Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Question?

LisaN

By LisaN
in Related Issues & Disorders

Recommended Posts

LisaN Rookie
LisaN
Posted

I remember when I read the symptoms for Celiac and I KNEW, without a doubt, that was what I had. I think I may have done it again, but I need your honest input please!

I am sooooo frusturated I can barely stand it! I was diagnosed with Celiac back in Nov of 07 and have been gluten free since then. My stomach issues have improved 99% and i am so pleased. However, I am still exhausted, zero energy, having major hair loss, dry skin, brain fog, aches and pains, can't lose weight. I am gluten free and also a vegetarian so it makes no sense to me why i am 30 lbs overweight! I eat very healthy. I have gained and lost 30lbs twice in my life without changing my eating or exercise habits. Within the last week i feel like there is a lump in my throat, choking on food, and constant need to swallow. Also having a hard time breathing and yawning a lot.

I have been tested for Lupus and RA both with negative results. My thyroid has been tested numerous times. The 1st time I was on the verge of being hypo and everytime after that has been normal. I did have epstein bar back in feb of 07.

After reading some info, my symptoms are almost dead on for hypothyroidism. I read that if you have celiac that you are more likely to have other autoimmune disease. So... could I have Hashimotos? Which can have both hypo and hyper symptoms... which might explain the unexplained weight gain and loss?

Please help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dedrasmom Rookie
Dedrasmom
Posted

Hi Lisa, definitely sounds like thyroid to me. I am a long time thyroid patient. You should go to thyroid.about.com. and post questions to their forum. (lower left corner of main page) The hardest thing will be to find a good doctor as you will understand after you do some reading on that site. Where do you live? There is a list of top docs on the site for different states. check it out. If you can find a good doc that will treat symptoms and not just look at numbers from your bloodwork, hopefully you can feel better soon.

Good luck! Belinda in NC (my hubby has celiac & thyroid issues)

I remember when I read the symptoms for Celiac and I KNEW, without a doubt, that was what I had. I think I may have done it again, but I need your honest input please!

I am sooooo frusturated I can barely stand it! I was diagnosed with Celiac back in Nov of 07 and have been gluten free since then. My stomach issues have improved 99% and i am so pleased. However, I am still exhausted, zero energy, having major hair loss, dry skin, brain fog, aches and pains, can't lose weight. I am gluten free and also a vegetarian so it makes no sense to me why i am 30 lbs overweight! I eat very healthy. I have gained and lost 30lbs twice in my life without changing my eating or exercise habits. Within the last week i feel like there is a lump in my throat, choking on food, and constant need to swallow. Also having a hard time breathing and yawning a lot.

I have been tested for Lupus and RA both with negative results. My thyroid has been tested numerous times. The 1st time I was on the verge of being hypo and everytime after that has been normal. I did have epstein bar back in feb of 07.

After reading some info, my symptoms are almost dead on for hypothyroidism. I read that if you have celiac that you are more likely to have other autoimmune disease. So... could I have Hashimotos? Which can have both hypo and hyper symptoms... which might explain the unexplained weight gain and loss?

Please help!

Ursa Major Collaborator
Ursa Major
Posted

I agree that you sound like you have hypothyroidism. Do you remember what your numbers were when you were tested?

Check out this website, they have great information. Also, make sure your adrenals get tested as well. Most people have adrenal fatigue when their thyroid has been out of whack for a while.

Open Original Shared Link

ShayFL Enthusiast
ShayFL
Posted

Stopthethyroidmadness has some great information (and some not so great). But one thing you need to check is that your doctor is using the latest lab values for TSH. It used to be up to 5 was normal and now the cut off is 3. Some experts think it should be 2. My TSH was 2.8 and I was very hypo. Im on Armour. It helped a lot. My doctor treats by symptoms and not just labs anyway. The Armour has supressed my TSH. It did with the first small dose, but I needed to keep increasing my does to get rid of the hair loss (and I had a weird patch of severly kinky hair). Muscle twitches. Those went away once I got to the right dose for me. My doctor ignores the TSH now. And asks how I feel. It helps that I am well aware of the symptoms of excess (anxiety, insomnia, rapid pulse, sweating, etc.). And I am good.

KimmyJ Rookie
KimmyJ
Posted

Sounds like a thyroid deal to me. I would have it tested - make sure to ask to be tested for the autoimmune diseases that cause thyroid problems if you suspect Hashimoto's. Have them test your T3 and T4, as well as test for the thyroid antibodies. I'm going through this whole thyroid mess too right now, only with major symptoms of hyper-thyroidism. I hope you figure out what's causing it!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...