Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Sources Of Gluten (or Wheat)?


Jujbe

Recommended Posts

Jujbe Rookie

Bit of background first -

I've just been recently diagnosed with gluten sensitivity (intolerance? don't know if there's a difference).I found out because I developed a VERY itchy rash (found out it was DH) after eating more wheat & seaweed than usual. Never clued in I might be gluten intolerant before! I'm up on the sciences so I'm pretty aware of what different chemical names listed on food labels are. But it's almost impossible to know what all of them are unless one's an organic chemist working in that filed. This statement was on a celiac site:

Hidden sources of gluten include additives such as modified food starch, preservatives, and stabilizers.

Well that's fine but which ones? Modified food starch can come from many diff plants, not just wheat. And what are the chemical names of these preservatives & stabilizers? How am I to know which are which?

Basically, the food I eat is what I prepare at home from basic ingredients like vegetables, fruit, meat, rice & non-gluten flours. I use spices & herbs but most of them are whole or in the form of dried or fresh leaves. Right now, till I find out, I'm avoiding any powdered spices - just in case wheat has been added. Not eating out at all, not even a bite or swallow. I'm not using soy sauce either till I find a gluten-free one. Anything suspect, I'm avoiding to be safe since the DH was the worse thing I've ever experienced in my life & I don't want it back.

I was really surprised at how fast my loose stools & gas problems cleared up but even more surprised when I found the nasal stuffiness & thicker mucus that came on each evening disappeared too. I could breathe so freely!! But I've noticed that sometimes I get stuffed up more & at those times, I would also get gassier again. Not nearly like before but it makes me think I might be getting some gluten somehow, somewhere on those days or just previous. I take some meds but I checked out what the inert ingredients are & they seem okay. Since some days I have no gas or stuffiness, it's logical they're not the cause for me. Any supplements I take are all labelled gluten-free. I've been VERY vigilant in cooking to make sure I haven't cross-contaminated my foods with gluten containing products too. I worked in a lab so know how to be careful about this.

Does anyone know how I might track down where hidden gluten is when it's not specifically called 'gluten', 'wheat' or 'malt' etc? I'm hardly suffering but would like to eliminate ALL gluten. Any suggestions, help, or directions are gratefully appreciated in advance. Thank you. This forum is a god-send in info & experiences!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Open Original Shared Link is a list of companies that have clearly stated their policy to disclose any gluten source. If you don't see wheat, rye, barley, malt, or oats, then it isn't hidden.

Wheat, by FDA food labeling law, is required to be listed as an 8 main allergen.

If the spice you are buying is a single spice, (i.e., thyme, basil, oregano, etc.), then it is required by law to only have that one ingredient in it. If it has more than one ingredient, there must be an ingredient listed. The allergen labeling law applies.

FYI: Spices---McCormick is one of the companies that won't hide gluten in their products. Many, many of their products are used with great success by Celiacs.

Jujbe Rookie
Open Original Shared Link is a list of companies that have clearly stated their policy to disclose any gluten source. If you don't see wheat, rye, barley, malt, or oats, then it isn't hidden.

I live in Canada & most of the companies listed there aren't familiar to me but then, I really don't buy ready-made foods much so many just not know if they're in Canada or not. And those companies that make foods both in Canada & the US can have diff ingredients. I know that from having to read labels for cat food. Same product but slightly different formulation between Canadian & US brands. So I'm still confused. :(

Wheat, by FDA food labeling law, is required to be listed as an 8 main allergen.

Hmm, wonder if the same is true for Canadian food laws? Looks like I've got my work cut out tracking down specific info for north of the border.

If the spice you are buying is a single spice, (i.e., thyme, basil, oregano, etc.), then it is required by law to only have that one ingredient in it. If it has more than one ingredient, there must be an ingredient listed. The allergen labeling law applies.

FYI: Spices---McCormick is one of the companies that won't hide gluten in their products. Many, many of their products are used with great success by Celiacs.

I don't buy 'bottled' spices & herbs but the bulk ones since they seem fresher & are MUCH cheaper. Looks like I'll be talking with store managers & asking if they have a product labelling for these & where they buy it from. Damn... I was hoping this would be a little easier as learning to bake gluten-free is tough enough in itself.

happygirl Collaborator

I'm sorry...didn't realize you were Canadian. We do have numerous Canadians on this board though. Member "psawyer" is Canadian and knows everything....if he doesn't see this thread, you could PM him and ask.

Jujbe Rookie
I'm sorry...didn't realize you were Canadian. We do have numerous Canadians on this board though. Member "psawyer" is Canadian and knows everything....if he doesn't see this thread, you could PM him and ask.

I saw his post about VH soy sauce in Canada & thought "Aha! A fellow Canadian" & already have sent him a PM asking. :D Thanks!

psawyer Proficient

Hi, I got the PM, but since the topic is of general interest to all Canadians, I am going to reply here.

The list that Laura posted is still useful to us. Those companies that are listed as having a clear gluten disclosure policy, and that also operate in Canada, have the same policy here.

This does not mean that the list of their products that are gluten-free is the same in both countries.

Two examples: Campbell's Chicken with Rice Condensed Soup is gluten-free in Canada, but not in the US. Lea & Perrins Worcestershire sauce is gluten-free in the US, but not in Canada.

Here is my own list of companies/brands that have a friendly label policy. Read the ingredient list carefully, looking for any of the words wheat, rye, barley or oats. If you don't see them, they are not hidden.

Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen Daz, Hellman's, Hormel, Hungry Jack, Jiffy, Knorr, Kozy Shack, Kraft, Lawry's, Libby's, Lipton, Martha White, Maxwell House, McCormick, Nabisco, Nestle, Old El Paso, Ortega, Pillsbury, Popsicle, Post, Progresso, Ragu, Russell Stover, Seneca Foods, Skippy, Smucker, Stokely's, Sunny Delight, T Marzetti, Tyson, Unilever, Wishbone, Yoplait, Zatarain's.

Not every brand is listed. For example, VH is not listed. VH operate only Canada, but are owned by ConAgra. Most but not all of their sauces are gluten-free.

Canadian label laws are different. There is no law requiring wheat to be disclosed, although it is rarely hidden.

If you don't already have it, you should obtain from the Open Original Shared Link their publication Acceptability of Foods and Food Ingredients for the Gluten-Free Diet Pocket Dictionary. It will help you to effectively read labels. It will identify an ingredient as "allowed," "not allowed," or "check." "Check" means it may be a hidden source of gluten, but if the manufacturer is listed above you know it won't be. Otherwise call the manufacturer, or choose something else.

In Canada, maltodextrin and caramel color are safe (they are safe in the US too).

home-based-mom Contributor
I don't buy 'bottled' spices & herbs but the bulk ones since they seem fresher & are MUCH cheaper.

Buying bulk is terribly risky. You don't know what's in the air, where it was ground or how it got to be on display, what was in the container before whatever you are buying was put into it, and worst of all, scoops can play "musical containers" in the hands of ignorant shoppers.

Better to buy spices in containers that were sealed in a controlled environment. ;)

You can find an extensive list of unsafe ingredients here:

https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.