Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Bloating And Cramping After Glutten Free For 7 Weeks

minnow

By minnow
in Coping with Celiac Disease

Recommended Posts

minnow Newbie
minnow
Posted

Can anyone offer me advice on how long it took or takes to feel much better after being diagonosed with celiac. I was diagnosed approx 7 weeks ago and have tried to be very deligent about being gluten free. I felt immediately better the first 2 weeks then I believe I was contaminated somehow and was very sick for 3 days. Felt better againbut now am experiencing bloating and cramping again almost like before I began the gluten free diet. My Father got tested and has all the genetic markers for celiac and many many signs but refuses to admit he has celiac. My whole family that is parents brothers and sister have been very unsupportive almost angry that I was diagnosed. My own family has been the opposite my husband and 4 kids have been great they just forget like I do and it is hard to change your whole life after 45 years. Anyway, is it normal to feel better then worse and will the bloating and cramps ever go away? I can't really rmember what it feels like to not have pain in your stomach. I worry about cancer or something worse but my Dr. did the blood test for c ancer a cat scan and ultrasound so I quess I am covered. Any help in any of these questions would be sooo appreciated. I just don't know anyone who can say to me oh that is normal and this might happen but hang in there or something encouraging. Also my Fathers mother my grandmother has been anemic her whole life and for the past year has been losing weight and has to have blood transfusions every month. They have tested her for everything and can't find anything wrong. She has also broken several bones this year. She has always had stomach problems and they won't test her for celieac. Everyone acts as if I have done or said something wrong and I am the strange weird one. Sorry for the ramble but please help.........

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


YoloGx Rookie
YoloGx
Posted

I was just reading that massive doses of pro-biotic bacteria does a lot to heal celiac. If you can get the enteric coated ones and make sure they have a number of strains. Also eating kefir or yogurt if you can tolerate them might help and/or cultured live sauerkraut.

Bromelain/papain caps and pancreatin digestive enzymes could really help too.

I have found taking marshmallow root and/or slippery elm will also help heal reduce inflammation and soothe the lining of the gut.

Using Dandelion root or milk thistle caps would be good too. Avoid tinctures due to the alcohol.

Consider too you might be encountering more hidden glutens. Or having more food sensitivity problems to other things.

Bea

curlyfries Contributor
curlyfries
Posted

Have you eliminated dairy? I, too, started feeling good at first then got worse again. Many celiac's can't handle dairy until they have had plenty of time to heal. For me, it felt just the same as being glutened.

Keep a food journal and keep reading this forum. When I first started, I read tons of old threads. The ones with "newbie" in the title would be a good start.

Hang in there.....it'll get better ;)

Lisa

ShayFL Enthusiast
ShayFL
Posted

I can tell you that you are not alone. I am around 8 weeks in and I have ups and downs. Had a really bad week last, but feeling pretty good today. And no migraines in the last 6 weeks!!! Yeah!!!

Hang in there....it is normal to not heal on a constant incline.

minnow Newbie
minnow
Posted
  • Author
I can tell you that you are not alone. I am around 8 weeks in and I have ups and downs. Had a really bad week last, but feeling pretty good today. And no migraines in the last 6 weeks!!! Yeah!!!

Hang in there....it is normal to not heal on a constant incline.

Thanks for your encouragement. I am trying to be positive it is soo unknown waters I am going all alone it is hard to know what is normal. thanks again Mindy :)

minnow Newbie
minnow
Posted
  • Author
I was just reading that massive doses of pro-biotic bacteria does a lot to heal celiac. If you can get the enteric coated ones and make sure they have a number of strains. Also eating kefir or yogurt if you can tolerate them might help and/or cultured live sauerkraut.

Bromelain/papain caps and pancreatin digestive enzymes could really help too.

I have found taking marshmallow root and/or slippery elm will also help heal reduce inflammation and soothe the lining of the gut.

Using Dandelion root or milk thistle caps would be good too. Avoid tinctures due to the alcohol.

Consider too you might be encountering more hidden glutens. Or having more food sensitivity problems to other things.

Bea

Thanks for your advice where should I order the digestive enzymes and probiotics? Is there a web site. Do yoiu have to do this for the rest of your life??? Or do you heal eventually. How long have you been well and how long did it take? Thanks so much for you help. Mindy :)

minnow Newbie
minnow
Posted
  • Author
Have you eliminated dairy? I, too, started feeling good at first then got worse again. Many celiac's can't handle dairy until they have had plenty of time to heal. For me, it felt just the same as being glutened.

Keep a food journal and keep reading this forum. When I first started, I read tons of old threads. The ones with "newbie" in the title would be a good start.

Hang in there.....it'll get better ;)

Lisa

Thanks for the info I love cheese soo much but I had gotten off dairy before I was diagnosed but went back on when I was diagnosed so I guess it could be a problem. How long have you been well since you wwere diagnosed?? THanks for any advice and help. Mindy :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


katebuggie28 Apprentice
katebuggie28
Posted

Since I have been gluten-free I have been very careful, but I have to do foods one at a time. I am now intolerent to corn, beef and tomato sauces (not tomatoes alone) If I eat any of those things I get cramps etc... I have also found that I can eat american cheese, but not white american. Try ground turkey meat, chicken, fish, potatoes and rice for awhile to see if it gets better. When I first started I thought I was going to starve to death. :) Now anytime I try a new food, and I tolerate it well I get excited! Good luck.

minnow Newbie
minnow
Posted
  • Author

How long have you been celiac??? How long did it take untill you were cramp and bloating free?? I am going to try the strict veggies meat thing. What about yogurt cheese is that ok? It just seems like there is not much to eat??? thanks for all your help.. Mindy :)

celiacker Rookie
celiacker
Posted

Mindy, I was diagnosed with Celiac in April and also found I still had the SAME PROBLEMS! I stopped eating dairy -- though I sneak in trace amounts for the milk in my coffee and tea.

It's made a huge difference, and I also added those enzymes, which I bought from Vitamin Shoppe (GNC also sells many kinds). I bought a Canadian kind that has several enzymes in one pill. I take them twice a day.

If I eliminate dairy from my diet entirely, my digestive system is a calm, placid lake. My doctor advised I stay off dairy for the next couple of months so the villi heal. They were quite damaged, according to the endoscopy.

I used to be disgusted by the idea of soymilk, but Silk's unflavored, unsweetened (green carton) soy milk is delicious.

Haven't noticed whether eggs or cheese really affect me - they aren't composed the way milk and yoghurt are. Milk and yoghurt are the worst for me.

Good luck!

Liz

YoloGx Rookie
YoloGx
Posted

"Milk and yoghurt are the worst for me."

Shows everyone is different. I can handle nonfat organic yogurt but not any other milk, cultured cheeses or whatever.

Am glad to hear that the enzymes are really helping you. Are you taking pro-biotics too?

Anyone here who also has to avoid all tocopherols in hand creams, soaps, lipstick etc.?? By avoiding them I no longer have the body aches and pains, headaches and strained tendons etc. I used to have. Now I can dig in my garden and just get tired--but no aching joints and no bunched hip and back muscles and no headaches!! Instead of going on 59 I feel like I am going on 39, if not younger.

Bea

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,429
    • Most Online (within 30 mins)
      7,748
    twin68grcom
    Newest Member
    twin68grcom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      Collecting all possibly related lab work?

      By catnapt · Posted

      I've got some lab work results going back to 2010, various MRIs and CT scans and ultrasounds. I discovered two things that MIGHT be of interest to the GI doc tell me what you think? one is the results to an abdominal CT scan with contrast in 2013 that includes this:  "there is some thickening seen in the second and third portions of the duodenum"    Since this CT scan was for left lower quad pain, it was not followed up on   Then in May of 2024 I saw a foot specialist for problems with my feet. Some of that pain is due to a very obvious deformity of both of my legs- the right worse than the left. The dr suggested that my symptoms sounded like an auto immune condition (???) and I thought he was nuts but he ordered some lab work- it came back negative except for a weak positive on one test HLA-B27 and there was a follow up test recommended but that was never ordered and this dr gave me a useless Rx for custom insoles which he refused to address - and my calls to his office were never returned.   At that time I was having all over joint pains, plus some numbness in my feet (also stiffness) and some burning pain in my toes- esp the big toe on the right foot (the more deformed side of my body)   The last time I was eating any appreciable amount of gluten containing foods was in the period of Nov 2024 to around sometime in the summer of 2024. I regularly ate a barley soup that I loved and had subs and pizza and toast etc. I was no longer eating wheat pasta, had already switched to brown rice pasta but otherwise I had not yet made a clear connection between what I was calling 'refined grain products' and any symptoms that I had. And the symptoms were vague and could be attributed to other things.   I was referred to a neurologist in late 2023 for symptoms  of confusion/disorientation, that included loss of balance that I attributed, in part, to the inability to feel where my feet were. Some symptoms such as high spikes in blood pressure (some close to 200 over 100! scary stuff) were later determined to be due to covid or long covid (also had loss of sense of smell and taste)    I had periods of dizziness that did NOT include any spinning sensations, it was more of a feeling of lightheadedness as if my mind would go blank- very strange, never really got any answers about that but that eventually went away so not worried about that   WHAT OTHER THINGS from my past records might be good for the GI dr to know? I had my very first Vit D test done in 2023 and it was low at 23, supplements have gotten that up in the range of adequate but values varied up and down... most recent test was Nov 2025 and it was 45ish I think. That's on a min of 5000Ius per day (there are some fortified foods I eat sometimes that have added vit D)   I thought my serum calcium ran on the low side but it turns out that the reference ranges have changed for the labs that I use- one changed their RR back around er, 2014 I think? so I have no clue how to compare the results before and after those changes   calcium has never been below normal and most of my blood work looks "normal" except during illness or other issues like if I'm in afib- blood work looks insane LOL    I don't know what to make of all this but it sure will be nice to get some answers!         
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      just a few days off of that drug and my digestive system is finally getting back to normal stopping the gluten challenge was not enough to get back to normal, I was still horribly constipated with what seemed like a paralyzed digestive track- nothing was moving! but now, with a few mag citrate capsules that I had to order online and stopping the chlorthalidone, things are getting back to my usual "working well" digestion   so it's clear that the symptoms I had during the gluten challenge were compounded by the new med that was started the same day (I feel like the Dr really should have known better than to do those two things at the same time, add a new drug and start a new diet protocol... but I'm just the patient, what do I  know, right?)   I am going to do another 24 hr urine in a few weeks to see if lowering the dose of vit D gets my urine calcium down to a more tolerable level. that's the plan.  hope it works.  
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Keep it up.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oh geez!! i made a whole long detailed post and it didn't save it   I give up grrrrrrrrrrr  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I'm not delaying my recovery- I was well on my way to recovering, IF I do have celiac disease by listening to my body and not eating the foods that made me feel ill. the drug I just stopped taking was making me incredibly ill and it's unfortunate and more than  a little frustrating that the dr  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.