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slmprofesseur

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slmprofesseur Apprentice

DH and i are considering a little one. The questions is what supplements/vitamins did anyone take? I will probably go a few rounds with the OB about going gluten free but my last pregnancy was a disaster. I want to make sure I have some great Gluten-free vitamins and a enough folic acid.

Thanks!


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Cherry Tart Apprentice

Hi!

I suggest Nature Made pre-natals. They are labeled gluten-free on the back! You can get them at Target for a good price :)

slmprofesseur Apprentice

Thanks! I am going to Target today!

HiDee Rookie

ONESOURCE brand pre-natals are also labeled gluten free and can be found at Wal-Mart.

I wonder why your OB would make a big deal about you being gluten free? It's not that unheard of and based on your signature info, you seem to be doing so well on the diet. I can't think of anything about being pregnant that would require you to ingest gluten! In fact for me, it's the opposite, the more protein I eat, the better I do. None of this saltine cracker business for me that everyone else seems to be so dependent on. I have to have protein snacks every few hours or I throw up. And fruit! That has been my big craving all throughout this pregnancy. I'm sure you'll be just fine and you probably don't even need to bring it up with the doctor.

slmprofesseur Apprentice

I have no idea what's up with the ob. I am just not listening to them anymore. My last pregnancy got very complicated due to asthma, caused by reflux, and intrauterine growth retardation. I just won't mention being Gluten-free anymore.

cloesb Newbie

if it makes you feel better i just finished pregnancy #2 and it was completely different than my 1st which was also a HUGE disaster due to gluten...i was strict about the diet and called Dr. Peter Green (my md) at Columbia as soon as the test came back positive. he said and his nutritionist both said the same thing 1) gluten-free diet 2) freeda prenatal vitamins which you can order online 3) freeda calcium supplements 4) high fiber diet - buy some flax meal and add it to cereal or yogurt as much as you can....otherwise don't worry about the rest.

btw - i was contaminated once or twice during the pregnancy and freaked out .... but nothing happened and i and the baby were completely ok.

  • 4 weeks later...
MinRalph Rookie

I was just reading through the resposes on here and wanted to thank you for yours. I had a VERY complicated pregnancy that ended in disaster. I was ingesting gluten (unknowingly) at the time and was sick from day one. It's soooo reassuring to hear that soemone else had a bad experience with their 1st pregnancy, but a great 2nd. Thank you so much for adding what the doc said in there, too.

~Melinda~


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slmprofesseur Apprentice
if it makes you feel better i just finished pregnancy #2 and it was completely different than my 1st which was also a HUGE disaster due to gluten...i was strict about the diet and called Dr. Peter Green (my md) at Columbia as soon as the test came back positive. he said and his nutritionist both said the same thing 1) gluten-free diet 2) freeda prenatal vitamins which you can order online 3) freeda calcium supplements 4) high fiber diet - buy some flax meal and add it to cereal or yogurt as much as you can....otherwise don't worry about the rest.

btw - i was contaminated once or twice during the pregnancy and freaked out .... but nothing happened and i and the baby were completely ok.

Fiber no problem, I love to eat beans and I always have fruit on hand. As for the vitamins, did the iron upset your stomach? Did you have any constipation problems?

My doc suggested that it - gluten sensitivity was in my head. I was always in his office with various gastrointestinal ailments, asthma, etc. I don't think the doctors will even listen to me.

Also, this is thinking really far ahead but....how did the hospital stay go with being on a Gluten-free diet?

HiDee Rookie
Also, this is thinking really far ahead but....how did the hospital stay go with being on a Gluten-free diet?

Every hospital has a dietician that works with the patients and cafeteria. I'm due in a few weeks and have been meaning to call the hospital. Just call and talk to the dietician or make an appt. to see him/her about the hospital food. They work with tons of patients and are used to working with special diets. But just in case, bring lots of snacks like rice cakes and peanut butter or what-not. When my daughter was in the hospital overnight she was able to have fruit and eggs and yogurt and things like that in the morning. She wasn't in long enough for later meals but I imagine they should have plain rice, vegetables and meats and things that are also fine.

As for your other questions, iron never bothered me but I think you can get prescription prenatals without the iron if it bothers you and just try to get it from your food. With the constipation I have been trying to eat as much fruit and fiber and water as possible but I still take metamucil (regular, orange, smooth is gluten free) once a day to keep things going.

slmprofesseur Apprentice

Thanks HiDee! I am really excited about baby #3... I just want to have a safe, uneventful, healthy pregnancy.

BTw, are you having a boy or a girl?

slmprofesseur Apprentice

Thanks HiDee! I am really excited about baby #3... I just want to have a safe, uneventful, healthy pregnancy.

BTw, are you having a boy or a girl?

HiDee Rookie
Thanks HiDee! I am really excited about baby #3... I just want to have a safe, uneventful, healthy pregnancy.

BTw, are you having a boy or a girl?

I'm having a boy, baby #2. Have you found out yet? I'm sure you'll be fine, especially since you are being very proactive about it. Other than being super huge right now and really uncomfortable, this pregnancy has been rather uneventful for me. I wasn't on a gluten-free diet with my first and that pregnancy was fine, the difference this time is that I've had less nausea with this pregnancy but pretty much everything else seemed about the same.

slmprofesseur Apprentice

I am still waiting on the EPT results lol. I have to plan for a due date at the end of the school year. I don't have very many sick days because I have been so ill all 8 years I have been teaching. (We get 10 days each school year.)

Last year I went Gluten-free and for the first time I have *8* sick days to carry over to this year! So we shall see....

powderprincess Rookie
Also, this is thinking really far ahead but....how did the hospital stay go with being on a Gluten-free diet?

I just had my baby boy 3 weeks ago. The hospital was awesome and didn't kill me. I planned on alternative food sources and people bringing me food, but we didn't need it. They had gluten-free bread. I was nervous because it was toasted and asked if it was toasted in the regular toaster, they checked and said it was done separately. I'm vegan, too, and I had plenty to eat, veggies, potato, fruit, hummus. It was a good time.

Lockheed Apprentice

I was on GNC prenatal - iron free (I just bulked up on my red meats and eggs) but switched to the nature made recently because the GNCs still make me yack even though I'm not pregnant anymore. I ate a ton of fruit for folic acid and the now gluten free chex have folic acid so that would be a good snack during the day. My main issue was that I *HAD* to eat every two hours or I got nauseated. I guess gluten free foods just don't stick with you as long when you're burning through calories like that. or maybe that's not just a gluten-free issue.

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    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
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