Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post-partum Celiac?

ut96grad

Recommended Posts

ut96grad Newbie
ut96grad
Posted

New here. Hello everyone.

I have lots of questions.

First one is - has anyone on this board had pregnancy "bring out" Celiac?

I am 13 months post-partum (baby was born by c-section) and have LOTS of Celiac symptoms.

TIA.

Sheri in TX

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Hi Sheri, and welcome to these forums. Yes, unfortunately it is not uncommon for pregnancy to trigger the celiac disease genes and to bring out celiac disease in people. Quite a few members had that happen. I am sure those women (who are most likely sleeping right now, of course) will chime in soon.

ItchyMeredith Contributor
ItchyMeredith
Posted

ME!

I had no celiac symptoms till I was 2 months postpartum with my first child. Suddenly I had DH something terrible. It lasted for many months but mostly subsided- even on gluten. I had another outbreak when I was 2 months postpartum with my second son. This is when we figured out that it was celiac.

There is something about postpartum or maybe breastfeeding hormones that exaggerate my DH. Pretty Crazy!

missy'smom Collaborator
missy'smom
Posted

Pregnancy/childbirth was the trigger for me as well and unfortunately it took the next 8 years to find out that it was celiac disease. I tried to tell my doctors that something wasn't right(I didn't know about celiac disease at the time)but just got dismissed and even laughed at when I suggested to one that something wasn't right with my immune system. My intuition proved to be right in the end. I wish that it had been caught earlier. The lesson I learned from that is ...Advocate for yourself. Don't just accept your symptoms and keep pressing for answers until you get them. And don't say "it's only stress, part of being a new mom etc." "If only I..got more exercize, changed my diet etc."

lizard00 Enthusiast
lizard00
Posted

I'm pretty sure it was my trigger, too. I could pretty much eat whatever garbage I wanted to and be fine. After my son was born, slowly my body turned on me. He was 2 1/2 by the time I discovered what was going on.

I did get a lot of, "well, you are the mother of a toddler, you're supposed to be tired... " So double that from the PP... don't accept that as an answer. If I had of, I would still be sleeping my life away and while my head continued to throb.

fedora Enthusiast
fedora
Posted

me, my twin pregnany

I think I had celiac bad from9 to 13 years old. Then I went into the teenage remission thing. I still had some symptoms, but was not afraid I was dying anymore(for real I thought I might be dying). After I went off wheat at 19 for awhile, I got more healthy. I had one child at 22, then at 25 had twins. My rashes on my hands began during my pregnancy. When they turned two I was a wreck. Anxiety attacks, rashes all over both hands, my "spells" started, chronic constipation followed by horrible attacks of going to the bathroom, and almost fainted at times. I couldn't do anything at all for weeks I was so out of it. yuck. I had gone off wheat again and started to get better, but had also taken a herbal hormone balancer. I had been pregnant with twins, went overdue, and nursed them till they were two!!!! my poor body was shot. I assumed my hormones were shot and needed rebalancing. My doctor even suggested celiac but because I was feeling better(duh I had gone off wheat) and did not have chronic constipation he doubted it. I had never heard of celiac or gluten in other foods before. Truthfully I was in denial for years about gluten, no ones fault but my own there.

jerseyangel Proficient
jerseyangel
Posted

I believe (as does the doctor who diagnosed me) that my C-section at age 29 was what triggered my Celiac. The sad thing is that I wasn't diagnosed until I was 49.

I had symptoms since childhood, actually, but felt better in my teens and early 20's (which I later found out it not uncommon).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mickide Apprentice
Mickide
Posted
New here. Hello everyone.

I have lots of questions.

First one is - has anyone on this board had pregnancy "bring out" Celiac?

I am 13 months post-partum (baby was born by c-section) and have LOTS of Celiac symptoms.

TIA.

Sheri in TX

I found out I had Celiac when my DD was 11 months old!

pixiegirl Enthusiast
pixiegirl
Posted

I started getting symptoms right after child birth but was not diagnosed until my daughter was 11 years old!

Susan

slmprofesseur Apprentice
slmprofesseur
Posted

I don't have a definitive diagnosis, but I have had symptoms for years. My symptoms progressively got worse and the low point was my 2nd pregnancy. I had heartburn so bad it caused asthma flare ups. I didn't find out what celiac disease was until my son was diagnosed with a wheat allergy. I think that was part of the problem with his premature birth. At 26 wks I was diagnosed with intrauterine growth retardation. In spite of a healthy diet, I was not growing. He was born via emergency c-section at 33 wks. At 8 months old and in the 5th percentile for growth, he was tested positive for a wheat allergy. We went gluten free last year and my heartburn and asthma have all improved.

No one will test us because the "research" shows that there is a low incidence of celiac disease among African-Americans.

WendyG Explorer
WendyG
Posted

Me too. I had a very difficult pregnancy and birth with my third child... My Harry was totally worth every bit even celiac!

My symptoms started while I was still in the hospital. I was very sick and looking back all that sounded good to eat was Gram crackers. I told my ob the next women who has terrible D after delivery and cant stop loosing weight don't tell her to take an anti diarrheal.

Wendy

AJJ Newbie
AJJ
Posted
I believe (as does the doctor who diagnosed me) that my C-section at age 29 was what triggered my Celiac. The sad thing is that I wasn't diagnosed until I was 49.

I had symptoms since childhood, actually, but felt better in my teens and early 20's (which I later found out it not uncommon).

Where do I find out more about going to remission as a teenager? I think that happened to me?

lizard00 Enthusiast
lizard00
Posted
No one will test us because the "research" shows that there is a low incidence of celiac disease among African-Americans.

You know, sometimes I am just ASTOUNDED at the ignorance of doctors. So because there's a low incidence, you MUST not have it. My first GI told me that "in order to have Celiac, you must carry the gene." (Inferring that I didn't carry the gene, although he never thought to test me for it.) Somebody needs to take a book to the side of their heads, maybe would learn something through osmosis. They obviously aren't keeping up on it...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748
    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.