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Gluttened Question

Rpm999

By Rpm999
in Coping with Celiac Disease

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Rpm999 Contributor
Rpm999
Posted

hey everybody- i wanted to know if anybody has had anything similar happen...well, i've been fully gluten-free (or tried to :lol:) for about two months...thursday last week, i had a few utz chips and believe i got sick from them, because the bigger bag has wheat flour, and the site says that kind isn't, and all of that so it's not surprising

the thing is, i feel that i'm getting worst as time goes on here...for days and days and days, i feel like how i felt about 2 months ago...completely off, crying a lot for no reason, flush sensations, have barely been able to sleep at all for seriously about 4 days, bad anxiety....i feel like i keep walking back and forth and feel like i want to die here....i can't even really watch tv or do anything, my brain feels REAL frozen, like literally nothing is going on...and i forgot how bad i felt before, but having this happen reminded me that i haven't felt that way in a while....actually, for a while before this, i was sleeping great, i actually kept falling asleep early and not even trying to and it was definitely a change...but with so many symptoms, i guess you don't notice when things get better

the thing is, i think i was gluttened once before and it was NOTHING like this...it was terrible, but it wasn't like how i used to felt, only a couple of days, wasn't getting worst/got better as days went on i think....then again, that was about a month ago i believe

my question is, when first going gluten-free, is it normal to have a reaction THAT bad? with such crippling symptoms and getting worst as time goes on?

another strange thing is that around the time i started getting sick, i started taking b12, and i've heard some people have a hard time with that, and it makes me wonder if maybe this triggered something off in me....who knows, but this has been scary :(

thanks to anybody that can help me! you've all been a great help, this has just felt traumatizing and so severe so i'd like to know if any of that is common/possible/makes sense to happen like that

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johnfrancis Newbie
johnfrancis
Posted

Hi, I'm really sorry you are having such a hard time, this has never happened to me.

I never had any symptoms and was only diagnosed because I decided to get tested after my grandmother my mother and my sister all found out they had celiac disease. My blood tests and biopsy were both positive!

I have noticed that if I have any gluten now (after 5 years gluten free) I get really bad stomach aches and other nasty symptoms, so maybe as you have been gluten-free for a while your symptoms are just a lot worse when you do have gluten in your system.

Really watch what you eat, avoid anything that potentially has gluten in it.

I think your symptoms are severe enough to go see a doctor, maybe you need some anti-anxiety meds?

Rpm999 Contributor
Rpm999
Posted
  • Author

you're a lucky one then :lol: you wouldn't believe some of the problems people have, congrats on finding it out early so nothing bad will develop

aikiducky Apprentice
aikiducky
Posted

It's funny, I've seen LOTS of people say that they felt better for the first two months and then felt worse again. Seems there's a typical third month dip or something. :huh:

It's true that your symptoms if you get some gluten in you can get worse when you have been gluten free for a while. That's quite normal. Your body isn't used to dealing with gluten every day anymore.

Hope you feel better soon!

Pauliina

Rpm999 Contributor
Rpm999
Posted
  • Author

thanks! those things are just so hard to deal with, nothing feels right, i keep crying out of nowhere and everything just feels dead or something- hard to explain :o

Rpm999 Contributor
Rpm999
Posted
  • Author

anybody else know anything about things like this? damn, i'm sick of crying a lot for no reason and running all over the place, on top of the flushness, i feel like a zombie on crack or something :lol:

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