Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach..pain? Bloating? Cramping?


Lux

Recommended Posts

Lux Explorer

OK, here's the thing. For the past five years, I have experienced what I can only describe as...stomach/gut 'discomfort'. It isn't cramping, and it isn't full-on bloating...but it gets incredibly tight, and starts to feel conspicuously protruding (but not to the extent of bloating). It isn't painful, and it doesn't spasm...it just feels tight, and full, as if my colon is completely twisted or cramped up and bunching in my gut. Does ANYONE ever feel this way? I used to describe it as bloating, before experiencing TRUE bloating. I just don't know. I have never met anyone who has been able to really GET what I mean. After going gluten free, this sensation faded away for at least a couple of months, but now it appears to have come back. I know it sounds silly, but I just want to be able to give it a NAME...so perhaps I can get something to help alleviate the problem.

thankyou all for reading this. I know I sound completely neurotic.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
OK, here's the thing. For the past five years, I have experienced what I can only describe as...stomach/gut 'discomfort'. It isn't cramping, and it isn't full-on bloating...but it gets incredibly tight, and starts to feel conspicuously protruding (but not to the extent of bloating). It isn't painful, and it doesn't spasm...it just feels tight, and full, as if my colon is completely twisted or cramped up and bunching in my gut. Does ANYONE ever feel this way? I used to describe it as bloating, before experiencing TRUE bloating. I just don't know. I have never met anyone who has been able to really GET what I mean. After going gluten free, this sensation faded away for at least a couple of months, but now it appears to have come back. I know it sounds silly, but I just want to be able to give it a NAME...so perhaps I can get something to help alleviate the problem.

thankyou all for reading this. I know I sound completely neurotic.....

Hi Lux: Now don't go feeling neurotic on us :P . Chances are there is a real reason for this sensation that no one has hit on yet. I think it is important to identify, if we can, what is causing problems for us. It could be something minor or unexplainable, or it could be something important. Have you ever tried describing this sensation to your doc? Is it associated with constipation? Or something specific you eat? I am not trying to be alarmist here but I had a very dear friend who was unable to satisfactorily describe a sensation of pressure in her abdomen to either her doctors or her friends, and it turned out to be ovarian cancer. So I do think it is important to explore these issues that bother us so that we can be reassured. And please don't let what I just said worry you. It is just an example of it being important to get to the bottom of things.

Neroli

Lux Explorer

Hey Neroli,

Thanks so much for your advice :-)

Unfortunately, I have had all the tests under the sun done, and the only thing I could maybe-possibly attribute it to (other than the Celiac) is polycystic ovaries (which I do have). But I just don't know. The sensation comes and goes. I was feeling fairly fine this morning, and then after lunch (tuna, spinach and gluten-free mustard), it came back again. Also, it seems to be worse AFTER I go to the bathroom...sigh.

I just don't know...

mushroom Proficient

It truly is a puzzlement. Do you include a gynecologist amongst your docs? If not I would certainly consult one for her advice. Do your other docs have any clues at all, or do they just think it's in your head :rolleyes: ? Why don't you try keeping a food diary and see if there is any correlation? Or maybe you have already done this. And check if it is always associated with going to the bathroom. If it usually comes on after a BM it could be associated with straining (depending on how loose you are :lol: )

torontosue Rookie

I have uterine fibroids. There are days when I feel exactly like you. I'd definitely go to a gynecologist and see about having a pelvic ultrasound done.

And yes, sometimes the pain is worse after a BM, I'm not sure why though.

Good luck figuring it out.

Lux Explorer

Thankyou so much for all your replies!!

Um, I had a pelvic scan only two months ago, so I assume they should have picked anything up then...? (This was how I got diagonsed with polycystic ovaries). What are uterine fybroids, exactly?

I have also had a gastroscopy, as well as an endoscopy...I have Latent Coeliac, which basically means that I have the antibodies without any visibly detected damage to my villi. I have also been diagnosed with IBS, so I usually attribute it to that. Lately, though, it just seems to be playing up extravagantly, and I wonder if it couldn't be associated with stress...?

thankyou all, again, just so much. xo

LuvMoosic4life Collaborator

I have had this before going gluten-free also. it was almost border line bloating, but with that twisting sensation. it went away when gluten-free, but occasionaly I will experience some symptoms of it, just not anywhere near as bad. I find it is usually directly related to the foods I eat, and stress definitly is a factor with me. I find eatingplenty of cooked vegitables helps for me, but my sensation is usulyy realted to constipation/ also monthly problems which i havent seen a gyno for yet.

hope everything works out :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      Pain in the right side of abdomen

    2. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      3

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    3. - Scott Adams replied to colinukcoeliac's topic in Gluten-Free Restaurants
      3

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    4. - Scott Adams replied to Colleen H's topic in Coping with Celiac Disease
      4

      Barilla gluten free pasta

    5. - knitty kitty commented on Scott Adams's article in Latest Research
      2

      Do Severe Symptoms at Celiac Diagnosis Predict Long-Term Health? (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,477
    • Most Online (within 30 mins)
      7,748

    Matt Johnston
    Newest Member
    Matt Johnston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Theresa2407, My Non-Alcoholic Fatty Liver Disease (NAFD), now called Metabolic Dysfunction-Associated Steatotic Liver Disease (MASLD), cleared up, resolved, after supplementing with Thiamine B1 and Riboflavin B2.  "Specifically, higher intakes of vitamin B1 and vitamin B2 were negatively associated with the risk of NAFLD. Consequently, providing adequate levels of Vitamin B1 and Vitamin B2 in the daily diets of postmenopausal women could potentially serve as a preventive measure against NAFLD." Association between dietary intakes of B vitamins and nonalcoholic fatty liver disease in postmenopausal women: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC10621796/ High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://pmc.ncbi.nlm.nih.gov/articles/PMC7988776/
    • trents
      Welcome to the the celiac.com community @colinukcoeliac! I am in the USA but I don't think it is any different here in my experience. In some large cities there are dedicated gluten free restaurants where only gluten free ingredients are found. However, there are a growing number of mainstream eatery chains that advertise gluten free menu items but they are likely cooked and prepared along with gluten containing foods. They are just not set up to offer a dedicated gluten free cooking, preparation and handling environment. There simply isn't space for it and it would not be cost effective. And I think you probably realize that restaurants operate on a thin margin of profit. As the food industry has become more aware of celiac disease and the issue of cross contamination I have noticed that some eateries that used to offer "gluten free" menu items not have changed their terminology to "low gluten" to reflect the possibility of cross contamination.  I would have to say that I appreciate the openness and honesty of the response you got from your email inquiry. It also needs to be said that the degree of cross contamination happening in that eatery may still allow the food they advertise as gluten free to meet the regulatory standards of gluten free advertising which, in the USA is not more than 20ppm of gluten. And that is acceptable for most celiacs and those who are gluten sensitive. Perhaps you might suggest to the eatery that they add a disclaimer about cross contamination to the menu itself.
    • Scott Adams
      This is a very common source of frustration within the celiac community. Many restaurants, including large chain restaurants, now offer a "gluten-free" menu, or mark items on their menu as gluten-free. Some of them then include a standard CYA disclaimer like what you experienced--that they can't guarantee your food will be gluten-free. Should they even bother at all? This is a good question, and if they can't actually deliver gluten-free food, should they even be legally allowed to make any claims around it?  Personally I view a gluten-free menu as a basic guide that can help me order, but I still explain that I really have celiac disease and need my food to be gluten-free. Then I take some AN-PEP enzymes when my food arrives just in case there may be contamination. So far this has worked for me, and for others here. It is frustrating that ordering off a gluten-free menu doesn't mean it's actually safe, however, I do feel somewhat thankful that it does at least signal an awareness on their part, and an attempt to provide safe food. For legal reasons they likely need to add the disclaimer, but it may also be necessary because on a busy night, who knows what could happen?
    • Scott Adams
      That is a very old study that concludes "Hypothetically, maize prolamins could be harmful for a very limited subgroup of CD patients", and I've not seen any substantive studies that support the idea that corn would be a risk for celiacs, although some people with celiac disease could have a separate intolerance to it, just like those without celiac disease might have corn intolerance.
    • knitty kitty
      @cristiana,  It's the same here, doctors check just Vitamin D and B12 routinely.  The blood tests for other B vitamins are so inaccurate, or expensive and time consuming, doctors tend to gloss over their importance.   B vitamins are water soluble and easily excreted in urine.  Some people need to be careful with Pyridoxine B6 because they can store it longer than most due to genetics.  A symptom of Pyridoxine B6 deficiency is peripheral neuropathy.  Taking Pyridoxine B6 will relieve the neuropathy, but excess Pyridoxine can also cause peripheral neuropathy.  So, if neuropathy symptoms return, stop taking the Pyridoxine and it will resolve quickly as the excess Pyridoxine is used.  But the body still needs the other B vitamins, so taking them separately without Pyridoxine can be an option.   If one is low in Vitamin D, one may also be low in the other fat soluble vitamins, A, E, and K.  Vitamin K is important to bone and circulatory  health.  Vitamin A helps improve the health of the intestine, eyes, skin and other mucus membranes.  Vitamin E helps our immune system stay healthy.   Important minerals, iron, magnesium and calcium, as well as a dozen or so trace minerals are important, too.  They need the B vitamins to be utilized, too.   Our gluten free diets can be low in B vitamins.  Our absorption can be affected for many years while we're healing.  Supplementing with B vitamins boosts our absorption and helps our bodies and our brains function at optimal levels.   Hope this helps!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.