Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach..pain? Bloating? Cramping?


Lux

Recommended Posts

Lux Explorer

OK, here's the thing. For the past five years, I have experienced what I can only describe as...stomach/gut 'discomfort'. It isn't cramping, and it isn't full-on bloating...but it gets incredibly tight, and starts to feel conspicuously protruding (but not to the extent of bloating). It isn't painful, and it doesn't spasm...it just feels tight, and full, as if my colon is completely twisted or cramped up and bunching in my gut. Does ANYONE ever feel this way? I used to describe it as bloating, before experiencing TRUE bloating. I just don't know. I have never met anyone who has been able to really GET what I mean. After going gluten free, this sensation faded away for at least a couple of months, but now it appears to have come back. I know it sounds silly, but I just want to be able to give it a NAME...so perhaps I can get something to help alleviate the problem.

thankyou all for reading this. I know I sound completely neurotic.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
OK, here's the thing. For the past five years, I have experienced what I can only describe as...stomach/gut 'discomfort'. It isn't cramping, and it isn't full-on bloating...but it gets incredibly tight, and starts to feel conspicuously protruding (but not to the extent of bloating). It isn't painful, and it doesn't spasm...it just feels tight, and full, as if my colon is completely twisted or cramped up and bunching in my gut. Does ANYONE ever feel this way? I used to describe it as bloating, before experiencing TRUE bloating. I just don't know. I have never met anyone who has been able to really GET what I mean. After going gluten free, this sensation faded away for at least a couple of months, but now it appears to have come back. I know it sounds silly, but I just want to be able to give it a NAME...so perhaps I can get something to help alleviate the problem.

thankyou all for reading this. I know I sound completely neurotic.....

Hi Lux: Now don't go feeling neurotic on us :P . Chances are there is a real reason for this sensation that no one has hit on yet. I think it is important to identify, if we can, what is causing problems for us. It could be something minor or unexplainable, or it could be something important. Have you ever tried describing this sensation to your doc? Is it associated with constipation? Or something specific you eat? I am not trying to be alarmist here but I had a very dear friend who was unable to satisfactorily describe a sensation of pressure in her abdomen to either her doctors or her friends, and it turned out to be ovarian cancer. So I do think it is important to explore these issues that bother us so that we can be reassured. And please don't let what I just said worry you. It is just an example of it being important to get to the bottom of things.

Neroli

Lux Explorer

Hey Neroli,

Thanks so much for your advice :-)

Unfortunately, I have had all the tests under the sun done, and the only thing I could maybe-possibly attribute it to (other than the Celiac) is polycystic ovaries (which I do have). But I just don't know. The sensation comes and goes. I was feeling fairly fine this morning, and then after lunch (tuna, spinach and gluten-free mustard), it came back again. Also, it seems to be worse AFTER I go to the bathroom...sigh.

I just don't know...

mushroom Proficient

It truly is a puzzlement. Do you include a gynecologist amongst your docs? If not I would certainly consult one for her advice. Do your other docs have any clues at all, or do they just think it's in your head :rolleyes: ? Why don't you try keeping a food diary and see if there is any correlation? Or maybe you have already done this. And check if it is always associated with going to the bathroom. If it usually comes on after a BM it could be associated with straining (depending on how loose you are :lol: )

torontosue Rookie

I have uterine fibroids. There are days when I feel exactly like you. I'd definitely go to a gynecologist and see about having a pelvic ultrasound done.

And yes, sometimes the pain is worse after a BM, I'm not sure why though.

Good luck figuring it out.

Lux Explorer

Thankyou so much for all your replies!!

Um, I had a pelvic scan only two months ago, so I assume they should have picked anything up then...? (This was how I got diagonsed with polycystic ovaries). What are uterine fybroids, exactly?

I have also had a gastroscopy, as well as an endoscopy...I have Latent Coeliac, which basically means that I have the antibodies without any visibly detected damage to my villi. I have also been diagnosed with IBS, so I usually attribute it to that. Lately, though, it just seems to be playing up extravagantly, and I wonder if it couldn't be associated with stress...?

thankyou all, again, just so much. xo

LuvMoosic4life Collaborator

I have had this before going gluten-free also. it was almost border line bloating, but with that twisting sensation. it went away when gluten-free, but occasionaly I will experience some symptoms of it, just not anywhere near as bad. I find it is usually directly related to the foods I eat, and stress definitly is a factor with me. I find eatingplenty of cooked vegitables helps for me, but my sensation is usulyy realted to constipation/ also monthly problems which i havent seen a gyno for yet.

hope everything works out :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.