Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Taste And Blurry Vision


donnal

Recommended Posts

donnal Apprentice

I've been gluten-free since mid-april and have noticed that a taste in my mouth, which would always be there after I ate but much worse after breads or ice creams, has gone since I've been gluten-free! I would actually have to brush my teeth or chew mint gum (couldn't handle mint candies) to try to get rid of it. I had asked my GI doc a couple of times over the years as well as my GP and they had no answer (my lactose breath test came back OK as did my EGD--no biop--and blood work so they had no test results to go on).

Another interesting improvement has been my vision. For about 2 yrs it has been blurry to varying degrees and I even had my lenses changed twice, which didn't help a bit. I was starting to be concerned lest I has early-stage, mild MS (my mom had severe MS, ending up bedfast) but whenever I am strictly gluten-free (sometimes--not often!--I imbibe or have unknowns, since I seem to be sensitive and not "true" intolerant/celiac) it is amazingly better. So I was just wondering if anyone else has noticed that sort of thing. Incidentally, one of the things driving me to be gluten-free, along with the bowel issues (labeled by docs as IBS-C) was that my mom had that autoimmune disease and my dad is a heart patient (inflammatory process) so it seems prudent, since there are so many other good grains/legumes, to go gluten-free and maybe avoide those family "inheritences"?

By the way, my choesterol is high--will gluten-free eventually help with that? I am talking total being around 250 and HDL only 50--I am thin and quite active and overall try to eat healthily (am actually a cardiac rehab nurse, ironically). Thanks for any input. I'm almost 55 y/o if that has any bearing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I did also notice an improvement in vision, in the one eye which needed it. Plus I think it has some relation to my B12 supplement.

As for the cholesterol, Google homocysteine, and that should lead you to some information which may help. One thing you'll read about is how methylcobalamin (B12) and folic acid help bring homocysteine down, which in turn relieves the stress on the liver (which produces cholesterol in response to elevated homocysteine). Also, I've read cinnamon has been found to lower cholesterol, and it is suggested to use 1/2 tsp of cinnamon to make a cup of tea, twice daily. Obviously, if you can avoid sugar, that would help, so I'd recommend Open Original Shared Link instead. I like the pure powder, and use it as my only sweetener.

HTH

veggienft Rookie
I've been gluten-free since mid-april and have noticed that a taste in my mouth, which would always be there after I ate but much worse after breads or ice creams, has gone since I've been gluten-free! I would actually have to brush my teeth or chew mint gum (couldn't handle mint candies) to try to get rid of it. I had asked my GI doc a couple of times over the years as well as my GP and they had no answer (my lactose breath test came back OK as did my EGD--no biop--and blood work so they had no test results to go on).

Another interesting improvement has been my vision. For about 2 yrs it has been blurry to varying degrees and I even had my lenses changed twice, which didn't help a bit. I was starting to be concerned lest I has early-stage, mild MS (my mom had severe MS, ending up bedfast) but whenever I am strictly gluten-free (sometimes--not often!--I imbibe or have unknowns, since I seem to be sensitive and not "true" intolerant/celiac) it is amazingly better. So I was just wondering if anyone else has noticed that sort of thing. Incidentally, one of the things driving me to be gluten-free, along with the bowel issues (labeled by docs as IBS-C) was that my mom had that autoimmune disease and my dad is a heart patient (inflammatory process) so it seems prudent, since there are so many other good grains/legumes, to go gluten-free and maybe avoide those family "inheritences"?

By the way, my choesterol is high--will gluten-free eventually help with that? I am talking total being around 250 and HDL only 50--I am thin and quite active and overall try to eat healthily (am actually a cardiac rehab nurse, ironically). Thanks for any input. I'm almost 55 y/o if that has any bearing.

Describe the taste. I used to get a breath smell. It smelled like when I've caught whiffs of chlorine and ammonia ......ammonium chloride, a deadly combination.

I also had blurred vision. It went away with my diet. But my diet eliminates gluten, raw milk, sweets, fruit, chlorine and (thanks to contributors here) nightshades.

..

donnal Apprentice

Well, it's hard to describe the taste--I'd often say it was like a rat crawled up and died in my mouth (but can't speak from experience, having never had that happen :D )--my husb said my breath didn't smell "that bad" but it was really nauseating to me. Like old food, or something. Not really a sour taste, more like spoiled. Does that ring a bell?

Nancym Enthusiast

You might want to get checked for diabetes. It can affect eye sight and the bad taste could be ketosis.

ShayFL Enthusiast

Acetone breath I believe they call it. Diabetes breath.

donnal Apprentice

I always am on the low end of normal for glucose checks--have been as low as 64!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.