Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Taste And Blurry Vision


donnal

Recommended Posts

donnal Apprentice

I've been gluten-free since mid-april and have noticed that a taste in my mouth, which would always be there after I ate but much worse after breads or ice creams, has gone since I've been gluten-free! I would actually have to brush my teeth or chew mint gum (couldn't handle mint candies) to try to get rid of it. I had asked my GI doc a couple of times over the years as well as my GP and they had no answer (my lactose breath test came back OK as did my EGD--no biop--and blood work so they had no test results to go on).

Another interesting improvement has been my vision. For about 2 yrs it has been blurry to varying degrees and I even had my lenses changed twice, which didn't help a bit. I was starting to be concerned lest I has early-stage, mild MS (my mom had severe MS, ending up bedfast) but whenever I am strictly gluten-free (sometimes--not often!--I imbibe or have unknowns, since I seem to be sensitive and not "true" intolerant/celiac) it is amazingly better. So I was just wondering if anyone else has noticed that sort of thing. Incidentally, one of the things driving me to be gluten-free, along with the bowel issues (labeled by docs as IBS-C) was that my mom had that autoimmune disease and my dad is a heart patient (inflammatory process) so it seems prudent, since there are so many other good grains/legumes, to go gluten-free and maybe avoide those family "inheritences"?

By the way, my choesterol is high--will gluten-free eventually help with that? I am talking total being around 250 and HDL only 50--I am thin and quite active and overall try to eat healthily (am actually a cardiac rehab nurse, ironically). Thanks for any input. I'm almost 55 y/o if that has any bearing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I did also notice an improvement in vision, in the one eye which needed it. Plus I think it has some relation to my B12 supplement.

As for the cholesterol, Google homocysteine, and that should lead you to some information which may help. One thing you'll read about is how methylcobalamin (B12) and folic acid help bring homocysteine down, which in turn relieves the stress on the liver (which produces cholesterol in response to elevated homocysteine). Also, I've read cinnamon has been found to lower cholesterol, and it is suggested to use 1/2 tsp of cinnamon to make a cup of tea, twice daily. Obviously, if you can avoid sugar, that would help, so I'd recommend Open Original Shared Link instead. I like the pure powder, and use it as my only sweetener.

HTH

veggienft Rookie
I've been gluten-free since mid-april and have noticed that a taste in my mouth, which would always be there after I ate but much worse after breads or ice creams, has gone since I've been gluten-free! I would actually have to brush my teeth or chew mint gum (couldn't handle mint candies) to try to get rid of it. I had asked my GI doc a couple of times over the years as well as my GP and they had no answer (my lactose breath test came back OK as did my EGD--no biop--and blood work so they had no test results to go on).

Another interesting improvement has been my vision. For about 2 yrs it has been blurry to varying degrees and I even had my lenses changed twice, which didn't help a bit. I was starting to be concerned lest I has early-stage, mild MS (my mom had severe MS, ending up bedfast) but whenever I am strictly gluten-free (sometimes--not often!--I imbibe or have unknowns, since I seem to be sensitive and not "true" intolerant/celiac) it is amazingly better. So I was just wondering if anyone else has noticed that sort of thing. Incidentally, one of the things driving me to be gluten-free, along with the bowel issues (labeled by docs as IBS-C) was that my mom had that autoimmune disease and my dad is a heart patient (inflammatory process) so it seems prudent, since there are so many other good grains/legumes, to go gluten-free and maybe avoide those family "inheritences"?

By the way, my choesterol is high--will gluten-free eventually help with that? I am talking total being around 250 and HDL only 50--I am thin and quite active and overall try to eat healthily (am actually a cardiac rehab nurse, ironically). Thanks for any input. I'm almost 55 y/o if that has any bearing.

Describe the taste. I used to get a breath smell. It smelled like when I've caught whiffs of chlorine and ammonia ......ammonium chloride, a deadly combination.

I also had blurred vision. It went away with my diet. But my diet eliminates gluten, raw milk, sweets, fruit, chlorine and (thanks to contributors here) nightshades.

..

donnal Apprentice

Well, it's hard to describe the taste--I'd often say it was like a rat crawled up and died in my mouth (but can't speak from experience, having never had that happen :D )--my husb said my breath didn't smell "that bad" but it was really nauseating to me. Like old food, or something. Not really a sour taste, more like spoiled. Does that ring a bell?

Nancym Enthusiast

You might want to get checked for diabetes. It can affect eye sight and the bad taste could be ketosis.

ShayFL Enthusiast

Acetone breath I believe they call it. Diabetes breath.

donnal Apprentice

I always am on the low end of normal for glucose checks--have been as low as 64!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.