Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Free Of Foods Growing In Number


ShayFL

Recommended Posts

ShayFL Enthusiast

I like to see articles that bring awareness. So hope "gluten" gets added to the list of foods that manufacturers must disclose. There is one line about how many people only "think" they have an intolerance and that for them it is a "lifestyle choice" to eat foods free of certain ingredients. Dont agree with that. Who would choose this lifestyle? But other than that.....

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I thought that was a great article. Gluten free by choice or medical need, brings awareness and change. Change is good.

dollamasgetceliac? Explorer

Thank you, I thought that was a great article. I spent the whole day shopping yesturday reading labels checking lists , somethings were good like the Enjoy life Nut and Gluten free food bars thank God it did not have Honey so that is one thing I can just keep in my purse and move on, what really bothered me is that i got exhausted at the end of the day and could not understand why I can't buy Iodized Salt? I know there is a thread about that somewhere , and then another question I had was that why was there say 6 differant kinds of Olive Oil and only one was gluten-free? same with rice?

And why is it not mandetory to write ( processed in a facility that may contain Wheat or Soy). And Celiac disease is a Handicap so it should be mandetory to list it on every item. I mean it is poisen after all to so many people then it should be listed in clear Bold letters. I hope this thread picks up and some things will change quickly, because I really am tired of shopping. I noticed that one rice brand had there gluten-free logo integrated in the design so tactfully that it took 2 people to help me find the golden words.

I actually treid shopping online since the gluten-free is new to me, so I typed in all the foods that I am allergic to and gluten-free it came out with baby wipes. I wonder what that tastes like :huh:

ShayFL Enthusiast
I actually treid shopping online since the gluten-free is new to me, so I typed in all the foods that I am allergic to and gluten-free it came out with baby wipes. I wonder what that tastes like :huh:

That made me laugh. And I needed it!!

Yes, look at my signature. And Ive also just cut citrus for a trial. But I am eating well. I cannot complain. Well I could. But tonight it is homemade meatballs with a new pasta sauce I found that is Nightshade free and rice pasta. Yummy!!

ravenwoodglass Mentor
why I can't buy Iodized Salt?

Iodized salt is only a problem if you have DH, the skin form of celiac. The iodine in the salt, and for those with DH even fish that is high in it, can cause an outbreak of DH. The oldfashioned way of diagnosing DH was to put iodine on the skin, bandage it and wait to see if the rash appeared. I don't know the exact physiological reason why DH is activated by iodine but it seems to activate the antibodies that get deposited in our dermis. Those of us with the itchy oozy painful rash need to avoid iodine until the antibodies clear the skin. This can take up to 2 years. After that some of us may be able to tolerate it.

kbtoyssni Contributor
There is one line about how many people only "think" they have an intolerance and that for them it is a "lifestyle choice" to eat foods free of certain ingredients. Dont agree with that. Who would choose this lifestyle?

They might be referring to people who don't have an official medical diagnosis. That would include people like me who have a very obvious positive dietary response and will never eat gluten again because I like being able to get out of bed every morning and live my life, but I did technically "choose" this lifestyle rather than have a doctor tell me to go gluten-free.

dollamasgetceliac? Explorer
They might be referring to people who don't have an official medical diagnosis. That would include people like me who have a very obvious positive dietary response and will never eat gluten again because I like being able to get out of bed every morning and live my life, but I did technically "choose" this lifestyle rather than have a doctor tell me to go gluten-free.

:lol: I like to get out of bed too :lol: I think that a person knows there body pretty well, I mean you live in that body 24/7 so you know most likely what to avoid. If a food makes me so sick that I feel like staying in bed all day , that is bad. My allergist said: avoid the foods that are causing you to get hives and make you feel sick, he said never mind that the blood test all turned out negative.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

I guess saying "lifestyle choice" makes it sound like something you want to do. And to me that is what the article made it sound like. It lends credence to all of those people that think we are just being "picky" and that there isnt really anything wrong with us. We are just "choosing" to be different. Choosing to avoid something that makes you so sick you cant get out of bed, doesnt seem like a choice at all to me. :(

Lisa Mentor

"I had was that why was there say 6 differant kinds of Olive Oil and only one was gluten-free? same with rice?"

I have never seen an olive oil that contained gluten and rice as well (except Rice-A-Roni - obviously)

This quote jumped out at me. I am not sure where you are shopping, but if you look for foods that are labeled "gluten free", I am afraid that you might starve to death. :rolleyes:

The key to shopping well and eating well is the ability to read labels effectively. With your additional food allergies, I would think it would be a must.

It does take time to learn and in no time, it will become second nature.

dollamasgetceliac? Explorer

I think that some companies make say rice Pilaf or whatever so they share the same facility that has wheat = Gluten . Then for example I saw that some Gorbanzo beans were shared in a facility that uses Shellfish I imagine that they do not want to run the risk of getting sued. Many times I have called a company that sells an item and they have said that their facility does not share with nuts and a few months later their label changed stating" this product is made in a facility that is shared on equipment that has peanuts and treenuts"

The thing is that there is no law that says that they have to say that but now they are getting scared so they are. The food Allergy Epidemic was on the cover of News Week last year, they covered 4 pages.

ShayFL Enthusiast

And they should say. So I hope they stay scared. I realize that they cannot list every possible allergen/sensitivity. But EVERY ONE of them (food manufacturers) should have to list: Gluten/Wheat/Soy/Dairy/TreeNuts/Peanuts/Eggs/Corn/shellfish

These are the big offenders.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,947
    • Most Online (within 30 mins)
      7,748

    Sinch23
    Newest Member
    Sinch23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.