Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie


StevenLy

Recommended Posts

StevenLy Newbie

Hi Everyone,

I found out last week, through a blood test, that I have celiac. I'm 26 and my doctor just informed me via a phone call to stop eating gluten. I don't think he has much experience with celiacs and doesn't have much information. It seems like this disease usually affects those of European decent, so is it strange that I am an Asian male that has been diagnosed. I don't know how all of a sudden I can have this when I have eaten foods with gluten all my life. I live in Southern California, does anyone know of a doctor or place I can go to get more information? Is this something I can die from? I'm pretty scared at the moment. Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

First of all welcome!

Anyone can get Celiac regardless of their ancestry. There is just a stronger link to certain ethnicities. Did he do a biopsy? Not that you need it because a positive blood test is POSITIVE....PERIOD. But a biopsy will tell how your intestines are doing and how much damage you have. You may wish to consult with a gastroenterologist (sp?).

With that said, you will need to follow a strict gluten free diet regardless of whether you have a biopsy or results of a biopsy. Do you have symptoms? Once you go on the diet, you should see some clear up soon enough and hopefully all of them with time. This will also tell you what you need to know without a doubt.

Even if you DO NOT have symptoms, damage is being done. It can lead to a wide variety of autoimmune diseases like Diabetes type 1, MS, etc. And celiacs have a much higher rate of various cancers. You can have the same risk of those cancers as everyone else by following the gluten-free diet.

I have found this site a great resource.

The easiest way to go gluten-free is to eat simply. Think paleolithic type diet. Meats, veggies, fruit and nuts. However, most can eat the gluten-free grains like rice, quinoa, buckwheat, etc.

I hope this helps. I am new to it too. 6 weeks in. But I have learned A LOT on this site plus tons of surfing. Knowledge is key!

Shay

msmini14 Enthusiast
Hi Everyone,

I found out last week, through a blood test, that I have celiac. I'm 26 and my doctor just informed me via a phone call to stop eating gluten. I don't think he has much experience with celiacs and doesn't have much information. It seems like this disease usually affects those of European decent, so is it strange that I am an Asian male that has been diagnosed. I don't know how all of a sudden I can have this when I have eaten foods with gluten all my life. I live in Southern California, does anyone know of a doctor or place I can go to get more information? Is this something I can die from? I'm pretty scared at the moment. Thanks in advance.

My doctor didnt tell me anything either. To get some info google celiac disease and everyone on this site is very helpful too! You wont die, but you need to stay away from wheat/gluten which is in everything. I had been eating wheat my whole life up until Otcober of last year, I got sick from eating chicken and was never the same after that. There are multiple things that can trigger Celiac, but it is a genetic disease. Inform your immediate family because you picked it up some where.

I have been doing so much research and yes it can be over whelming. You will be ok. I am in So Cal too, is there a Henrys by you? That store is fantastic and I have a lot of good receipes if you are interested. Just say bye bye to fast food =)

AliB Enthusiast

I suspect a lot of the problem is in the wheat itself. It has been so meddled about with and now with the advent of GM who knows what they are doing to it!

It has been getting worse through the successive generations. Now apparently in the States 35% of the population have the genes for it. The genetic modification of the wheat and other gluten grains has probably resulted in genetically modifying us to be unable to cope with it!

pele Rookie

Hi Steven

Celaic disease and gluten intolerance are very common, but appartently no one's told the doctors yet!

Here is a link to an informative video on youtube from U of Cal. It's 90 minutes long and well worth the time.

Open Original Shared Link

You might also want to pick up a copy of Dr. Peter Green's book Celiac Disease: a Hidden Epidemic

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748

    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.