Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach..pain? Bloating? Cramping?


Lux

Recommended Posts

Lux Explorer

OK, here's the thing. For the past five years, I have experienced what I can only describe as...stomach/gut 'discomfort'. It isn't cramping, and it isn't full-on bloating...but it gets incredibly tight, and starts to feel conspicuously protruding (but not to the extent of bloating). It isn't painful, and it doesn't spasm...it just feels tight, and full, as if my colon is completely twisted or cramped up and bunching in my gut. Does ANYONE ever feel this way? I used to describe it as bloating, before experiencing TRUE bloating. I just don't know. I have never met anyone who has been able to really GET what I mean. After going gluten free, this sensation faded away for at least a couple of months, but now it appears to have come back. I know it sounds silly, but I just want to be able to give it a NAME...so perhaps I can get something to help alleviate the problem.

thankyou all for reading this. I know I sound completely neurotic.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
OK, here's the thing. For the past five years, I have experienced what I can only describe as...stomach/gut 'discomfort'. It isn't cramping, and it isn't full-on bloating...but it gets incredibly tight, and starts to feel conspicuously protruding (but not to the extent of bloating). It isn't painful, and it doesn't spasm...it just feels tight, and full, as if my colon is completely twisted or cramped up and bunching in my gut. Does ANYONE ever feel this way? I used to describe it as bloating, before experiencing TRUE bloating. I just don't know. I have never met anyone who has been able to really GET what I mean. After going gluten free, this sensation faded away for at least a couple of months, but now it appears to have come back. I know it sounds silly, but I just want to be able to give it a NAME...so perhaps I can get something to help alleviate the problem.

thankyou all for reading this. I know I sound completely neurotic.....

Hi Lux: Now don't go feeling neurotic on us :P . Chances are there is a real reason for this sensation that no one has hit on yet. I think it is important to identify, if we can, what is causing problems for us. It could be something minor or unexplainable, or it could be something important. Have you ever tried describing this sensation to your doc? Is it associated with constipation? Or something specific you eat? I am not trying to be alarmist here but I had a very dear friend who was unable to satisfactorily describe a sensation of pressure in her abdomen to either her doctors or her friends, and it turned out to be ovarian cancer. So I do think it is important to explore these issues that bother us so that we can be reassured. And please don't let what I just said worry you. It is just an example of it being important to get to the bottom of things.

Neroli

Lux Explorer

Hey Neroli,

Thanks so much for your advice :-)

Unfortunately, I have had all the tests under the sun done, and the only thing I could maybe-possibly attribute it to (other than the Celiac) is polycystic ovaries (which I do have). But I just don't know. The sensation comes and goes. I was feeling fairly fine this morning, and then after lunch (tuna, spinach and gluten-free mustard), it came back again. Also, it seems to be worse AFTER I go to the bathroom...sigh.

I just don't know...

mushroom Proficient

It truly is a puzzlement. Do you include a gynecologist amongst your docs? If not I would certainly consult one for her advice. Do your other docs have any clues at all, or do they just think it's in your head :rolleyes: ? Why don't you try keeping a food diary and see if there is any correlation? Or maybe you have already done this. And check if it is always associated with going to the bathroom. If it usually comes on after a BM it could be associated with straining (depending on how loose you are :lol: )

torontosue Rookie

I have uterine fibroids. There are days when I feel exactly like you. I'd definitely go to a gynecologist and see about having a pelvic ultrasound done.

And yes, sometimes the pain is worse after a BM, I'm not sure why though.

Good luck figuring it out.

Lux Explorer

Thankyou so much for all your replies!!

Um, I had a pelvic scan only two months ago, so I assume they should have picked anything up then...? (This was how I got diagonsed with polycystic ovaries). What are uterine fybroids, exactly?

I have also had a gastroscopy, as well as an endoscopy...I have Latent Coeliac, which basically means that I have the antibodies without any visibly detected damage to my villi. I have also been diagnosed with IBS, so I usually attribute it to that. Lately, though, it just seems to be playing up extravagantly, and I wonder if it couldn't be associated with stress...?

thankyou all, again, just so much. xo

LuvMoosic4life Collaborator

I have had this before going gluten-free also. it was almost border line bloating, but with that twisting sensation. it went away when gluten-free, but occasionaly I will experience some symptoms of it, just not anywhere near as bad. I find it is usually directly related to the foods I eat, and stress definitly is a factor with me. I find eatingplenty of cooked vegitables helps for me, but my sensation is usulyy realted to constipation/ also monthly problems which i havent seen a gyno for yet.

hope everything works out :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

    2. - Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Great Value Veggies cannot be trusted.

    3. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

    4. - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

    5. - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,441
    • Most Online (within 30 mins)
      7,748

    tip
    Newest Member
    tip
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      My neighbor's mom was diagnosed with celiac disease 16 years ago.  She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals.  This evening she brought over 2 slices of Papa Murphy's gluten-free pizza.  It looks to be topped with chicken and spinach.  I asked, "aren't you concerned with cross contamination"?  She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza.  The article is quite old, so I do not think it holds much weight nowadays.  The thread I found was also a bit dated, but certainly more recent and relevant.  The information in the thread I found was a bit inconclusive.  Some said they trust Papa Murphy's gluten-free pizza and others were a big no way.  One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey.  I do not want to be rude and toss the pizza out, but I also do not want to have a reaction.  Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow.  As this thread's title states, what would you do?  Would you eat it or toss it out?  I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
    • Scott Adams
      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
    • trents
      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      THANKS again!!!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.