Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Gluten-- What Now?

CRB

By CRB
in Coping with Celiac Disease

Recommended Posts

CRB Rookie
CRB
Posted

Hi, it's my hubby that's celiac, not me, but since I do the cooking and doctoring and posting... when he accidentally gets gluten (he never does intentionally as it just isn't worth it!) it seems it takes him about 4-7 days to get rid of the gassiness, mental fog, and stomach pain. I keep thinking there must be a way to shorten the days or lessen the symptoms. Anybody do anything that helps you get through those days besides grinning and bearing it?!

Thanks!

Cynth

hubby gluten-free since dec 3.07

soy--free since feb 08

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest j_mommy
Guest j_mommy
Posted

It's pretty much grin and bear it, which is why you have to be VERY careful not to get glutened or CC'd!

I have taken probiotics and that has helped....a little!

KimmyJ Rookie
KimmyJ
Posted

Hmmm...honestly, and this i probably not the healthiest strategy, but I get really severe nausea when I get glutened, and I basically survive on ginger-ale. I've heard some people on the forum say they use caffeine to get through the overwhelming fatigue. I guess it depends on what he's comfortable doing, and which symptoms are the most troublesome for him. A s far as shortening the duration of the symptoms, I don't know of anything that will do that. But if someone does - I would love to know about it!

1965kid Apprentice
1965kid
Posted

Water Fasting. Nothing but water till the pain and symptoms goes away. Fasting detoxifies the body.

Im at 41 hours without food right now.

After the fast, nothing but raw fruits and veggies for a couple of days.

YoloGx Rookie
YoloGx
Posted

I just found a strategy that helped me. I have reacted very badly to getting CC'd earlier this year and got quite ill from the stress of it not to speak of shooting D etc..

I just got glutened seriously the other night when the restaurant put in soy sauce in a dish when I had asked them not to. It was at a restaraunt that is used to dealing with folks that have celiac so I wastn' as vigilant as I might have been. I ate about a quarter of my portion before I asked what was in it since the sauce was black and tasted like soy sauce. They came back all concerned as well they might. However I didn't freak. I got my bottle of pancreatin out and had two caps. I also asked for some fresh papaya (they ran to the store and bought me some!!) and had a little pineapple to help stave off the effects.

Afterwards my boyfriend and I went over to a natural foods store and I found a new product that really save me from getting D I believe. It called Gluten-Zyme by Country Life. They had another brand there too however this one looked a little more powerful judging from the contents list. I took a double dose since I didn't want to fool around and then another dose that night and two the next day to make certain. I did get achy burning calves and feet which made it hard to get to sleep at first but no D!

I highly suggest others try this remedy. Short of eating fresh papaya and pineapple, have your bromelain/papaya caps at ready and the Gluten-Zyme when you go out or are kissed by someone who may have eaten wheat etc. etc.!!

I think too the fact I use so much nattokinase has helped my intestines heal quite a lot these last two months. Serrapeptidase or serrapeptase will work too if you can't tolerate any soy. They are all fibronylitic enzymes that get rid of excess scar tissue in your body wherever it exists. Its great too if you have clogged arteries since it will unclog them. They are even more effective if taken with general enzymes including the bromelian/papain on an empty stomach. Just don't take with coumadin...

Yay!! I feel like now I can be a more normal person again...I still need to watch out for gluten but its not so life and death as long as I am prepared which, with these enzymes, now is so much more possible!

Though meanwhile I totally agree about drinking lots of water and eating green vegetables. I would also add that taking detox teas helps like dandelion or milk thistle also helps. Plus detoxing by sauna and/or exercise helps too as does clay packs on the hands and feet. It probably helped me that I was wedging clay last night when I come to think of it!! It did pull me out of a funk in several ways no doubt including detoxing.

Bea

cyberprof Enthusiast
cyberprof
Posted

I swear by hot peppermint and/or spearmint tea. Very soothing and gets rid of my nausea. Or lemon balm tea if you can find it. Mint is an ancient remedy for upset stomach.

CRB Rookie
CRB
Posted
  • Author

Thanks so all of you! I'm in the Philippines, so I don't get back to the boards til your night! Anyway, I think we'll try it all.

Ginger ale sounds good... you don't have trouble with carbonated drinks? He hasn't really had any, thinking it might add to intestinal gassiness?

My hubby also has severe allergy to soy... just wondering if the pancreatin he usually takes might have soy in it! going for some hot tea now. That's the same as what you're talking about, right, Bea? digestive enzymes? Got some exercise. Going to take it easy. Drinking lots... pretty good at that already:)!

One up side is that here in the Philippines fresh papaya is easy to come by and cheap! So is pineapple.

1965 kid-- how long does it usually take for the symptoms to pass when you fast? What about fresh juice fasting? Blood sugar issues, so just water isn't going to happen at our house:)

He does acidophilus, but not mega doses. You take extra when you get gluten, or just always take it and it reduces your issues?

Thanks for your help and if anybody else has something to add, love to hear it still!

Cynth

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


YoloGx Rookie
YoloGx
Posted
Thanks so all of you! I'm in the Philippines, so I don't get back to the boards til your night! Anyway, I think we'll try it all.

Ginger ale sounds good... you don't have trouble with carbonated drinks? He hasn't really had any, thinking it might add to intestinal gassiness?

My hubby also has severe allergy to soy... just wondering if the pancreatin he usually takes might have soy in it! going for some hot tea now. That's the same as what you're talking about, right, Bea? digestive enzymes? Got some exercise. Going to take it easy. Drinking lots... pretty good at that already:)!

One up side is that here in the Philippines fresh papaya is easy to come by and cheap! So is pineapple.

1965 kid-- how long does it usually take for the symptoms to pass when you fast? What about fresh juice fasting? Blood sugar issues, so just water isn't going to happen at our house:)

He does acidophilus, but not mega doses. You take extra when you get gluten, or just always take it and it reduces your issues?

Thanks for your help and if anybody else has something to add, love to hear it still!

Cynth

Hi CRB--the pancreatin I get is from NOW--it doesn't have any soy in it. Its gluten etc. free. The important active ingredient is Pancreatin. Gluten-Zyme is different although there are a few of the same things in it--namely amylase and protease. However I think the extra important ingredients are strong acid protease, glucoamylase and peptidase activity.

Personally I would add the Gluten-Zyme and Pancreatin when he is first exposed to gluten--the quicker he gets it the better. In fact I would just take them whenever you go out to eat. Just because of possible CC if you get my drift.

The papaya and pineapple wouldn't hurt either as an after dinner treat as well as digestive aid. Green papaya has more enzymes--though the ripe papaya is a lot tastier of course.

After he has been glutened still take the enzymes but also consider the various detox regimes. Dandelion or milk thistle do really help. Cleavers is another herb that is excellent and easy to use. Its a fantastic lymphatic cleanse. Take with lots of water and the above dandelion or milk thistle to give it extra support so it won't be so hard on the liver on the way out.

Marshmallow root and/or slippery elm caps will also help soothe and heal the lining of the irritated intestines.

About food--it is helpful to eat more according to the so called cave man diet--i.e., no or few grains. If grains the more ancient they are and less treated the better (i.e., no bleached flours). Its better to eat roots and squashes for carbs. He should only eat cooked vegetables, no raw ones for now. Stay away from spicy food for now. Some cooked meat should be OK. However no fried anything. If you have to use a pan to cook with add water and cover so it steams rather than fries. And just don't have it on really hot heat.

For myself I usually have to also eat cooked fruit (except for the papaya) but I think maybe I am a special case that way... Also probably no nuts for now either. Just easy, basic food to digest.

By the way, soaking nuts and/or seeds overnight is a better way to have them when he is ready to handle eating them. They have more enzymes and are easier to digest since the growth inhibitor is then removed by the soaking and sprouting.

Please let us all know if some of these remedies help or not!

Bea

gabby Enthusiast
gabby
Posted

There's not a lot you can do to shorten the duration of the symptoms, or make it much better. I liken it to having the flu. Once you've got it, it has to run its natural course...which is usually several days. You can make your husband a bit more comfortable...make his favorite soup, drink liquids, take advil, etc. But as for the tiredness, intestinal upset, nagging headache, achiness, mind fog, and purple circles under his eyes ...... you just need time. A heating pad, nice blanket, lots of rest.

This inability to make things better is what drives all of us with celiac disease to hunt down and root out all sources of gluten in our lives. It is what gives us the courage to call up manufacturer customer service departments, and pepper the butcher/waiter/chef/friendly neighbor/family member-who-baked-us-something-they-insist-is-gluten-free. with all sorts of questions about what pot they used, did they use a wooden spoon, were they cutting bread on the same board, etc!

Hope this helps.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748
    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.