Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Changes In Behavior

chasing4

Recommended Posts

chasing4 Rookie
chasing4
Posted

We just changed DD's diet two weeks ago. Even though she could be very irritable at home, she was always well behaved at school other than having a hard time with concentration. Last week, we got a note home from school saying she didn't want to line up after recess. That was the first time we got a note home from school and it really surprised us. We talked to her about it and thought it was corrected. Today, she bought home another note saying she was being silly and didn't want to listen to her teacher. Her teacher even commented on how it was "very unlike her usual behavior".

Even though she has a hard time listening at home, she never had this problem at school. I was wondering if cutting out the gluten could change behavior like this? Or if she could just be going through a phase?

But, on the plus side, she has not been as irritable as she was before.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wolfie Enthusiast
wolfie
Posted

DS's behavior improved almost immediately on the gluten-free diet. I imagine that as your DD's body is going through changes on a new diet that she could experience the behavior changes. It is a good sign that she hasn't been as irritable.

Lizz7711 Apprentice
Lizz7711
Posted

Probably some withdrawal issues which should go away soon. Or maybe she's feeling better physically, more "chipper" and so less wanting to reign herself in. How old is she?

I'm sure she'll settle down soon...i'd keep a food diary if you can though...then you can make associations in case there are any other foods causing problems.

Liz

We just changed DD's diet two weeks ago. Even though she could be very irritable at home, she was always well behaved at school other than having a hard time with concentration. Last week, we got a note home from school saying she didn't want to line up after recess. That was the first time we got a note home from school and it really surprised us. We talked to her about it and thought it was corrected. Today, she bought home another note saying she was being silly and didn't want to listen to her teacher. Her teacher even commented on how it was "very unlike her usual behavior".

Even though she has a hard time listening at home, she never had this problem at school. I was wondering if cutting out the gluten could change behavior like this? Or if she could just be going through a phase?

But, on the plus side, she has not been as irritable as she was before.

chasing4 Rookie
chasing4
Posted
  • Author
Probably some withdrawal issues which should go away soon. Or maybe she's feeling better physically, more "chipper" and so less wanting to reign herself in. How old is she?

I'm sure she'll settle down soon...i'd keep a food diary if you can though...then you can make associations in case there are any other foods causing problems.

Liz

Ooh, now that you say that, maybe it is because she's feeling better. She is so much happier lately than she was a few weeks ago when her stomach was hurting her all the time. She will be 6 next month.

Thanks for the idea on the food diary. I'll get that started right away.

gfpaperdoll Rookie
gfpaperdoll
Posted

I second the opinon re feeling better - that was probably the first time that she had ever felt like being at recess - instead of sitting at her desk!!!!

You might talk to her about how she is feeling, she might not be aware of it on a conscious level. You might also need to explain that she should feel happy & bubbly & have lots of energy all the time - & that she will progressively get better...

chasing4 Rookie
chasing4
Posted
  • Author

Thank you all so much! It's a wonderful feeling to know that she's feeling better and actually seeing how much more happy she is. :)

chasing4 Rookie
chasing4
Posted
  • Author

I do have to admit that I let her have a treat today. :unsure: One of her friends at school had a birthday, so I let her have a cupcake for a school snack. Oh my! What a difference today was. She came home irritable and when I asked her to work on her homework, all she wanted to say was "I can't do it" or "I don't know how to". I did eventually get her to do her homework, but it took a lot of talking to her to do it. Thankfully, she hasn't complained about a stomach ache. It's amazing what a little cupcake can do.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chasing4 Rookie
chasing4
Posted
  • Author

Well, today she was back to being happy and easy to deal with. YAY!

And I'm so proud of her! Somedays I let her have hot lunch at school, but I work with the school on what she can have and what she can't. For dessert today, they were supposed to have strawberry shortcake, but I told the school that she can only have the strawberries. Of course, the school did what I asked, but one of her friends noticed she didn't have any cake and asked her if she wanted some of theirs. She turned them down and said she is not supposed to have cake. I am so proud! :D

Lizz7711 Apprentice
Lizz7711
Posted

That's great that she's taking ownership of what she can and can't eat :)

I know you just started the diet so you're in transition...but if you really want to go gluten free she can't have school lunches at all. Wheat is in so many ingredients, sauces etc, that there is no way to avoid it even if she sticks to meat and veggies...and the cross contamination issue is huge. It was a major stress to me when I realized I had to make her lunches everyday...but now it's been 4 months and i'm used to it and it really isn't so bad.

good luck!

Liz

Well, today she was back to being happy and easy to deal with. YAY!

And I'm so proud of her! Somedays I let her have hot lunch at school, but I work with the school on what she can have and what she can't. For dessert today, they were supposed to have strawberry shortcake, but I told the school that she can only have the strawberries. Of course, the school did what I asked, but one of her friends noticed she didn't have any cake and asked her if she wanted some of theirs. She turned them down and said she is not supposed to have cake. I am so proud! :D

chasing4 Rookie
chasing4
Posted
  • Author

Oh, I never even thought about the cross contamination and I keep forgetting about the hidden gluten in products. Thank you so much for letting me know.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.