Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Your Opinion Please!

jeannine

Recommended Posts

jeannine Apprentice
jeannine
Posted

After 18 months of hell in the form of dermatitis herpetiformis, I was diagnosed. It took multiple skin biopsies and duodenal biopsies. So, I tell a friend and she tells me her husband was just diagnosed as well. I asked about how he did with the testing and she said no testing- he had ringworm and had diarhea for about a week and went in for the ringworm and was told that was a result of celiac disease! He was given a cream for the ringworm and told to go gluten-free.

I'm just a little bit frosted because she made it seem like if I slapped some anti-fungal cream on my dh it would be gone in a day or two.

Ok, my question is: is anybody really diagnosed that easily? And what does ringworm (fungal) have to do with celiac disease?

Thanks!

Jeannine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
After 18 months of hell in the form of dermatitis herpetiformis, I was diagnosed. It took multiple skin biopsies and duodenal biopsies. So, I tell a friend and she tells me her husband was just diagnosed as well. I asked about how he did with the testing and she said no testing- he had ringworm and had diarhea for about a week and went in for the ringworm and was told that was a result of celiac disease! He was given a cream for the ringworm and told to go gluten-free.

I'm just a little bit frosted because she made it seem like if I slapped some anti-fungal cream on my dh it would be gone in a day or two.

Ok, my question is: is anybody really diagnosed that easily? And what does ringworm (fungal) have to do with celiac disease?

Thanks!

Jeannine

Wow, this is a new one! :o

It appears that your friend and her husband's doctor are very ill informed. There are three ways to diagnose Celiac Disease.

1. Blood Work

2. Endoscopy/biopsy

3. Positive dietary response and in the case of DH, a biopsy

ravenwoodglass Mentor
ravenwoodglass
Posted
After 18 months of hell in the form of dermatitis herpetiformis, I was diagnosed. It took multiple skin biopsies and duodenal biopsies. So, I tell a friend and she tells me her husband was just diagnosed as well. I asked about how he did with the testing and she said no testing- he had ringworm and had diarhea for about a week and went in for the ringworm and was told that was a result of celiac disease! He was given a cream for the ringworm and told to go gluten-free.

I'm just a little bit frosted because she made it seem like if I slapped some anti-fungal cream on my dh it would be gone in a day or two.

Ok, my question is: is anybody really diagnosed that easily? And what does ringworm (fungal) have to do with celiac disease?

Thanks!

Jeannine

Is this by any chance a 'freind' who does a lot of 'one upping'? :D Ring worm has nothing to do with celiac that I have ever seen or heard. I'd be tempted to check her cupboards looking for rice bread etc. :ph34r: or to get together with her husband to find out the real scoop. He may have been sick for a while and have had a positive blood test. It is possible to be diagosed within a short time of being symptomatic but it sure does not happen often here and usually is a result of another family member being diagnosed and then folks that think their fine get tested.

jeannine Apprentice
jeannine
Posted
  • Author

Thanks for your replies! I did talk to the husband- and he didn't have any tests done. I told him he needed a new doctor. It seems that he was given a cream for the ringworm and told that he could have some gluten daily (approx one sandwich a day). He told me that his doctor is the best and very "cutting edge." Whatever that means!

Oh, well. To each his own...

Jeannine

Lisa Mentor
Lisa
Posted
Thanks for your replies! I did talk to the husband- and he didn't have any tests done. I told him he needed a new doctor. It seems that he was given a cream for the ringworm and told that he could have some gluten daily (approx one sandwich a day). He told me that his doctor is the best and very "cutting edge." Whatever that means!

Oh, well. To each his own...

Jeannine

hum....cutting edge of a butter knife. :rolleyes:

dally099 Contributor
dally099
Posted

ha ha ha ha ha ha im sorry im laughing at these people, isnt it wonderfull how there are people in the world that allways have to be sicker than you, and have cutting edge docters, maybe you should tell him you have sand in your ovaries and see what his response is.

there is no safe level of gluten, as im sure you know, and yes the testing to see if its celiac is a lot more than a doc looking at your "ringworm" and giving you cream. ahhh goodluck with these people and just remember to take it with a grain of salt what they have to say!

lizard00 Enthusiast
lizard00
Posted
Thanks for your replies! I did talk to the husband- and he didn't have any tests done. I told him he needed a new doctor. It seems that he was given a cream for the ringworm and told that he could have some gluten daily (approx one sandwich a day). He told me that his doctor is the best and very "cutting edge." Whatever that means!

Oh, well. To each his own...

Jeannine

I'm sorry, but this thread has been one of the funniest things I've seen today. I wish someone had told me to limit myself to just ONE sandwich a day. I understand, if I were you I'd be honked off too... But as it was said, take it with a grain of salt. Wouldn't life be great if we could all be so blissfully unaware!

hum....cutting edge of a butter knife.

You stole the words right out of my mouth!!! :lol::lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.