Anyone Had A Different Kind Of Stomach Pain, In Addition To Celiac?

[sherwing01]

Hi everyone,

I'm looking for someone who might have been in my situation and actually found answers. I was diagnosed with celiac 3 1/2 years ago and went gluten-free. About a year later, I was finally feeling well again. I felt better than I had ever felt before. I was doing great for a couple of years, feeling healthy, doing well with the diet, and just excited.

Then, this stomach pain started. Not the lower down pain that I had before and just after I was diagnosed, but higher up just under my rib cage. Pain and extreme nausea hit me at seemingly random times... could be after I eat, just when I wake up, in the evening, doesn't seem to have a pattern. I've been dealing with this for almost a year now, and they still have no answers for me. I'm tired of hearing doctors say, "Other than the celiac disease, you are a completely healthy person!" Has anyone else ever had these problems and found an answer or at least a remedy for them? I'm tired of being sick all the time, again! I got a glimpse at the healthy life, and I'd like to have it back.

[JulesH]

I had this for a few months recently. It wasn't nausea but there was a sharp, stabbing pain at random times through out the day. I had a whole battery of tests run, and they didn't find anything. After about three months of this, it just sorta went away on its own. (Two things that may have contributed to it going away: I bought a journal to keep track of everything I ate and the pains to find any sort of relationship. Right after buying that, of course the pains stopped. Second thing is that my mom bought me this royal jelly stuff and had me take it for a while. My doctor told me that I can tell her it was definitely the royal jelly, even though he doubts it. )

[ravenwoodglass]

In my case I developed that sort of pain from soy. It was kind of a surprise to be feeling ickky again so I did enterolab testing and when I cut out soy that did the trick for me. Something that would help alot before I found out what was causing it was Pepto Bismal Liquid. One dose would usually stop it really quick.

I also take Royal Jelly that Jules mentioned almost everyday. One thing it has is an antibacterial action in addition to being high b vitamins and all kinds of other good stuff. It has done wonders for my hair, appetite and energy levels too. I got keyed into it through looking into Oriental Healing Foods and Acupuncture/accupressure and decided to give it a go as it is highly recommended. Most US docs are not to familiar with nonpharmacutical methods of healing so it is not surprising that one would think it had nothing to do with someones improvement.

[Aleshia]

  sherwing01 said:

Not the lower down pain that I had before and just after I was diagnosed, but higher up just under my rib cage. Pain and extreme nausea hit me at seemingly random times... could be after I eat, just when I wake up, in the evening, doesn't seem to have a pattern. I've been dealing with this for almost a year now, and they still have no answers for me.

hi, I haven't been diagnosed with celiac yet but am in the process of testing... just found out I have gallstones (which are linked to celiac) anyway for 9 years now I have been getting pain under my rib cage at random times... dr just had an ultrasound done and gall bladder is full of stones. guess that is what the pain is from... gonna find out about the laser blasting surgery thing where they get rid of the stones but not the gallbladder. in the last few months I had noticed that chocolate would set it off... and then the last 2 major attacks were within a few hours of eating icecream. then just yesterday I read that gallbladder attacks are often caused by chocolate and dairy (esp. icecream) along with other things like coffee and fried or fatty foods. anyway, maybe you should get a dr. to look into the gallbladder thing.

hope you get it worked out soon... It was 9 years for me!

[sherwing01]

Thanks, I actually went and got a gallbladder ultrasound done this morning. I'm still waiting to hear the results from the doc, but I'm hoping that's what it is since I'm running out of possibilities. Hope you get to feeling better! I remember the time of testing for celiac, I had a total of 4 different tests. I remember the days in the hospitals and labs, but once you get to feeling better you realize it's all worth it!

  Aleshia said:

hi, I haven't been diagnosed with celiac yet but am in the process of testing... just found out I have gallstones (which are linked to celiac) anyway for 9 years now I have been getting pain under my rib cage at random times... dr just had an ultrasound done and gall bladder is full of stones. guess that is what the pain is from... gonna find out about the laser blasting surgery thing where they get rid of the stones but not the gallbladder. in the last few months I had noticed that chocolate would set it off... and then the last 2 major attacks were within a few hours of eating icecream. then just yesterday I read that gallbladder attacks are often caused by chocolate and dairy (esp. icecream) along with other things like coffee and fried or fatty foods. anyway, maybe you should get a dr. to look into the gallbladder thing.

hope you get it worked out soon... It was 9 years for me!

[AJJ]

Have you looked at foods that contain lectin rather than just gluten? I have a sensitivity to tomatoes which is a nightshade food (others include potatoe, peppers and egg plant). Nightshade foods contain lectin. Gluten also contains lectin. Nightshade foods can cause an autoimmune response in those who are sensitive.

Good luck...

[kehaulani]

  sherwing01 said:

Hi everyone,

I'm looking for someone who might have been in my situation and actually found answers. I was diagnosed with celiac 3 1/2 years ago and went gluten-free. About a year later, I was finally feeling well again. I felt better than I had ever felt before. I was doing great for a couple of years, feeling healthy, doing well with the diet, and just excited.

Then, this stomach pain started. Not the lower down pain that I had before and just after I was diagnosed, but higher up just under my rib cage. Pain and extreme nausea hit me at seemingly random times... could be after I eat, just when I wake up, in the evening, doesn't seem to have a pattern. I've been dealing with this for almost a year now, and they still have no answers for me. I'm tired of hearing doctors say, "Other than the celiac disease, you are a completely healthy person!" Has anyone else ever had these problems and found an answer or at least a remedy for them? I'm tired of being sick all the time, again! I got a glimpse at the healthy life, and I'd like to have it back.

hi. i'm new to this...i was diagnosed with celiac disease just two months ago, but i have been on a gluten free diet for three months now. it was only a few weeks after i was diagnosed that i started having a strange stomach pain. it sounds like the pain that you are experiencing...higher up, just under the rib cage. my doctor thought it might be gallstones, so i had an ultrasound done. everything came back normal. i still have not found relief from the pain. my doctor perscribed me two different medications, the first seemed to help with the pain and the second not so much...but i stopped using both of them due to the side affects (dizziness, blurred vision). i also experience random waves of nausea too. it's all very unpredictable. sorry i can't be of much help, but if you find any answers please let me know! thanks!

also, i was wondering how long it took you all to start feeling better. i'm not expecting an instant cure but like i said earlier, i've been gluten free for 3 months and have not had any relief from my symptoms. oh, i was also diagnosed with lymphocytic (microscopic) colitis about 3 years ago. i was told that lymphocytic colitis and celiac disease sometimes go hand in hand...does anyone also have lymphocytic colitis?

[sherwing01]

Hi! I also found out that my gallbladder ultrasound came back normal as well, which was rather disappointing I must say! I've decided to start a food journal, to see if it's at all food related, and try an elimination diet over the summer. I'm a grad student, so trying anything new in the last few weeks of the semester is crazy. I'll let you know if I discover anything if you do the same . What was the medication that helped with the pain but had side affects? My doc gave me NuLev (or Hyoscamine is the generic), but it never helped.

It took me a while to start feeling better, with the gluten-free and celiac related stuff. They think I was symptomatic for at least 5 years prior to diagnosis (take approx. 2 years before I started having issues with anemia), so it took me almost a year to start feeling better. It was the most frustrating year, being gluten-free and still no relief from symptoms. But it does get better! Hang in there!

  kehaulani said:

hi. i'm new to this...i was diagnosed with celiac disease just two months ago, but i have been on a gluten free diet for three months now. it was only a few weeks after i was diagnosed that i started having a strange stomach pain. it sounds like the pain that you are experiencing...higher up, just under the rib cage. my doctor thought it might be gallstones, so i had an ultrasound done. everything came back normal. i still have not found relief from the pain. my doctor perscribed me two different medications, the first seemed to help with the pain and the second not so much...but i stopped using both of them due to the side affects (dizziness, blurred vision). i also experience random waves of nausea too. it's all very unpredictable. sorry i can't be of much help, but if you find any answers please let me know! thanks!

also, i was wondering how long it took you all to start feeling better. i'm not expecting an instant cure but like i said earlier, i've been gluten free for 3 months and have not had any relief from my symptoms. oh, i was also diagnosed with lymphocytic (microscopic) colitis about 3 years ago. i was told that lymphocytic colitis and celiac disease sometimes go hand in hand...does anyone also have lymphocytic colitis?

[kehaulani]

  sherwing01 said:

Hi! I also found out that my gallbladder ultrasound came back normal as well, which was rather disappointing I must say! I've decided to start a food journal, to see if it's at all food related, and try an elimination diet over the summer. I'm a grad student, so trying anything new in the last few weeks of the semester is crazy. I'll let you know if I discover anything if you do the same . What was the medication that helped with the pain but had side affects? My doc gave me NuLev (or Hyoscamine is the generic), but it never helped.

It took me a while to start feeling better, with the gluten-free and celiac related stuff. They think I was symptomatic for at least 5 years prior to diagnosis (take approx. 2 years before I started having issues with anemia), so it took me almost a year to start feeling better. It was the most frustrating year, being gluten-free and still no relief from symptoms. But it does get better! Hang in there!

the first medication was Symax duotabs and those helped with the pain. i just felt like i wasn't ever fully awake and my eyes couldn't focus on anything. the second was hyoscyamine that i dissolved under my tongue. it didn't help and i had pretty much the same side affects as the other one. it made feel like i was going to pass out...and that's never good!

i started to have symptoms when i was 15 and i'm 23 now...so it took a while for my diagnosis. i have a feeling it's going to take at LEAST a year before i start to feel better...thanks for the encouraging words!!

[jerseyangel]

I had terrible upper abdominal pain/reflux after being gluten-free for a while and discovered it was caused by legumes.