Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strange Possibly Stupid Question

Octoberme

Recommended Posts

Octoberme Apprentice
Octoberme
Posted

Okay......say you have been having stomach problems and no one can give you answers so you yourself decide to go on a gluten free diet wihtout ever having a doctor say you need to be gluten free.

After a few months now, you are feeling better and have decided that maybe it was nto gluten / wheat that was bothering you and maybe something else that has now been " fixed ". So.....you decide to eat wheat / gluten again. Will it cause you upset in this case if you actually are NOT allergic / intolerant to it? Woudl that be a good test to find out why? Or would it stil bother you plainly because you have been without it for months even if not allergic / intolerant to it?

May be a dumb question, but I am super curious.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Your question is neither strange nor stupid. I did the same thing, due to clueless doctors. I decided to eliminate gluten on my own, and my positive response to the gluten-free diet was amazing.

I challenged myself with gluten several times, always with the same result. I now get a delayed reaction to gluten, but it is predictable that within 24 to 48 hours I will get bloating, terrible bowel cramps and diarrhea. There is no other possible answer for that but that I am obviously gluten intolerant.

I will be gluten-free for life as a result.

Octoberme Apprentice
Octoberme
Posted
  • Author

Lol, thanks for the reply. Glad that was not a silly question. Basically I am sick o fthe doctors here and the time wait and the way they just want to sluff stuff off and tell you to " deal with it ". So, i decided to do some fixin on my own. So far the gluten free diet has been fabulous for the most part, though I do think that I have some other triggers or something else that is bothering me. I am weaning through stuff however but ALOS not being impatient and letting this gluten free thing work ( I am told it can take a LONG while to feel totally better and you get side effects and symptoms for a while after going gluten free still?? )....

However I wa sjust curious as to what would happen if I decided to ....gluten myself :-P\

Thanks :-)

Ivanna44 Apprentice
Ivanna44
Posted
Okay......say you have been having stomach problems and no one can give you answers so you yourself decide to go on a gluten free diet wihtout ever having a doctor say you need to be gluten free.

After a few months now, you are feeling better and have decided that maybe it was nto gluten / wheat that was bothering you and maybe something else that has now been " fixed ". So.....you decide to eat wheat / gluten again. Will it cause you upset in this case if you actually are NOT allergic / intolerant to it? Woudl that be a good test to find out why? Or would it stil bother you plainly because you have been without it for months even if not allergic / intolerant to it?

May be a dumb question, but I am super curious.

Hi Octoberme,

I agree with Ursa, and by the way, welcome back Ursa, I hope your trip/visit went well. :) ... From what I've seen here on the forums, there are a number of people here, that seemed to believe they had it, had the symptons, and basically played dective doctor on their own to find out if it did Truly affect them. For many of them too, it seems like they have an awful time convincing doctors just to run a few tests to see if they do have it. :( Cost of testing most likely being the reason for not running those tests. Heaven forbid, you actually know your body more than doctors who just peek at it . I do feel for those that have a hard time convincing their doctors just to look in that area. :angry:

I am not quite sure whether or not being "away" from a particular food can cause "upset" if it re-introduced again. Thats something I guess you could google search. I've often wondered that in my case too.

The first time I purposely gluttened myself, had reaction in 2 hours.

The 2nd time I accidently had it, was sick in 10 mins, and was crap feeling and felt its effects for 3 days.

I probably will "glutten" myself in a month time or so. again the curiousity factor so on. Cause you wonder if the first couple of times are just "flukes" so on, maybe just some virus you got at same time so on. No one IMO really chooses to be gluten-free on purpose, because it's in Everything and you do miss it. I have a big time craving now for stuff like a Tim Horton's donut. The eating out factor is bothering me now (that freedom) . Besides feeling like an "outcast" by being gluten-free for health reasons, cause not many people take it seriously like they would a Peanut allergy. Again, its lack of understanding from others, that can't understand what it's like to be off a food you love and trying to come to terms due to health reasons, with being off it for LIFE!! I sooooooooo miss breads like Rye, Focassa and cheese buns, regular rice crispie squares.

Sorry, I'm kinda "down" today :*( with this whole gluten-free thing. I know it's for my health so on, but I feel like an "outcast." Even in my own home.

Hopefully some more people will answer your posting question, Octoberme. I am rather curious myself on that question. Whether you can in essence "make" yourself gluten intolerant by taking that food away.

Octoberme Apprentice
Octoberme
Posted
  • Author

Thanks Ivanna44!! I am very curious about this as well and whatever I will find out I will let you know.

The doctors here....well my main thing is my general doctor can only go so far when it comes to testing. And then the specialist, well it has been already two months and i have another two months or so before I get to even SEE him. And then if he is to want some sort of colonoscopy or something, it will be a wait list for THAT here. So.....whether it is gluten or leaky guy or colitis or IBS or whatever is causing these symptoms, I cannot live like this anymore. My work is about to fire me for so many days missed. My boyfriend misses his regular gluten-free and I am snappy and cranky and tired allt he time. My friends wonder where the hell I have disappeared to, and I will go DAYS without leaving my apartment. NOT healthy. Lol, so i did some looksy on my own.

But yes, so far it is working for the most part. And once i get myself to a good point for a few weeks as I think that I also have other issues other then possibly gluten so I have to figure out those first, then I am going to gluten myself anf see what happens. I will keep ya informed.

And I am sorry to hear that you are having a bad time with all this feeling like an outcast. I knwo what you mean. My boyfriend sometimes does not seem to take ot seiously as I watch him dip his ritz cracker right into the peanut butter jer and scoop it out. What the heck?? Lol, right after he does say " ooops, I should not have done that right " ...but it is kinda too late now isn't it? Or last night when he made himself hot daogs with his nice fresh buns, and I watched as he got crumbs ALL over the counter and I nicely reminded him that THIS TIME he should clean them himself as it is best for him to do it. Two hours later I went to go make myself some cardboard gluten free toast and low and behold, bread crumbs everywhere!!

Lol, then I have the nice thing of family dinner at my mom's. Lately she just has nto been doing them because she has no clue how to organize it all so that I can eat too. before I woudl eithe rjust bring my own food, or sit and watch them eat while i munches on sweet potatoes. My friends all wanna go out for appies and then party, and ALL of those are a no for me. I am too scared to eat out anywhere, not even sure what to pick, and then as for going out to the bar....well all grain vodka's do bother me, and I am sure they will not carry the potato vodka and even then....

Ahhh, it jut sucks. So I for sure feel you and I definately look at all these people eating all this CRAP and wonder - why them not me '? Why cannot I stuff three slicesof pizza, some cookies and possibly a piece of cake in me and feel GREAT still?

*sigh*, but then I rememeber thaty being healthy and feeling good is pretty fricken awesome too!!

Thanks again for your reply

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,963
    • Most Online (within 30 mins)
      7,748
    AlissaW
    Newest Member
    AlissaW
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.