Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach..pain? Bloating? Cramping?

Lux

By Lux
in Coping with Celiac Disease

Recommended Posts

Lux Explorer
Lux
Posted

OK, here's the thing. For the past five years, I have experienced what I can only describe as...stomach/gut 'discomfort'. It isn't cramping, and it isn't full-on bloating...but it gets incredibly tight, and starts to feel conspicuously protruding (but not to the extent of bloating). It isn't painful, and it doesn't spasm...it just feels tight, and full, as if my colon is completely twisted or cramped up and bunching in my gut. Does ANYONE ever feel this way? I used to describe it as bloating, before experiencing TRUE bloating. I just don't know. I have never met anyone who has been able to really GET what I mean. After going gluten free, this sensation faded away for at least a couple of months, but now it appears to have come back. I know it sounds silly, but I just want to be able to give it a NAME...so perhaps I can get something to help alleviate the problem.

thankyou all for reading this. I know I sound completely neurotic.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted
OK, here's the thing. For the past five years, I have experienced what I can only describe as...stomach/gut 'discomfort'. It isn't cramping, and it isn't full-on bloating...but it gets incredibly tight, and starts to feel conspicuously protruding (but not to the extent of bloating). It isn't painful, and it doesn't spasm...it just feels tight, and full, as if my colon is completely twisted or cramped up and bunching in my gut. Does ANYONE ever feel this way? I used to describe it as bloating, before experiencing TRUE bloating. I just don't know. I have never met anyone who has been able to really GET what I mean. After going gluten free, this sensation faded away for at least a couple of months, but now it appears to have come back. I know it sounds silly, but I just want to be able to give it a NAME...so perhaps I can get something to help alleviate the problem.

thankyou all for reading this. I know I sound completely neurotic.....

Hi Lux: Now don't go feeling neurotic on us :P . Chances are there is a real reason for this sensation that no one has hit on yet. I think it is important to identify, if we can, what is causing problems for us. It could be something minor or unexplainable, or it could be something important. Have you ever tried describing this sensation to your doc? Is it associated with constipation? Or something specific you eat? I am not trying to be alarmist here but I had a very dear friend who was unable to satisfactorily describe a sensation of pressure in her abdomen to either her doctors or her friends, and it turned out to be ovarian cancer. So I do think it is important to explore these issues that bother us so that we can be reassured. And please don't let what I just said worry you. It is just an example of it being important to get to the bottom of things.

Neroli

Lux Explorer
Lux
Posted
  • Author

Hey Neroli,

Thanks so much for your advice :-)

Unfortunately, I have had all the tests under the sun done, and the only thing I could maybe-possibly attribute it to (other than the Celiac) is polycystic ovaries (which I do have). But I just don't know. The sensation comes and goes. I was feeling fairly fine this morning, and then after lunch (tuna, spinach and gluten-free mustard), it came back again. Also, it seems to be worse AFTER I go to the bathroom...sigh.

I just don't know...

mushroom Proficient
mushroom
Posted

It truly is a puzzlement. Do you include a gynecologist amongst your docs? If not I would certainly consult one for her advice. Do your other docs have any clues at all, or do they just think it's in your head :rolleyes: ? Why don't you try keeping a food diary and see if there is any correlation? Or maybe you have already done this. And check if it is always associated with going to the bathroom. If it usually comes on after a BM it could be associated with straining (depending on how loose you are :lol: )

torontosue Rookie
torontosue
Posted

I have uterine fibroids. There are days when I feel exactly like you. I'd definitely go to a gynecologist and see about having a pelvic ultrasound done.

And yes, sometimes the pain is worse after a BM, I'm not sure why though.

Good luck figuring it out.

Lux Explorer
Lux
Posted
  • Author

Thankyou so much for all your replies!!

Um, I had a pelvic scan only two months ago, so I assume they should have picked anything up then...? (This was how I got diagonsed with polycystic ovaries). What are uterine fybroids, exactly?

I have also had a gastroscopy, as well as an endoscopy...I have Latent Coeliac, which basically means that I have the antibodies without any visibly detected damage to my villi. I have also been diagnosed with IBS, so I usually attribute it to that. Lately, though, it just seems to be playing up extravagantly, and I wonder if it couldn't be associated with stress...?

thankyou all, again, just so much. xo

LuvMoosic4life Collaborator
LuvMoosic4life
Posted

I have had this before going gluten-free also. it was almost border line bloating, but with that twisting sensation. it went away when gluten-free, but occasionaly I will experience some symptoms of it, just not anywhere near as bad. I find it is usually directly related to the foods I eat, and stress definitly is a factor with me. I find eatingplenty of cooked vegitables helps for me, but my sensation is usulyy realted to constipation/ also monthly problems which i havent seen a gyno for yet.

hope everything works out :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      10

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      Re: Michelin star. To give an example, the Ritz Hotel in London has two Michelin stars. Here's another article about Michelin stars - from our own archive.
    2. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Insomnia help

      Very helpful @knitty kitty. Thank you. I am trying to remember what vitamin so alarmed my GP and I have a feeling it was A or E. I remember reading the pills contained well over the 100 per cent RDA of whatever the vitamin was. One thing I'd love to ask you that has always intrigued me. One day when my anxiety was completely through the roof...
    3. cristiana
      - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      10

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      @trents Good question. We are strict at home, although I have to admit I've eating the odd chocolate at Christmas that turned out to have been made in a shared facility. But that is very unusual for me, and I had my last blood test before Christmas anyway. Therefore I have concluded that eating out must be the issue. But I'll let you know in September...
    4. melthebell
      - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

      Thanks very much for taking the time to write this. I have been pretty worried so appreciate reading any advice. Yes, the endoscopy will include a biopsy, and we have hopefully found a good pediatric gastro to guide us through it all. Will also run the HLA typing - I have the swabs ready to go.
    5. trents
      - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

      Welcome to the celiac.com community, @melthebell! I certainly would have a biopsy repeated as it has been 5 years since the first one. You mentioned he was scheduled for an endoscopy but make sure a biopsy is also done. It's possible he, like you are, is a "silent" celiac where the damage to the intestinal mucosa happens very slowly and can take years...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,498
    • Most Online (within 30 mins)
      7,748
    genliu
    Newest Member
    genliu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By cristiana · Posted

      Re: Michelin star.  To give an example, the Ritz Hotel in London has two Michelin stars.   Here's another article about Michelin stars - from our own archive.  
    • cristiana
      Insomnia help

      By cristiana · Posted

      Very helpful @knitty kitty.  Thank you.  I am trying to remember what vitamin so alarmed my GP and I have a feeling it was A or E.  I remember reading the pills contained well over the 100 per cent RDA of whatever the vitamin was. One thing I'd love to ask you that has always intrigued me.  One day when my anxiety was completely through the roof.  I 'felt the fear and did it anyway' - a phrase other anxiety sufferers may be aware of, which I found a powerful tool in my recovery -  and visited a friend's house, even though I felt so wretched.  For some reason I craved milk and drank two whole pints of milk in quick succession while I was with her - to this day I can't think why, because I don't usually drink milk 'neat' - I like it in tea or coffee, or hot chocolate.  But I distinctly remember within a couple of hours feeling absolutely fine again for quite a while.  I've often wondered was it down to this milk, which I've since understood contains quite decent levels of B12.  Would that have really worked so fast?    
    • cristiana
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By cristiana · Posted

      @trents  Good question.  We are strict at home, although I have to admit I've eating the odd chocolate at Christmas that turned out to have been made in a shared facility.  But that  is very unusual for me, and I had my last blood test before Christmas anyway.  Therefore I have concluded that eating out must be the issue.  But I'll let you know in September when I have my next blood tests done.  😊  
    • melthebell
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By melthebell · Posted

      Thanks very much for taking the time to write this. I have been pretty worried so appreciate reading any advice. Yes, the endoscopy will include a biopsy, and we have hopefully found a good pediatric gastro to guide us through it all.  Will also run the HLA typing - I have the swabs ready to go.
    • trents
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By trents · Posted

      Welcome to the celiac.com community, @melthebell! I certainly would have a biopsy repeated as it has been 5 years since the first one. You mentioned he was scheduled for an endoscopy but make sure a biopsy is also done. It's possible he, like you are, is a "silent" celiac where the damage to the intestinal mucosa happens very slowly and can take years to manifest to the point of being detectable and where symptoms are minimal or absent. At 10 years old, his immune system may not be mature enough het to trigger the usual IGA responses that the IGA celiac tests are designed to detect.  I would also have genetic testing done to confirm that he has or doesn't have the potential to develop celiac disease. The genetic profile can also offer insight into the type of celiac disease a person will develop if they ever convert from latent to active. Take a look at table 2 under the section "Types of Celiac Disease" in the article found in this link: https://pmc.ncbi.nlm.nih.gov/articles/PMC9980758/  Genetic testing is available from 3rd party labs. I think you just have to send in a cheek swab sample.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.