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james233 Newbie

I am from the middle of Michigan


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  • Replies 63
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KLTerry Apprentice

Here's my post. I'm checking to see if I have a signature. Hello all!

KLTerry Apprentice

Oh, wait! I don't like that font. This might be better.

KLTerry Apprentice

No! It looks the same. Oh well!

celiac3270 Collaborator

KL Terry,

First off, when you change your signature, it will update in every post...just so you know :). I think your problem is about not closing open tags. First, type whatever you want to say, then highlight whatever you want and make it a different color, change the font, etc. When you're done, it should say Open Tags: 0 at the top, where you can press B, I, U, FONT, SIZE, etc. Also, you could just click on the font, color, etc., type everything, then hit "close all tags" If you don't close the tag, then you see the writing the way it is right now, like this:

bklyn Enthusiast

I'm in Ft. Lauderdale, Florida

Guest Viola

Hello KKLYN and James 233. In order for your location to travel with you in all the posts you will need to Click on your "user name" and then Click on "My Controls", You can add your location in there and it will show up anywhere in this forum. Then when we are discussing food and restaurants, we will have an idea of where we are all at :P


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Maggie1956 Rookie

:) Well I'm a bit further down south, and I don't mean Texas or Alabama!

I'm DOWN UNDER but not in the Outback.

Right on the Sunshine Coast of beautiful Queensland in the great land of OZ. ;):D

luvs2eat Collaborator

I'm from eastern PA... not far from Philadelphia... about 10 miles from where George and the boys beat the crap out of those Hessians ... they renact it every Christmas day.

Did my new signature come thru? I am technology-challenged, to put it mildly!!

edited to add... woo-hoo!! It did!!

KLTerry Apprentice

Alrighty! Thanks for your help with my evergrowing inability to understand modern technology, despite my profession.

watkinson Apprentice

I'm from Maryland near washington D.C. I'm pretty lucky because we have several stores with alot of gluten-free stuff. Even our major grocery store chain, GIANT sells alot of organic (and some gluten-free) items.

This idea sounds great, Wendy

cthtmsn Newbie

I currently live in Orange County, California.

I am originally from Northern Virginia.

I have been gluten-free since June 2003.

Cathy

  • 3 months later...
Guest Viola

Hello; Can we get this going again? I just read a couple of posts with a store name listed and a product line and I looked for the name of the area of the person posting and it wasn't there. It's so much easier if we can see where you are posting from, as there is little point in us looking for a certain store if it is in Austrailia, or the Southern US when we live in Canada. The same holds true if we Canadians post, the stores and products may not be in your location. :rolleyes:

In order for your location to travel with you in all the posts you will need to Click on your "user name" and then Click on "My Controls", You can add your location in there and it will show up anywhere in this forum. Then when we are discussing food and restaurants, we will have an idea of where we are all at . :D

Guest gfinnebraska

Okay, Viola, I did it!! :) I think it is a great idea... I am always curious where I can find an item spoken about on here. :blink:

srdover Newbie

Very cool! I was wondering how everyone got their name and history to show up. I knew everyone couldn't be just retyping it over and over! :lol:

marycubs Rookie

Okay - I think :blink: I updated my signature - I'm from central/upstate New York.

Guest Viola

This is great Kimberly and Susan! Hopefully we can get everyone to do it, then we won't have to guess, or ask which area the product, or store is in :D

Guest Viola

Good Job Mary, it worked just fine :lol:

Matilda Enthusiast

------

Guest Eloisa

I'm from Houston, Texas.

cdford Contributor

I'm in an area of West Georgia that used to be rural but has recently been designated an exurb (who knew that word even existed until recently???) of Atlanta. Best I can tell, an exurb is a little further out than a suburb but is not quite rural anymore.

tonyevans Newbie

Well, like Maggie, I'm a whole lot further South, in New Zealand B)

It doesn't worry me that I can't get the products that you talk about but it does give me ideas for the kinds of things I can adapt for myself and for things I can substitute for products that used to be part of my diet.

This is a little off this topic but I do wonder what kind of diets folks ate before they were diagnosed (particularly those diagnosed later in life). I mean wether you consider you ate a high fibre diet or if you were strong on fruits or strong on vegetables, sweet things or what?

Anyway keep posting and I'll keep reading.

We'll be in San Francisco, Edmonton, Toronto and Vancouver during late July and August, so I may be able to try some of the products you write about :lol:

Guest gfinnebraska

tonyevans ~ I was never a big bread eater before discovering the celiac disease. I ate mostly fruit, salads, casseroles, tacos, meat, etc. Not big into the bread family. BUT, it has always amazed me all the things that have gluten that I use to LOVE to eat before... that has been my grief in this ordeal. Bread?? Don't miss it at all ~ except for raisin bread. LOVE that!! :)

UIDancer Apprentice

Chicago, IL here :) I'll get around to that signature some day!

jenvan Collaborator

Indianapolis, IN... have it in my signature now. I'm trusting no one will start stalking me now... JK :lol:

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    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
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