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2 Months Of Pain In Right Abdomen, And Right Side And Lower Right Back


withnail69

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withnail69 Rookie

I hope you guys are still reading this.... Hopefully you can help. So far I have been suspected of having kidney stones and gall bladder problems. I have had an ultrasound that has showed up nothing and I am booked in to have a c.t scan.For two months I have had a recurring pain. I'll describe it in detail and then if any of you can confirm it sounds like celiac's I would be very grateful. Over two months ago a pain started just to the right of my belly button (left if you were looking at me) it would radiate to the sides and eventually to the lower back (any pain has always been on the right side) Right now it is in the area where the pain seems to be predominately. On my right side above my hip and under my ribs. Sometimes this pain can go for days and then come back again. So far the doctors are stumped. I should add that last year I had a couple of what seemed to be bad food allergic reactions this prompted me to send my blood off to be tested. It said my worse reactions were to wheat and gluten but it said it couldn't confirm celiacs. The nutricianist said if I carried on with my same diet symptoms would worsen but I didn't listen ..... Any advice would be gratefully recieved I spend a lot of nights lying on my right side cause it hurts a lot. The pain never feels too far beneath the surface of the skin it feels like someone with hot fingers is pinching if that makes any sense at all


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Ursa Major Collaborator

Has appendicitis been ruled out?

If you tested allergic to wheat and gluten, you absolutely need to eliminate those! If your pain is as bad as you describe it, why haven't you tried that already?

There is no easy fix for food intolerances, other than to stop eating those foods. Start the gluten-free diet today, and hopefully your pain will subside soon (just don't expect it to be instant, even though it may happen).

Sometimes it takes a while to get better. Give it a good try (a few months rather than a few days) to give the gluten-free diet a chance to make a difference.

RiceGuy Collaborator

You've gotten good advice, and all I would add is that you may want to try a B12 supplement. It doesn't matter if the blood levels check out fine. Your doctor may be able to give you an injection to start you off, but might refuse to do so without confirming with blood tests (which apparently aren't so accurate when it comes to B12 deficiency). If you decide to try it, be sure to get a sublingual methylcobalamin type (and gluten-free of course).

My own experience with pain on my sides seemed different, so I don't know if the magnesium which worked for me would work for you. I'm guessing not.

But as was said, the appendix thing might be one to check out, though the pains are expected to be lower if I'm not mistaken. If your doctor has ruled that out, perhaps the position of the pain is why.

Since you haven't mentioned going gluten-free, I can only guess you haven't yet done so, in which case that would obviously be the first thing to do, and immediately too.

withnail69 Rookie

perhaps I can explain because I am sensing a bit of hostility here. I wasn't 100% convinced by the company I used for the intolerance testing (they are called Yorktest and they are very expensive)(As well as wheat and gluten) carrots came up. I have raised IgG antibodies to gluten (gliadin) and wheat. I scored 2 out of a possible 5 on both (5 being the strongest possible reaction). My doctor said that it was practically impossible to be intolerant of carrots. I have had a certain persistant indigestion over the years after yeasty bread etc but I never in my 34 years had symptoms like these last few months. I guess I just couldn't believe that I was suddenly getting reactions to foods that I have eaten for over 30 years.... That is why I haven't eliminated gluten as yet. Sorry for the lack of knowledge on my part but is there a list anywhere online of gluten free foods. I tried gluten free muesli and it was like plastic.

I can say appendicitus hasn't been ruled out but it isn't being considered as my symptoms don't fit. I have no pain in the area of my appendix. More in the area of liver and kidney and gull bladder and rarely my groin. Thanks for listening

LuvMoosic4life Collaborator

I actually get those same pains. I went to the hospital a few years back for severe pain in my lower right abdomen right where the appendix would be. I had a slight temp and something was wacky with my blood tests showing that I had an infection of some sort. They checked me for appendicitis, but the cat scan was dark from my mid abdomen down, even after a couple hours of drinking that aweful white liquid they make you drink for the cat scan, it all sat in my stomach and never made its way down that far. They ended up subbmitting me to the hospital and were going to do surgery on me, but the next day the pain went away. They couldnt figure out what caused it, the only thing I kept thinking of was the wheat nuts I ate at my grandmas that day a few hours before I went to the ER. I remember getting gas after I ate them and tried to go to the bathroom but nothing would come out, not even gas. They never got the connection in the ER and said I may have just had bad gas or a kidney stone??? This was way before I knew of gluten intolerance. All I know is it hurt like hell when the doctors kept pressing and releasing the area that hurt. I stil got the pain off and on years after that happened, but on a gluten free diet I have no problems.....

LuvMoosic4life Collaborator

I forgot to mention the pain was also just below my rib cage like you described, I noticed whenever I drank beer I got the same exact pain, it would start up high and then move down....

Ursa Major Collaborator

It sure sounds like you have celiac disease. You might also (in addition) have candidiasis, as indicated by reactions to yeasty bread.

Actually, you may develop an intolerance/allergy to just about anything, including carrots.

Have your liver and kidneys been checked out? Because it might be your right kidney, and if the pain is that bad and the kidney is the cause, something better be done soon! You don't fool with kidney problems, as you don't want to lose a kidney.

Intolerances can come on suddenly, when the so-called 'bucket' flows over. Also, for a celiac disease gene to express itself and for celiac disease to actually suddenly show up, you need a trigger. For some just being born may be enough, as it is traumatic, that is why some babies have celiac disease right from the start.

Others have celiac disease triggered by an accident, an illness, lots of stress, pregnancy or giving birth, death of a loved one, divorce..... really anything that causes stress.

Before you suddenly got sick from foods, did you have anything stressful happening?

So, as I said in my previous answer, it is imperative that you eliminate gluten from your diet. And it is very possible that your pain will actually go away on the gluten-free diet. If not, then you have to keep looking for the cause of that particular problem, as it could be serious.

Still, even if it is a kidney, it could have been caused by eating a food that is harmful to you, in this case likely gluten.


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withnail69 Rookie
I forgot to mention the pain was also just below my rib cage like you described, I noticed whenever I drank beer I got the same exact pain, it would start up high and then move down....

Thank you so much MSAU22 thats extremely helpful. Did you have the pain over a period of time. Were you since diagnosed with a gluten intolerance? Did you find the pain moving around (Mine can be on my side or like now in my groin and lower back (right hand side)

withnail69 Rookie
It sure sounds like you have celiac disease. You might also (in addition) have candidiasis, as indicated by reactions to yeasty bread.

Actually, you may develop an intolerance/allergy to just about anything, including carrots.

Have your liver and kidneys been checked out? Because it might be your right kidney, and if the pain is that bad and the kidney is the cause, something better be done soon! You don't fool with kidney problems, as you don't want to lose a kidney.

Intolerances can come on suddenly, when the so-called 'bucket' flows over. Also, for a celiac disease gene to express itself and for celiac disease to actually suddenly show up, you need a trigger. For some just being born may be enough, as it is traumatic, that is why some babies have celiac disease right from the start.

Others have celiac disease triggered by an accident, an illness, lots of stress, pregnancy or giving birth, death of a loved one, divorce..... really anything that causes stress.

Before you suddenly got sick from foods, did you have anything stressful happening?

So, as I said in my previous answer, it is imperative that you eliminate gluten from your diet. And it is very possible that your pain will actually go away on the gluten-free diet. If not, then you have to keep looking for the cause of that particular problem, as it could be serious.

Still, even if it is a kidney, it could have been caused by eating a food that is harmful to you, in this case likely gluten.

Thank you for your kind reply Ursa. Sorry for some reason I thought I had mentioned I have recently had an ultrasound (as It was suggested I had kidney stones) The ultrasound turned up nothing and I have since been put forward for a c.t scan but I haven't a confirmed date yet. I don't remember anything too stressful. I think its the undiagnosed symptoms that stress me out more than anything. Last year I had a couple of nasty episodes where I think the "bucket" must have filled up. I had a tingling tongue (it felt burnt as well) sticky eyes and a numb sensation around my left cheekbones. It was these events that lead me to having the blood tested for intolerances

LuvMoosic4life Collaborator
Thank you so much MSAU22 thats extremely helpful. Did you have the pain over a period of time. Were you since diagnosed with a gluten intolerance? Did you find the pain moving around (Mine can be on my side or like now in my groin and lower back (right hand side)

hey, no prob. Yes the pain does move around. Generally I get it on my lower right hand side and sometmes into my goin and back like you mentioned. Also once and a while I get a similar pain on my left side just below my stomach, the pain tends to move over to the right side after a few hours and then pocket into my lower right side. Like I mentioned in the comment above, the one thing that really bothers me is beer (but its not the only thing) , I will wake up the next day after having a couple beers the night before- after a few hours of being awake the pain comes on and its so bad at times I get naucious and have to lay down on my stomach. The pain that I get on my right side however, is the pain that will last the longest. Sometimes it will last for days. It comes on slowly, gets really bad and then fades away, but is still constantly there for a few days or more and ver uncomfortable. There is a history of kidney stones in my family, but I never have any of the other symptoms of kidney stones when I get the pain. I have been exerimenting with going on and off gluten and I notice I only get the pain on gluten. I have not been diagnosed with anything yet as I am still trying to find a doctor :( I'm hoping to get in in the next month or so b/c this is driving me insane ( I also have many other symptoms on gluten)

hope this helps- I'm actually glad you posted this b/c I'v been wondering if anyone else has had this! it sucks!!!!

LuvMoosic4life Collaborator
I had a tingling tongue (it felt burnt as well) sticky eyes and a numb sensation around my left cheekbones. It was these events that lead me to having the blood tested for intolerances

god, I just saw this now as well, I had a burning tounge along with mouth soars a few months back!!!! they gave me no answer exept for a slightly low hemoglobin, it was bordering 11/12, but I'm normally like that! thats when I found out about gluten intolerance.

ok, I'm done wrtiting now-lol

withnail69 Rookie
god, I just saw this now as well, I had a burning tounge along with mouth soars a few months back!!!! they gave me no answer exept for a slightly low hemoglobin, it was bordering 11/12, but I'm normally like that! thats when I found out about gluten intolerance.

ok, I'm done wrtiting now-lol

yes you sound in a similar boat to me. The one thing I can advise on is DON'T TRUST MOST GP'S. I've seen three and not one has even touched on the possibilities of it being gluten intolerance. One even said it wasn't in the right place to be digestion related

kayavara Rookie
I hope you guys are still reading this.... Hopefully you can help. So far I have been suspected of having kidney stones and gall bladder problems. I have had an ultrasound that has showed up nothing and I am booked in to have a c.t scan.For two months I have had a recurring pain. I'll describe it in detail and then if any of you can confirm it sounds like celiac's I would be very grateful. Over two months ago a pain started just to the right of my belly button (left if you were looking at me) it would radiate to the sides and eventually to the lower back (any pain has always been on the right side) Right now it is in the area where the pain seems to be predominately. On my right side above my hip and under my ribs. Sometimes this pain can go for days and then come back again. So far the doctors are stumped. I should add that last year I had a couple of what seemed to be bad food allergic reactions this prompted me to send my blood off to be tested. It said my worse reactions were to wheat and gluten but it said it couldn't confirm celiacs. The nutricianist said if I carried on with my same diet symptoms would worsen but I didn't listen ..... Any advice would be gratefully recieved I spend a lot of nights lying on my right side cause it hurts a lot. The pain never feels too far beneath the surface of the skin it feels like someone with hot fingers is pinching if that makes any sense at all

I had pain in the right side of my stomach just under my rib cage for months before I was dx with gluten intolarance.I was tested for everything in the book.I had abdominal scans ..where they found gallbladder stones....not causing problems...just lying there they said.I had a HIDA scan to see if any of the stones were stuck in the bile ducts.I had everything the obgyn could order for any "female" problems there might be.My appendix was removed at age 12....so that was not an issue.I can not begin to count the blood tests I had for this count and that count.I saw a urologist after no one else could find anything.Of course he found nothing as well.One thing that all of the doctors did tell me was there was a lot of inflammation in my body.At this point,I felt like I was going crazy.My family was very positive and supportive even though I was becoming very depressed.I doubted myself sometimes ...as the pain would come and go.When my primary doctor ordered the endoscopy,I almost said no...not another test.I have put out so much money for copays and deductibles this year.My family convinced me to go ahead and do the test....and that is when I was dx.

withnail69 Rookie
I had pain in the right side of my stomach just under my rib cage for months before I was dx with gluten intolarance.I was tested for everything in the book.I had abdominal scans ..where they found gallbladder stones....not causing problems...just lying there they said.I had a HIDA scan to see if any of the stones were stuck in the bile ducts.I had everything the obgyn could order for any "female" problems there might be.My appendix was removed at age 12....so that was not an issue.I can not begin to count the blood tests I had for this count and that count.I saw a urologist after no one else could find anything.Of course he found nothing as well.One thing that all of the doctors did tell me was there was a lot of inflammation in my body.At this point,I felt like I was going crazy.My family was very positive and supportive even though I was becoming very depressed.I doubted myself sometimes ...as the pain would come and go.When my primary doctor ordered the endoscopy,I almost said no...not another test.I have put out so much money for copays and deductibles this year.My family convinced me to go ahead and do the test....and that is when I was dx.

thats so bizarre. Gp's probably follow the same route when faced with wheat/gluten intolerance cause I ended up with a urologist as well. It's a lot worse for you poor guys over the river as you don't have a public health care system. If its any consolation I rarely trust mine.

Aleshia Contributor
I hope you guys are still reading this.... Hopefully you can help. So far I have been suspected of having kidney stones and gall bladder problems. I have had an ultrasound that has showed up nothing and I am booked in to have a c.t scan.For two months I have had a recurring pain. I'll describe it in detail and then if any of you can confirm it sounds like celiac's I would be very grateful. Over two months ago a pain started just to the right of my belly button (left if you were looking at me) it would radiate to the sides and eventually to the lower back (any pain has always been on the right side) Right now it is in the area where the pain seems to be predominately. On my right side above my hip and under my ribs. Sometimes this pain can go for days and then come back again. So far the doctors are stumped. I should add that last year I had a couple of what seemed to be bad food allergic reactions this prompted me to send my blood off to be tested. It said my worse reactions were to wheat and gluten but it said it couldn't confirm celiacs. The nutricianist said if I carried on with my same diet symptoms would worsen but I didn't listen ..... Any advice would be gratefully recieved I spend a lot of nights lying on my right side cause it hurts a lot. The pain never feels too far beneath the surface of the skin it feels like someone with hot fingers is pinching if that makes any sense at all

I have gallstones which caused my symptoms like that but when my husband's friend who is a dr. in germany heard my symptoms he immediatley suspected celiac disease. I think I do have celiac disease or at least gluten intolerance because of my other symptoms though.

withnail69 Rookie
I have gallstones which caused my symptoms like that but when my husband's friend who is a dr. in germany heard my symptoms he immediatley suspected celiac disease. I think I do have celiac disease or at least gluten intolerance because of my other symptoms though.

hmm I guess gallstones could still be a possibility as when I had my ultrasound they hadn't told me not to eat (I'd had a tiny bit of chocolate about 3 or 4 hours before. So my gallbladder was collapsed when I had my ultrasound and they couldn't check for stones. well he said I had no large stones.... hmmm lets hope this diet makes all the pain go away!

withnail69 Rookie

interestingly enough I have glucoma and some of the side effects of the drops can be kidney stones etc

  • 3 months later...
withnail69 Rookie
I had pain in the right side of my stomach just under my rib cage for months before I was dx with gluten intolarance.I was tested for everything in the book.I had abdominal scans ..where they found gallbladder stones....not causing problems...just lying there they said.I had a HIDA scan to see if any of the stones were stuck in the bile ducts.I had everything the obgyn could order for any "female" problems there might be.My appendix was removed at age 12....so that was not an issue.I can not begin to count the blood tests I had for this count and that count.I saw a urologist after no one else could find anything.Of course he found nothing as well.One thing that all of the doctors did tell me was there was a lot of inflammation in my body.At this point,I felt like I was going crazy.My family was very positive and supportive even though I was becoming very depressed.I doubted myself sometimes ...as the pain would come and go.When my primary doctor ordered the endoscopy,I almost said no...not another test.I have put out so much money for copays and deductibles this year.My family convinced me to go ahead and do the test....and that is when I was dx.

Guys just wanted to update you cause I feel like I am sitting here losing my mind. I had another blood test recently for gliadin reaction etc. For this test (as I am sure you all know) I had to go back on gluten for 2 weeks. They were sposed to test for 5 different things but apparantly if the first is sooo low then they don't bother with the rest. So basically it came back as no reaction to gluten/wheat. Thats why I can't work out why I am in so much pain now. I can pinch the skin where the pain is. It is near the surface. It feels like a tube. If I put my index finger in my belly button and pinch with my thumb that is where it is and then it goes in a straight horizontal line towards my right side :( Which is what makes me think its intestines. It's driving me mad. So far have had ultra sound, ct scan and have an impending appointment with gastro endrologist

dadoffiveboys Rookie
Guys just wanted to update you cause I feel like I am sitting here losing my mind. I had another blood test recently for gliadin reaction etc. For this test (as I am sure you all know) I had to go back on gluten for 2 weeks. They were sposed to test for 5 different things but apparantly if the first is sooo low then they don't bother with the rest. So basically it came back as no reaction to gluten/wheat. Thats why I can't work out why I am in so much pain now. I can pinch the skin where the pain is. It is near the surface. It feels like a tube. If I put my index finger in my belly button and pinch with my thumb that is where it is and then it goes in a straight horizontal line towards my right side :( Which is what makes me think its intestines. It's driving me mad. So far have had ultra sound, ct scan and have an impending appointment with gastro endrologist

Well my father and myself were negative to the blood test for celiac (probably because that's not 'exactly' what we have). HOWEVER - your symptoms sound EXACTLY like what I was feeling. I actually had to go on 800mg of Ibuprofin and muscle relaxants (at age 30!!) because I couldn't even walk (it was that bad!). Anyhow - I cut out gluten AND casein and I've had no back pain like that anymore (or side pains).

BTW.. the carrots thing - if you are allergic to BIRCH (yes BIRCH pollen) - then you can show a reaction to Carrots, celery, etc. The proteins are the SAME (SCAREY thought). My neice has an ANAPHALACTIC reaction to carrots. HOWEVER when you cook them it denatures the proteins and you can eat them. IE - cooked - she's fine - uncooked she goes to the ER and must use an EPI pen.

My father was diagnosed with KIDNEY FAILURE and FSGS. Never got the back pains (at least I don't think) but had problems with his stomache emptying. That went away on a gluten-free diet and he tested negative. My Anti-Gliadin numbers were slightly elevated which is what lead me to cut out gluten and I'm glad I did! Remember - your KIDNEY filters proteins.. and Gliadin should NOT BE IN YOUR BLOOD! I think it causes the kidneys to get 'clogged'. Of course I'm not a doctor and don't know - but my dad's kidney numbers got better and his FSGS REVERSED on a gluten-free diet.. and I also think that would be where I was heading if I continued eating it. Some of his damage is irreversible and permanent now...

I do hope this helps - the POSITIVE thing is if you go completely gluten-free (and maybe Casein free was well - this is the protein in milk) you will feel better probably. You might have to go Soy free too - alot of kidney problem people on this forum have trouble with all three. In case you wonder, Gliadin, Casein and the soy protein are all like 80+% alike - hence the cross reactivity - depends on sensitivity and gene's I'd suspect.

withnail69 Rookie
Well my father and myself were negative to the blood test for celiac (probably because that's not 'exactly' what we have). HOWEVER - your symptoms sound EXACTLY like what I was feeling. I actually had to go on 800mg of Ibuprofin and muscle relaxants (at age 30!!) because I couldn't even walk (it was that bad!). Anyhow - I cut out gluten AND casein and I've had no back pain like that anymore (or side pains).

BTW.. the carrots thing - if you are allergic to BIRCH (yes BIRCH pollen) - then you can show a reaction to Carrots, celery, etc. The proteins are the SAME (SCAREY thought). My neice has an ANAPHALACTIC reaction to carrots. HOWEVER when you cook them it denatures the proteins and you can eat them. IE - cooked - she's fine - uncooked she goes to the ER and must use an EPI pen.

My father was diagnosed with KIDNEY FAILURE and FSGS. Never got the back pains (at least I don't think) but had problems with his stomache emptying. That went away on a gluten-free diet and he tested negative. My Anti-Gliadin numbers were slightly elevated which is what lead me to cut out gluten and I'm glad I did! Remember - your KIDNEY filters proteins.. and Gliadin should NOT BE IN YOUR BLOOD! I think it causes the kidneys to get 'clogged'. Of course I'm not a doctor and don't know - but my dad's kidney numbers got better and his FSGS REVERSED on a gluten-free diet.. and I also think that would be where I was heading if I continued eating it. Some of his damage is irreversible and permanent now...

I do hope this helps - the POSITIVE thing is if you go completely gluten-free (and maybe Casein free was well - this is the protein in milk) you will feel better probably. You might have to go Soy free too - alot of kidney problem people on this forum have trouble with all three. In case you wonder, Gliadin, Casein and the soy protein are all like 80+% alike - hence the cross reactivity - depends on sensitivity and gene's I'd suspect.

Thanks very much for your lengthy reply. I haven't had any back pain for about 6 months. But the pain on side and front is back with a vengence. I gave up dairy a long time ago. I have however substituted it with soya milk and yoghurt. But I don't have that much of either. a tiny bit in tea and I now have my coffee black. I only eat goats or sheeps cheese. etc. I may well be suffering from the two weeks of gluten for the blood test. The soya is a slight worry.

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    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
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