Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidently Eating Gluten?


jayzeemomma

Recommended Posts

jayzeemomma Rookie

I am just having a basic question. After eating gluten free for 2 or 3 months and feeling much better, what happens to the average person if they accidently eat gluten? do all the weird signs come back or because your body (intestines) are healing would a person just get a little of the weirdness they used to experience at the worst stage? I mean you don't go all the way back to square one if you accidently eat a little gluten (becuase it is so hidden sometimes I do not even know, but then a stomach ache will come later and I do not know what caused it). Hope this makes sense.

Thanks,

Lisa Heath


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jewi0008 Contributor

Hello!

Unfortunately, for me...I get 10X's worse reaction after avoiding it for a long period of time. I was doing so good...no gluten or anything for over a month. I got into it last weekend and I have been soooooo miserable this week. Stomach pain, c AND d and my mouth kills and teeth too!!!! Not fun. Don't do it!

aikiducky Apprentice

It's pretty inevitable to sometimes get accidentally glutened, since the whole world isn't gluten free. :P You don't have to worry that you go right back to square one, but you do need to try to keep the glutenings to a minimum, because if it happens too often you will start to accumulate damage again.

The reaction might actually be more dramatic after a while gluten free, because your body isn't used to dealing with gluten daily any more. My experience, now three and a half years gluten free, is that at first I got much more sick from gluten than ever in my gluten eating days, but lately the reaction has gotten milder again.

Pauliina

ksymonds84 Enthusiast
I am just having a basic question. After eating gluten free for 2 or 3 months and feeling much better, what happens to the average person if they accidently eat gluten? do all the weird signs come back or because your body (intestines) are healing would a person just get a little of the weirdness they used to experience at the worst stage? I mean you don't go all the way back to square one if you accidently eat a little gluten (becuase it is so hidden sometimes I do not even know, but then a stomach ache will come later and I do not know what caused it). Hope this makes sense.

Thanks,

Lisa Heath

Welcome Lisa!

I have only been gluten free for 4 months now and have made tons of stupid mistakes. It's a lot of learning! I found after two months of gluten free eating that the accidental misshaps caused me to be sicker than ever before. I think our bodies no longer put up with the offending gluten and say "no way" are you coming back! It's definately helped me be more diligent about reading labels and watching for cross contamination from wooden spoons etc. I bought my own toaster around the 2 month mark as well, so its all about learning. I don't think we are going back to square one though, we are healing everyday that we dont eat gluten. I've been keeping a food journal since the very beginning and it has helped me discover the mistakes I have made and lately pointed to the fact that I can't tolerate milk products (except for hard cheeses). So a food journal I think is a must for finding out whats going on if you have the time. Nothing fancy just a a plain notebook with columns about what you ate and how you felt. I write down everything that goes into my mouth. It is getting easier and I promise it will for you too! Hang out with us on the board its the best learning place that I have found!

Geordie Tom Newbie
I am just having a basic question. After eating gluten free for 2 or 3 months and feeling much better, what happens to the average person if they accidently eat gluten? do all the weird signs come back or because your body (intestines) are healing would a person just get a little of the weirdness they used to experience at the worst stage? I mean you don't go all the way back to square one if you accidently eat a little gluten (becuase it is so hidden sometimes I do not even know, but then a stomach ache will come later and I do not know what caused it). Hope this makes sense.

Thanks,

Lisa Heath

Geordie Tom Newbie

I'm a brand new member (all of ten minutes) and was searching the forum to see what kind of symptons coeliacs get after accidentally (or even deliberately) eating gluten. I have been diagnosed five years and generally cope pretty well on the gluten-free diet. However I have had severe stomach cramps and diarrhoea for the last three days and the only time I may have taken in gluten just before this was in a local Italian restaurant on Saturday night. They are always very careful about what they serve me and even advised against my first choice as they knew for certain that the sauce that came with the dish contained gluten. (By the way I didn't have pasta or pizza!) The trouble is how do I know that this latest bout of illness is down to accidentally taking in gluten or is it because of a bug? I had exactly the same problem eight weeks ago whilst in Rome (is there an Italian theme developing here?) despite being extremely careful in restaurants and always handing over my dietary card explaining what I can and can't eat. Any thoughts?

ShayFL Enthusiast

Tom you might be one of those that is very sensitive to even flour in the air. If they are making pizza and tossing flour around and the A/C picks it up and distributes into the air and you breath it in and get inside of you, you can react. Your food could be sitting there and the pizza prep person tosses some flour to shape some dough and some of the flour ends up on your plate. It is accidental. I am not certain I would pick Italian/Pizza places to eat or anywhere where loose four is about.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Calicoe Rookie
Welcome Lisa!

I have only been gluten free for 4 months now and have made tons of stupid mistakes. It's a lot of learning! I found after two months of gluten free eating that the accidental misshaps caused me to be sicker than ever before. I think our bodies no longer put up with the offending gluten and say "no way" are you coming back! It's definately helped me be more diligent about reading labels and watching for cross contamination from wooden spoons etc. I bought my own toaster around the 2 month mark as well, so its all about learning. I don't think we are going back to square one though, we are healing everyday that we dont eat gluten. I've been keeping a food journal since the very beginning and it has helped me discover the mistakes I have made and lately pointed to the fact that I can't tolerate milk products (except for hard cheeses). So a food journal I think is a must for finding out whats going on if you have the time. Nothing fancy just a a plain notebook with columns about what you ate and how you felt. I write down everything that goes into my mouth. It is getting easier and I promise it will for you too! Hang out with us on the board its the best learning place that I have found!

Yeah, that sounds pretty scary but possible, especially if you have been gluten-free for a long time. I just glutened myself today with a tiny speck of chinese black bean sauce in my stir fry that I momentarily forgot to check, and I felt significant symptoms today compared to the amount consumed (usual dullness and spaciness, slight background headache, blurred vision, and menstrual cramps, which were miraculously non-existent for the last couple of days). All of these symptoms have rendered me incapacitated in the past, so I am reminded of what I have left behind by staying away from the stuff.

In my inevitable brain fog, I grabbed for something else in my freezer and came up with these old tofutti ice cream sandwiches that were still hanging around. I took one out of the box, undid the wrapper, raised it to my lips and took the smallest of bites until the awake part of my brain jumped out from behind the chemical cloud. I checked the box, and yep, they went straight into the bin. Never did like those tofutti sandwiches anyway.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,956
    • Most Online (within 30 mins)
      7,748

    Crismedin
    Newest Member
    Crismedin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.