Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Feller On Board


joopie

Recommended Posts

joopie Newbie

hello,

first let me say i have visited this site before and it seems like a warm croud- so, thanks in advance for sharing your thoughts!

i have had many unexplained health issues for many years- recently switched to a integrated medicine w/ a naturopathic doc- just had some blood work done- doc says celiac disease... i am hoping this might be the answer to my problems - i have adjusted my diet to be gluten free-below are results:

Endomysial Anibody, IgA in a reference range from 40 - 350 result = 330 - negative?

Tissue transglutaminase, IgA w/ negative range <20 result = 37 positive.

Gliadin IgG w/ negative range <20 result = 2 negative

GliadinIgA w/ negative range <20 result = 4 negative


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Hi and welcome. Those are positive results as far as I can see. You have come to a good place for info and support and do feel free to ask any questions you need to. Do feel free to just vent also, we have all been through it and do understand the anger and frustration. There is a lot to be learned at first but you will get the hang of it. I hope you are feeling better soon.

ksymonds84 Enthusiast

Tissue transglutaminase, IgA w/ negative range <20 result = 37 positive.

Hello and Welcome to the board! You've found a great place to learn all you can about celiac. The tissue transglutaminase test is a big one for diagnosing and your being positive sounds like the gluten free diet will make a difference.

joopie Newbie

thank you ravenwoodglass and ksymonds84 fro the response!

i am doing as much research on the gluten subject as i can.

i am also sensitive to sugar- my glucose borders on pre-diabetic... i have always been lean in build so i need to be careful not to go catabolic on the new diet.

this change will prove challenging- but, i am fortunate to have a very supportive wife who has already making some incredible gluten free meals- and a beautiful 5 year old son to keep my spirits up.

thanks again- i look forward to feeling better, learning more and helping others if i can,

B) , joopie.

lizard00 Enthusiast

Welcome to the gluten-free life!!! It's really not so bad! In fact, if you feel better, it's GREAT!

Having a supportive spouse (or other family members) is really essential, I think, to being successful with adapting to your new lifestyle. My husband has been great since the beginning, and I don't have an official diagnosis. I hear other people who's families are downplaying the importance of being gluten-free, and it makes a huge difference. My husband took the time to find a gluten-free cookie recipe to surprise me with. It's not so much the cookies (they were yummy!) but the fact that he made the effort to find the recipe and make them that really make me grateful for his support.

Feel free to ask any question, be angry, whatever. This forum is absolutely wonderful and full of people with a wealth of knowledge.

RiceGuy Collaborator
i am also sensitive to sugar- my glucose borders on pre-diabetic... i have always been lean in build so i need to be careful not to go catabolic on the new diet.

Don't be surprised if you find your weight going up a bit. Malabsorption has a tendency to keep a celiac thin (though not for all of us). Also, I wonder if leaky gut issues could be responsible for blood sugar problems, as it seems to me sugars would more easily and quickly get into the bloodstream. Some have reported that their diabetic symptoms vanish once gluten-free for awhile.

joopie Newbie

lizard-

you are so right about a supportive spouse - very important! she has already put together some things from gluten free recipes- i will have to post some pics of the goodies she is already making.

hey riceguy-

i do hope you are right about the removal of gluten and its possible effects.

-thinking positive and sticking to the plan!

B) , Joopie.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



joopie Newbie

celebrating first week gluten free - accomplished!

chocholate/chocolate chip muffins for everyone- compliments of my wonderful wife!

(gluten free of course)

B) , joopie

my pic won't post? :(

004.webp

psawyer Proficient
my pic won't post? :(

004.webp

The %7Boption%7D tag is not enabled on this board. You can create a link on which people can click using [ url ].

As in click here.

Click the BB Code Help button at the bottom right of the window when composing a post for specifics.

Congratulations on your first week! The muffins look lovely.

joopie Newbie

thanks Peter for the info and congrats!

it really is a big change! my wife is helping me huge! sippin' on some wine right now- normally it might be a micro-brewed beer....

B) , J.

Karli Rookie
thanks Peter for the info and congrats!

it really is a big change! my wife is helping me huge! sippin' on some wine right now- normally it might be a micro-brewed beer....

B) , J.

I am a newbie, too. Good to hear the positive response/feed back you are getting from other members... I am getting positive support of my husband, too. He does a lot of the cooking... and now that he understands the cross contamination issue... he has revamped the kitchen cupboards. He still has his store bought bread and crackers ... but for baking we are convertint to glutin free. My sister got her 'test' after I showed positive for Celiac... small bowel involvement and blood work too... So I have given my cake mixes etc. to her... Fortunately, I had discovered on my own that baked goods tended to bother me... Frankly, I have very few symptoms.... so this all came a shock to me....

As I mentioned, my sister got her test right away.... other family members are dragging their feet... any hints on how to urge them to the doctors office.... (brother, sons) my double cousin is having her blood work done this week.... It seems the women are taking this more seriously...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,022
    • Most Online (within 30 mins)
      7,748

    Pesto
    Newest Member
    Pesto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.