Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Geographic Location

Guest Leidenschaft

By Guest Leidenschaft
in Coping with Celiac Disease

Recommended Posts

james233 Newbie
james233
Posted

I am from the middle of Michigan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 63
  • Created
  • Last Reply
KLTerry Apprentice
KLTerry
Posted

Here's my post. I'm checking to see if I have a signature. Hello all!

KLTerry Apprentice
KLTerry
Posted

Oh, wait! I don't like that font. This might be better.

KLTerry Apprentice
KLTerry
Posted

No! It looks the same. Oh well!

celiac3270 Collaborator
celiac3270
Posted

KL Terry,

First off, when you change your signature, it will update in every post...just so you know :). I think your problem is about not closing open tags. First, type whatever you want to say, then highlight whatever you want and make it a different color, change the font, etc. When you're done, it should say Open Tags: 0 at the top, where you can press B, I, U, FONT, SIZE, etc. Also, you could just click on the font, color, etc., type everything, then hit "close all tags" If you don't close the tag, then you see the writing the way it is right now, like this:

bklyn Enthusiast
bklyn
Posted

I'm in Ft. Lauderdale, Florida

Guest Viola
Guest Viola
Posted

Hello KKLYN and James 233. In order for your location to travel with you in all the posts you will need to Click on your "user name" and then Click on "My Controls", You can add your location in there and it will show up anywhere in this forum. Then when we are discussing food and restaurants, we will have an idea of where we are all at :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Maggie1956 Rookie
Maggie1956
Posted

:) Well I'm a bit further down south, and I don't mean Texas or Alabama!

I'm DOWN UNDER but not in the Outback.

Right on the Sunshine Coast of beautiful Queensland in the great land of OZ. ;):D

luvs2eat Collaborator
luvs2eat
Posted

I'm from eastern PA... not far from Philadelphia... about 10 miles from where George and the boys beat the crap out of those Hessians ... they renact it every Christmas day.

Did my new signature come thru? I am technology-challenged, to put it mildly!!

edited to add... woo-hoo!! It did!!

KLTerry Apprentice
KLTerry
Posted

Alrighty! Thanks for your help with my evergrowing inability to understand modern technology, despite my profession.

watkinson Apprentice
watkinson
Posted

I'm from Maryland near washington D.C. I'm pretty lucky because we have several stores with alot of gluten-free stuff. Even our major grocery store chain, GIANT sells alot of organic (and some gluten-free) items.

This idea sounds great, Wendy

cthtmsn Newbie
cthtmsn
Posted

I currently live in Orange County, California.

I am originally from Northern Virginia.

I have been gluten-free since June 2003.

Cathy

  • 3 months later...
Guest Viola
Guest Viola
Posted

Hello; Can we get this going again? I just read a couple of posts with a store name listed and a product line and I looked for the name of the area of the person posting and it wasn't there. It's so much easier if we can see where you are posting from, as there is little point in us looking for a certain store if it is in Austrailia, or the Southern US when we live in Canada. The same holds true if we Canadians post, the stores and products may not be in your location. :rolleyes:

In order for your location to travel with you in all the posts you will need to Click on your "user name" and then Click on "My Controls", You can add your location in there and it will show up anywhere in this forum. Then when we are discussing food and restaurants, we will have an idea of where we are all at . :D

Guest gfinnebraska
Guest gfinnebraska
Posted

Okay, Viola, I did it!! :) I think it is a great idea... I am always curious where I can find an item spoken about on here. :blink:

srdover Newbie
srdover
Posted

Very cool! I was wondering how everyone got their name and history to show up. I knew everyone couldn't be just retyping it over and over! :lol:

marycubs Rookie
marycubs
Posted

Okay - I think :blink: I updated my signature - I'm from central/upstate New York.

Guest Viola
Guest Viola
Posted

This is great Kimberly and Susan! Hopefully we can get everyone to do it, then we won't have to guess, or ask which area the product, or store is in :D

Guest Viola
Guest Viola
Posted

Good Job Mary, it worked just fine :lol:

Matilda Enthusiast
Matilda
Posted

------

Guest Eloisa
Guest Eloisa
Posted

I'm from Houston, Texas.

cdford Contributor
cdford
Posted

I'm in an area of West Georgia that used to be rural but has recently been designated an exurb (who knew that word even existed until recently???) of Atlanta. Best I can tell, an exurb is a little further out than a suburb but is not quite rural anymore.

tonyevans Newbie
tonyevans
Posted

Well, like Maggie, I'm a whole lot further South, in New Zealand B)

It doesn't worry me that I can't get the products that you talk about but it does give me ideas for the kinds of things I can adapt for myself and for things I can substitute for products that used to be part of my diet.

This is a little off this topic but I do wonder what kind of diets folks ate before they were diagnosed (particularly those diagnosed later in life). I mean wether you consider you ate a high fibre diet or if you were strong on fruits or strong on vegetables, sweet things or what?

Anyway keep posting and I'll keep reading.

We'll be in San Francisco, Edmonton, Toronto and Vancouver during late July and August, so I may be able to try some of the products you write about :lol:

Guest gfinnebraska
Guest gfinnebraska
Posted

tonyevans ~ I was never a big bread eater before discovering the celiac disease. I ate mostly fruit, salads, casseroles, tacos, meat, etc. Not big into the bread family. BUT, it has always amazed me all the things that have gluten that I use to LOVE to eat before... that has been my grief in this ordeal. Bread?? Don't miss it at all ~ except for raisin bread. LOVE that!! :)

UIDancer Apprentice
UIDancer
Posted

Chicago, IL here :) I'll get around to that signature some day!

jenvan Collaborator
jenvan
Posted

Indianapolis, IN... have it in my signature now. I'm trusting no one will start stalking me now... JK :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      6

      Severe severe mouth pain

      Oh, my dear! Get off that Fairlife chocolate protein shake! That's got milk in it! Egads! Some people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all. Reacting to Casein is not the same as lactose intolerance. Damaged villi are incapable of producing lactAse, the enzyme...
    2. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      6

      Severe severe mouth pain

      @Charlie1946, celiac disease damages the lining of the small bowel which is the part of the intestinal track where all our nutrition is absorbed. Celiac disease, therefore, often results in nutritional deficiency related health issues. In addition, you describe a diet that sounds largely devoid of fruits and vegetables and dairy (for calcium). This does not...
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      40

      My journey is it gluten or fiber?

      The Benfotiamine and thiamax need magnesium to make life sustaining enzymes. Yes, go ahead and take the Benfotiamine and Thiamax now and include the magnesium as soon as possible. Yes, take the magnesium at breakfast, too. I take my Benfotiamine and TTFD Thiamax and B Complex at the beginning of breakfast. I take the magnesium after I finish...
    4. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      6

      Severe severe mouth pain

      @knitty kitty thank you for replying so quickly! I have not done well at all taking vitamins or supplements, I have such a hard time swallowing even small pills, so I have resorted to crushing them and taking them with Gatorade. Pretty much I eat baked chicken tenders, Fairlife chocolate protein shakes, gluten free crackers. Thank you so much for the advice...
    5. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      6

      Severe severe mouth pain

      Hi, thank you for the quick reply! I was diagnosed about 5 years ago I think, I try to be extremely careful with what I eat so I don't get cross contamination. I used to get little sores in my mouth when I was little, usually from sucking on hard candy, but L-lisene would clear it right up. I got that Nasal Navage thing and used it twice and that's when...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748
    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Oh, my dear!  Get off that Fairlife chocolate protein shake!  That's got milk in it!  Egads! Some people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  If the villi grow back, they can resume making lactase again.   I react to casein and lactose both.  I get sores in my mouth and coated tongue, and inflammation, my Dermatitis Herpetiformis flares up, I get cold sores or shingles, and TMJ pain, well, joint pain in general, and my brain health is really affected, depression and anxiety.  So dairy is a really scary horror movie.     I take Benfotiamine and Thiamine TTFD  (tetrahydrofurfuryl disulfide).  These have anti-viral properties.   I've had chicken pox/shingles, and I also harbor the cold sore herpes virus which traveled to one eye through a nerve. It's broken now.  I had really bad nerve pain in my check at the time, then it turned into Bell's Palsy.  Thiamine TTFD helped clear up the dysphagia I was also experiencing then.  I took lots of Lysine to fight the herpes viruses as well.  Between the Thiamine TTFD and the Lysine, and avoiding dairy, mine stays dormant for the most part.   I also take a B Complex, and Magnesium Threonate to help the Thiamine TTFD work, Vitamin C, Vitamins A and D, and Zinc supplements to help Thiamine TTFD fight off those viruses. I have Sjogren's so I understand dry eye and mouth.  I found including Omega Threes, healthy fats, improved my problem.  You know how oil floats on top of water?  That's going on in our body, too.  Flaxseed oil supplements, and flaxseed oil to use on food is one way I increased my Omega Threes.  Choline and sunflower seed oil supplements are other choices I've tried.  Eat real food!  Eat fresh vegetables and fruit!  I had cooked stew in a crockpot until super mushy so I could chew and swallow it without lots of pain.  I got a bag of mandarin oranges, Cuties, whatever they're called now.  They're not too acidic.  Gluten free crackers don't have any nutritional value, no vitamins.   I followed the low histamine version of the Autoimmune Protocol Diet.  The book The Paleo Approach by Dr. Sarah Ballantyne has been most helpful.  She's a Celiac herself, and the diet has been shown to improve intestinal health. I have seen liquid vitamins on line.  Thiamine TTFD comes in a capsule, but tastes really strongly of garlic, so be prepared if your Gatorade tastes funny.   
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, celiac disease damages the lining of the small bowel which is the part of the intestinal track where all our nutrition is absorbed. Celiac disease, therefore, often results in nutritional deficiency related health issues. In addition, you describe a diet that sounds largely devoid of fruits and vegetables and dairy (for calcium). This does not bode well for good oral health or good health in general.  It can take two years or more for good healing of the lining of the small bowel after adopting a consistently gluten free diet. In the meantime, adding in good quality supplements can help compensate for poor nutritional absorption efficiency. Common over the counter vitamins and supplements are often optimized for shelf life rather than good assimilation/utilization by the body. We commonly recommend that those struggling with nutritional deficiencies start taking high potency B-complex, 5-10,000 IU of E daily, D3, Zinc and magnesium glycinate. They need to be checked to make sure they are gluten free since wheat starch can be used as a filler in pills and vitamins. Costco Kirkland Signature and Nature Made brands are often good choices. What is causing your swallowing problems? Is it the thrush?
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      The Benfotiamine and thiamax need magnesium to make life sustaining enzymes.  Yes, go ahead and take the Benfotiamine and Thiamax now and include the magnesium as soon as possible.   Yes, take the magnesium at breakfast, too.   I take my Benfotiamine and TTFD Thiamax and B Complex  at the beginning of breakfast.  I take the magnesium after I finish eating breakfast.  Yes, I take NeuroMag.  
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty thank you for replying so quickly! I have not done well at all taking vitamins or supplements, I have such a hard time swallowing even small pills, so I have resorted to crushing them and taking them with Gatorade.  Pretty much I eat baked chicken tenders, Fairlife chocolate protein shakes, gluten free crackers. Thank you so much for the advice, I will try it all for sure, because everything I have tried OTC has done nothing 
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      Hi, thank you for the quick reply! I was diagnosed about 5 years ago I think,  I try to be extremely careful with what I eat so I don't get cross contamination. I used to get little sores in my mouth when I was little, usually from sucking on hard candy, but L-lisene would clear it right up. I got that Nasal Navage thing and used it twice and that's when I thought I had a sinus infection. So I got a z pack. Then I noticed my tongue was coated and it was white except right down the middle which was more brown and crusty, like the corners of my mouth. I also have dry mouth and I went way too long before I started treating it. So then I had some kind of huge pill and Nystatin mouthwash. My mother in law's new husband ( they live upstairs) started complaining of exactly the same symptoms as me. He went to urgent care, they said it wasn't thrush, it was shingles. We both went to our dentist's for cleanings, I don't have insurance so I really couldn't tell they cleaned my teeth at all. But she said my mouth looked good, all cleared up. I had a day and a half of no pain and then it came right back. So I got more pills and miracle mouthwash. There are times it feels like dry socket and times it feels like it's bleeding but it's not. I don't see any gum or facial swelling, I did see a couple of tiny ulcers on my bottom lip, roof of my mouth is still sore, and my tongue and cheeks are still a little coated. I am just at a loss. My mother in law's husband, they  took swabs and called back a week later and said it was a new herpes variant virus that is going around but not contagious. He was cured after a week! And I'm going on 3 months 😭
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.