Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Diet Changes Everything...


holiday16

Recommended Posts

holiday16 Enthusiast

My sons 5th grade class went on a 3 day trip and we had to put food together for 3 days. I was up so late last night making pizza and bread plus we spent a bunch of money at the store getting smaller sizes of things to send, snacks and some frozen gluten-free meals. Then I had to put together his menu and instructions on how to prepare away from the other food etc. I think we did pretty well as the only thing we forgot to send were a package of hot dogs, but I sent extra protein bars and peanut butter and bread in case he was still hungry after eating his gluten-free food. Since he's been on the diet his appetite has really picked up.

He's supposed to go to a one week boy scout camp this summer and I'm already trying to figure that out. My dh called and he keeps being told they can handle it, but when he talked directly with the lady handling food she seemed pretty clueless. We may have to make a special trip there just to educate them and check out the facilities. Travel I think has been the biggest change for us and the biggest challenge.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacMom2008 Enthusiast

Kudos to you!! Great job on a HUGE task! My mom and I were just saying today at lunch that we've got "at home" down pat. It's outside our houses that is hard. Even eating out at a restaurant is tough, let alone a trip, let alone a trip without us around! Great job on all the extra effort. Now rest up for that scout trip!

Pattymom Newbie

I was just this morning contemplating how to handle scout camp this summer. My son is cub scout so is only going for 2 nights with his Dad, but I'm wondering how to handle it. I hadn't thought about sending the prepared frozen meals, like little TV dinners? My ds would probably like that a lot if I can get creative in the packaging. What gets me is that I am paying for the meals he can't eat, and going to a lot of effort as well.

We are all going to family music camp in 5 weeks, and with three of us gluren free the cost issue really got to me. I usually do well eating salad bars, meat, veggies, but my kids need all the desserts and such that are always around, so I need to pack the cookies, and fun things. And, when I asked I was also assured it wouldn't be a problem, but you never know, and it still means I need to bring baked goods. We went to a different camp last year, but I was the only one on the diet so it was pretty easy, and the camp staff was great. the head cook had a wheat allergy herself, so she kept all my food seperate, and made it clear what I could and couldn't have. I'm hoping to get lucky again!

Patty

ryebaby0 Enthusiast

When my husband and son have gone to Scout camp, we sent all their food (frozen home-prepared meals, packaged and labelled for each day) and it was kept in the kitchen walk-in. I also visited camp in person to talk to the cook My dh would get their food and nuke it himself (the kitchen was unbelievably unkempt and run largely by teenagers). Nobody got sick, but we were always profoundly annoyed that we still had to pay full price for camp. No amount of negotiation could get the council to move on the price! We have done similar things for the times my son has travelled alone and it has gone well. Always talk to the people who are in the kitchen -- not just the managers.

Pattymom Newbie

I am feeling better about his food safety at camp now, but our council also isn't flexible on the price. It just bugs me to pay for something we clearly aren't going to use, Maybe he can try to drink a lot of bug juice to make up for it.

Patty

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.