Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Stomach..pain? Bloating? Cramping?

Lux

By Lux
in Coping with Celiac Disease

Recommended Posts

Lux Explorer
Lux
Posted

OK, here's the thing. For the past five years, I have experienced what I can only describe as...stomach/gut 'discomfort'. It isn't cramping, and it isn't full-on bloating...but it gets incredibly tight, and starts to feel conspicuously protruding (but not to the extent of bloating). It isn't painful, and it doesn't spasm...it just feels tight, and full, as if my colon is completely twisted or cramped up and bunching in my gut. Does ANYONE ever feel this way? I used to describe it as bloating, before experiencing TRUE bloating. I just don't know. I have never met anyone who has been able to really GET what I mean. After going gluten free, this sensation faded away for at least a couple of months, but now it appears to have come back. I know it sounds silly, but I just want to be able to give it a NAME...so perhaps I can get something to help alleviate the problem.

thankyou all for reading this. I know I sound completely neurotic.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted
OK, here's the thing. For the past five years, I have experienced what I can only describe as...stomach/gut 'discomfort'. It isn't cramping, and it isn't full-on bloating...but it gets incredibly tight, and starts to feel conspicuously protruding (but not to the extent of bloating). It isn't painful, and it doesn't spasm...it just feels tight, and full, as if my colon is completely twisted or cramped up and bunching in my gut. Does ANYONE ever feel this way? I used to describe it as bloating, before experiencing TRUE bloating. I just don't know. I have never met anyone who has been able to really GET what I mean. After going gluten free, this sensation faded away for at least a couple of months, but now it appears to have come back. I know it sounds silly, but I just want to be able to give it a NAME...so perhaps I can get something to help alleviate the problem.

thankyou all for reading this. I know I sound completely neurotic.....

Hi Lux: Now don't go feeling neurotic on us :P . Chances are there is a real reason for this sensation that no one has hit on yet. I think it is important to identify, if we can, what is causing problems for us. It could be something minor or unexplainable, or it could be something important. Have you ever tried describing this sensation to your doc? Is it associated with constipation? Or something specific you eat? I am not trying to be alarmist here but I had a very dear friend who was unable to satisfactorily describe a sensation of pressure in her abdomen to either her doctors or her friends, and it turned out to be ovarian cancer. So I do think it is important to explore these issues that bother us so that we can be reassured. And please don't let what I just said worry you. It is just an example of it being important to get to the bottom of things.

Neroli

Lux Explorer
Lux
Posted
  • Author

Hey Neroli,

Thanks so much for your advice :-)

Unfortunately, I have had all the tests under the sun done, and the only thing I could maybe-possibly attribute it to (other than the Celiac) is polycystic ovaries (which I do have). But I just don't know. The sensation comes and goes. I was feeling fairly fine this morning, and then after lunch (tuna, spinach and gluten-free mustard), it came back again. Also, it seems to be worse AFTER I go to the bathroom...sigh.

I just don't know...

mushroom Proficient
mushroom
Posted

It truly is a puzzlement. Do you include a gynecologist amongst your docs? If not I would certainly consult one for her advice. Do your other docs have any clues at all, or do they just think it's in your head :rolleyes: ? Why don't you try keeping a food diary and see if there is any correlation? Or maybe you have already done this. And check if it is always associated with going to the bathroom. If it usually comes on after a BM it could be associated with straining (depending on how loose you are :lol: )

torontosue Rookie
torontosue
Posted

I have uterine fibroids. There are days when I feel exactly like you. I'd definitely go to a gynecologist and see about having a pelvic ultrasound done.

And yes, sometimes the pain is worse after a BM, I'm not sure why though.

Good luck figuring it out.

Lux Explorer
Lux
Posted
  • Author

Thankyou so much for all your replies!!

Um, I had a pelvic scan only two months ago, so I assume they should have picked anything up then...? (This was how I got diagonsed with polycystic ovaries). What are uterine fybroids, exactly?

I have also had a gastroscopy, as well as an endoscopy...I have Latent Coeliac, which basically means that I have the antibodies without any visibly detected damage to my villi. I have also been diagnosed with IBS, so I usually attribute it to that. Lately, though, it just seems to be playing up extravagantly, and I wonder if it couldn't be associated with stress...?

thankyou all, again, just so much. xo

LuvMoosic4life Collaborator
LuvMoosic4life
Posted

I have had this before going gluten-free also. it was almost border line bloating, but with that twisting sensation. it went away when gluten-free, but occasionaly I will experience some symptoms of it, just not anywhere near as bad. I find it is usually directly related to the foods I eat, and stress definitly is a factor with me. I find eatingplenty of cooked vegitables helps for me, but my sensation is usulyy realted to constipation/ also monthly problems which i havent seen a gyno for yet.

hope everything works out :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      0

      Thiamine and Neutrophils in Diabetes and Dermatitis Herpetiformis

    2. knitty kitty
      - knitty kitty replied to BelleDeJour's topic in Dermatitis Herpetiformis
      14

      Dermatitis Herpetiformis - follow up dermatology appointment coming up

      @BelleDeJour, Have you thought about keeping a food mood poo'd journal? Recording what and when you eat can help pinpoint possible culprits for your outbreaks. A red dye additive used in some foods and drinks contains iodine. Have you considered getting a genetic test to look for Celiac genes? Having Celiac genes and a positive response to...
    3. coeliacmamma
      - coeliacmamma replied to coeliacmamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      New diagnosis

      Thankyou all for your replies this has helped massively
    4. Russ H
      - Russ H replied to coeliacmamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      New diagnosis

      There are some really good recipes here: Gluten Free Alchemist The woman that runs it is UK based, and has a daughter with coeliac disease. I think she might be a food scientist as she is extremely knowledgeable about the properties of different starches and flours etc. Coeliac UK have a lot of UK relevant information regarding coeliac disease...
    5. Scott Adams
      - Scott Adams replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Test interpretations

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,121
    • Most Online (within 30 mins)
      10,442
    foxymama564
    Newest Member
    foxymama564
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Dermatitis Herpetiformis - follow up dermatology appointment coming up

      By knitty kitty · Posted

      @BelleDeJour, Have you thought about keeping a food mood poo'd journal?  Recording what and when you eat can help pinpoint possible culprits for your outbreaks.  A red dye additive used in some foods and drinks contains iodine.   Have you considered getting a genetic test to look for Celiac genes?  Having Celiac genes and a positive response to a gluten free diet can be used as part of a diagnosis of Celiac Disease without undergoing a gluten challenge.   Do get checked for Diabetes.  Activated Neutrophils are involved in making dermatitis herpetiformis blisters and they are also found in Diabetes.  Apparently, high glucose levels contribute to activating Neutrophils.  People with dermatitis herpetiformis have a 22% increased risk of developing Diabetes.  One study found a majority of people with dermatitis herpetiformis have four or more autoimmune diseases (Addison's, dermatitis herpetiformis, Diabetes, and thyroiditis being the most common). I have dermatitis herpetiformis and I developed Type Two Diabetes.  Ninety-eight percent of diabetics are deficient in Thiamine.  I changed my diet to the AutoImmune Protocol Diet and took Benfotiamine, a form of thiamine, that has been shown to increase insulin sensitivity.  I no longer have any symptoms of diabetes. Because half of Celiacs carry the MTHFR mutation, I supplement with methylated B vitamins.  Many of the B vitamins, including thiamine in the form Benfotiamine, improve the neuropathy that goes along with dermatitis herpetiformis (that itchiness without a blemish).   I take additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide).  Benfotiamine promotes intestinal health.  Thiamine TTFD improves Gluten Ataxia, brain fog, and fatigue.   I use J. Crow's  Lugol's iodine because I have had hypothyroidism.  It's rapidly absorbed through the skin, so it doesn't trigger the immune system in the digestive system.  Thiamine deficiency is also found in Hashimoto's thyroiditis.   And... Thiamine has been shown to calm down Neutrophils.  Calmed down Neutrophils don't make dermatitis herpetiformis blisters.  My skin has improved so much!   Hope this helps!  
    • coeliacmamma
      New diagnosis

      By coeliacmamma · Posted

      Thankyou all for your replies this has helped massively 
    • Russ H
      New diagnosis

      By Russ H · Posted

      There are some really good recipes here: Gluten Free Alchemist The woman that runs it is UK based, and has a daughter with coeliac disease. I think she might be a food scientist as she is extremely knowledgeable about the properties of different starches and flours etc. Coeliac UK have a lot of UK relevant information regarding coeliac disease, and also have a recipes section: Coeliac UK Find Me Gluten Free is a good resource to find gluten free places to eat out. You can use the website or download their app. Paying for the premium services gives more advanced searches: https://www.findmeglutenfree.com/  
    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • Scott Adams
      New diagnosis

      By Scott Adams · Posted

      Be sure to check out our site's huge recipe section as well: https://www.celiac.com/celiac-disease/gluten-free-recipes/
×
×
  • Create New...