knowledge about how testing works or you don't have the healthcare resources to afford testing. And some experience such severe reactions to gluten that it is impossible to get through the gluten challenge in order to get tested. So, they must live with the ambiguity of not knowing for sure if they suffer from celiac disease or NCGS. But at the end of the day, the antidote is the same for both. Namely, life-ling abstinence from gluten. Recently there was an article on posted on this forum about the develop of a new testing method for diagnosing celiac disease that do not require a gluten challenge. It is still in the developmental stage and probably years away from becoming main streams even if it pans out. But there is hope at least.
    • Dema
      Ooh thanks for all the info I'll check them out, though I may not be functional after 6 slices for 6 weeks 😅
    • Dema
      alright thank your help! 🤍
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Your experience is incredibly common and frustrating for many in the celiac and gluten-sensitive community, and it's especially challenging with the added layer of healthcare disparities for people of African descent. A negative endoscopy and blood panel, while the gold standard, are not infallible and can miss cases, particularly if you weren't consuming a significant amount of gluten leading up to the tests (the "gluten challenge"). Your dramatic improvement on a gluten-free diet is the most critical piece of evidence here—your body is giving you the answer the tests could not. The symptoms you're describing now, especially the dyshidrotic eczema and blister bumps, are huge red flags for a gluten-related disorder, and your GP dismissing the possibility of dermatitis herpetiformis without a biopsy is a significant oversight. Requesting a new dermatologist and specifically asking for a skin biopsy next to an active lesion (not on it) is the absolute best next step. In the meantime, documenting your symptoms with photos and a food/symptom diary will build a powerful case for yourself. While the financial burden of a gluten-free diet is very real, your health is the priority; perhaps focusing on naturally gluten-free whole foods like rice, beans, and vegetables, rather than expensive processed substitutes, could be a more sustainable path forward until you can get a definitive opinion.
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