Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight


really confused

Recommended Posts

really confused Newbie

I just found out I had celiac about 3 weeks ago. Since cutting out gluten I have gained a lot of weight.. which is wierd to me, because since I cut it out of my diet I have been eating a lot healthier. Is this normal has anyone else experienced excessive weight gain at the start when cutting it out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenGalAZ Enthusiast

When I went completely gluten free I did gain some weight.

Your body is not use to absorbing all of the nutrients you are eating. With cutting out the gluten your body is healing and you are now able to absorb the nutrients. Some people experience a constant hunger in the beginning. I had this happen about the first month or so I felt hungry ALL the time. After a while I was back to my normal eating habits but once in a while sparks back up.

Your body is needing the food you are taking in. Give yourself some time for your body to adjust to everything.

Good Luck hope this helped some :)

msmini14 Enthusiast

I have been gluten-free for about 2 months now and have been glutened a couple of times. I have put on 15 lbs since then, but like they say your body is absorbing again. I am still kind of playing catch up myself, so yes it is normal =)

ellen123 Apprentice

I've been gluten free for about 3-1/2 months now and I also noticed I was gaining weight. In addition to the explanations above, I found that I was eating a lot more carbs than I had been before and I'm guessing that contributed to my weight gain as well. In my effort to find gluten-free foods, I was relying a lot on rice and noodles for both lunches and dinners, plus rice crackers, gluten-free toast for breakfast, even noodles or rice crackers for snacks. And like the others, I found I was hungry earlier in the day after breakfast. My stomach began "growling" by 11 a.m. or even earlier. I am now trying to cut down on the carbs a bit, trying to eat more salads and protein at lunch time and saving the noodles, rice or potatoes for one meal at dinner, cooking a lot more vegetables and eating less of the carbs even at dinner. I've been using fruit or vegetables for snacks too. So far, I haven't notice big differences on the scale but my body seems to be redistributing a bit for the better. If you're eating a lot of dairy I'd cut down on that too. If you're ready to deal with the weight gain, those are my suggestions. On the other hand, many people feel deprived at first when they go gluten-free, so you may want to just let yourself get used to that before reducing carbs or doing anything that will make it harder for you. Good luck!

Ellen

Ursa Major Collaborator

Carbohydrates and sugars are responsible for weight gain, while fat HELPS you lose weight (if you stay away from fats like hydrogenated fats and margarine, that is). Your body needs saturated fat, yes, especially your heart and brain. It has been shown over and over again that a low fat diet causes heart disease and cancer.

Eat more fats like lard, eggs (which have a lot of healthy fat), butter if you can tolerate it and non-hydrogenated, cold pressed coconut oil (one of the healthiest fats in the world). Also make sure you get enough omega 3 fatty acids (we all get too much omega 6, and it is bad if the balance is off).

Fats and protein will allow you to feel satiated faster and much longer than carbs, and as a result you will lose weight instead of gaining if you eat enough of them.

By the way, something I found out not long ago, and almost nobody knows this: Most of the fat in meat turns into mono-unsaturated fat while cooking, which is the same healthy fat as olive oil! Wouldn't it be nice if all nutritionists and doctors knew this, when they tell people to cut out all animal fat and eat only vegetable oil. Which is terrible and uninformed advice.

ShayFL Enthusiast

I have actually lost weight. Weight I could not afford to lose. :( Down 4 pounds which doesnt sound like much unless you were too thin to begin with. And I lose it mostly in my face and shoulder area first. Everyone comments. And I feel they think I am anorexic or something. I hate it.

But in my case when I cut out all gluten products, I started eating A LOT less CARBS. I was trying to go basically paleo. But I cannot lose anymore weight. So I have been preparing some gluten-free baked goods at home from scratch. Still whole grains. I just need the calories.

I am hoping I can start to play "catch up" soon.

cpicini Rookie

I've been gluten free since October of 2007. I lost about 35lbs in the first two months. Now I can't lose a pound to save my life. What I notcied after speakign with my doctor was that most of the gluten-free foods are super high in calories. Try tracking your calories a little closer. You should burn about 2000 calories a day without exercise so you should be able to simply figure out if you are taking in more then you are burning.

Good Luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



msmini14 Enthusiast

I agree, dont deprive your body. Let it heal, give it what it wants =)

AliB Enthusiast

I have been gluten-free for 3 months and have been struggling to keep my weight down even though I am eating little in the way of carbs.

My body doesn't cope with them very well (hence the diabetes) so I am better keeping them low. I try to avoid baked goods and just stick to basic foods but I am hungry! So I know how that feels. I hope that as time goes on and my body gets to sort itself out properly, my weight will start to balance out. I need to lose around 60lb to get to a more balanced weight but it's going nowhere at the moment!

cupid Newbie

I'm gaining wt too but its different than when I use to gain wt before going gluten-free/cf. I use to gain wt all over and it was more solid but now i'm gaining more in my stomach and thighs but seems to be more puffy/bloated. My friend suggested maybe not drinking enough water. I'm going to try an increase my water consumption and see what happens. Any other sugestions??

ShayFL Enthusiast

I think a big problem is a lot of people just switch from glutened foods to non-glutened which not only have less fiber but are way higher on the glycemic index. Im not eating ANY processed foods. Simple foods like fresh meat, veggies, fruit, nuts and baked goodies I make at home with whole grains. I avoid the rice flour....no fiber and will make your blood sugar spike. And I add a Tlb of flax or chia to the muffins/cookies to give even more fiber. Im sticking with Teff, Amaranth and some Sorghum mostly. Im losing weight.

TheMinsterman Newbie

I have lost two stone in 3+ monthes, and while I have no confirmation of having Celiacs yet (a weak positive, which my GP explained didn't necessarily mean I definately had it, and my wieght loss could be down to the nausesa my inner ear problem has caused, along with a possible CLF leak too which irritates and damages the guts, joy") its becoming quite difficult to even sustain, let alone gain, weight.

I've gone from 16 stone to 14 stone, which while I needed to lose weight, the mode I have done it in hasn't been appreciated!

cupid Newbie

Good advice ShayFl, I will try this. Its also hard to find gluten-free stuff thats low fat so I'm sure thats contributing too. Especially if low in fiber since fiber carrys fat out of the body. Its funny but before I had to go gluten-free/cf I knew the nutrtional guidelines to follow to stay healthy and actually did pretty well while I had the energy to work out but as my fatigue increased all the rules went out the window and I ate alot of comfort foods!! Uhg, hope I can get back on track soon so I don't feel like a blimp all summer!!

ShayFL Enthusiast

Im finding right now I need some yummies. So I have made teff/almond butter cookies (Bob's has the recipe only he uses peanut butter which I avoid), pumpkin muffins and banana bread. I tweak them to suit me. I dont do eggs, so I substitute ground flax and water. Add chia if I need more fiber, etc. I am fortunate that I enjoy experimenting in the kitchen. So baking is working out! But I dont over do these. I just like having them around so I dont feel so deprived.

I am mostly eating lean meats, veggies, sm amount of fruits and nuts/seeds. If I have a carb at dinner like quinoa or buckwheat then I dont eat the yummie. Or if I know I will eat a yummie, then dinner would be just meats and veggies (no fruit or grains). I do limit my carbs. It isnt my weight but my blood sugar that is at issue. So I naturally do not overdo the carbs to keep myself balanced. Eating like this is not conducive to weight gain.

Bernadette Newbie

Most recently, I had to put gluten back in my diet to prepare for the celiac testing, per my doctor's orders. I had to follow a heavy gluten diet for a full 3 weeks before testing. Besides the fact that I felt like I just wanted to DIE, I also gained 10 lbs while eating gluten foods-mostly felt puffy and bloated while eating the bad foods.

However, when I am gluten-free and eating right, I lose weight. When I first realized I had celiac symptoms and needed to remove gluten from my diet, I lost 15 lbs w/in a month. That was mainly because I was so nervous about my diet and not feeling sick every time I ate that I only consumed veggies and grilled chicken and fish-no carbs.

You have to also keep in mind there are fattening gluten free foods out there, especially if you have a sweet tooth and find some yummy gluten free brownies!! My co-worker is a celiac and she eats the delicious gluten free foods and she admitted she has seen an increase in the scale! It always comes down to what you're eating and how your body reacts to it. Eventually, your weight will even out. You just have to find your balance within the gluten-free world.

Panopticism Rookie

In 8-9 months gluten-free, I have not gained all that much weight. I'm pretty horribly underweight, too. I also have that constant hunger you speak of and have the entire time. I eat as much as I can afford to.

MindyK Newbie

I was diagnosed with celiac disease about 8 months ago. I had be suffering extreme symptoms for about a year to a year and a half. No the standard stomach problems, but constant vomiting and loose stools. Anyway I went from a round 140lbs (at 5

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748

    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.