Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soya Lecithin


mushroom

Recommended Posts

mushroom Proficient

Okay, I know this isn't gluten, but since I have had to go soy-free also, every time I see the word soy in any shape or form I run a country mile. Of course, this has included soya lecithin, but I have been getting inklings in some posts that this can perhaps be differentiated from actual soy products. Is this so or is it just as deadly for those of us who are sensitive?

This is a very important issue to me (a chocaholic) since it makes the difference between eating chocolate and not eating any chocolate except Lindt 70% dark, which is okay but very limiting. Like no choc. chip cookies, etc.

What's the story?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Probably the only thing you can do is try some chocolate with lecithin in it. My family was intolerant to soy but do fine with lecithin now. We were totally soy free for over a year though. We will eat stuff with soyoil (like mayo) when we eat at other people's houses since we don't want to put them through any more of a headache than gluten free. We are violently intolerant though and the long break may have allowed us some minor indulgences.

Juliebove Rising Star

If you have a soy allergy, you might be able to eat soy lecithin or soybean oil. Or you might not. Or you could simply buy soy free chocolates. Here are two places where you can get them.

Open Original Shared Link

Open Original Shared Link

You do have to make sure that the product you buy is also gluten-free because they do sell some gluten containing items.

mushroom Proficient

Thank you both for your responses. I think I am too "fresh" to attempt the soy lecithin yet--maybe a little further down the road since I am not ready for the itching yet. Julie, the soyfreesales site does offer some soy- and gluten-free choc. chips. I will order some when in U.S. and then I can make cookies!

  • 7 years later...
toneb66 Newbie

Hi, 

I am new here and was searching the forums for anything to do with soy lecithin.

I'm gluten intolerant and have been gluten free now for 2 years. Throughout that time I have felt quite ill on quite a few occasions - aches in my neck/shoulders, arms and legs and just a general feeling of lethargy - the kind of feeling that you get when you have the flu. I'd always put this down to the fact that I'd maybe been glutened but I could never work out what was causing it. 

Last week I was reading that this may be being caused by soy lecithins, which are found in many products. I decided to try eliminating any foods containing them - I was surprised how many things do! 

All week I have felt fine.....until this afternoon. I ate a bowl of Whole Earth Cornflakes not realising that they contain soy lecithins and I feel awful once more. I am now in no doubt that this is the cause of the aches and pains. I'm just wondering if anyone has experienced similar?

 

  • 2 weeks later...
toneb66 Newbie

An update on this. Yesterday I popped a square of chocolate into my mouth and before I had even swallowed it I realised that it contained soy lecithin. I didn't actually swallow any but last night I felt horrible again....aches in my arms, legs and neck. I am convinced it's the lecithin - I do seem ok when I eat soy though although I try to avoid that if I can.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Nateral remedies

    2. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      13

      Diagnosed Marsh stage 3C in January 2026

    3. - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      31

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jmartes71 replied to Kayla S's topic in Dermatitis Herpetiformis
      3

      Need advice for some relief!

    5. - trents replied to MoniqueCham's topic in Related Issues & Disorders
      1

      Celiac Disease, Lymphocytic colitis and Bowel rupture

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,532
    • Most Online (within 30 mins)
      7,748

    HockmanBK
    Newest Member
    HockmanBK
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any connection though haven't been religious on my vitamins these last several months because of testing ect.Sibo medications im allergic,the last few prescribed. Gi  dr dropped me but took me back.Im frustrated too but its the autoimmune part .
    • Known1
      Pardon me, I stand corrected.  I did find yet another blood test for thyroid function. TSH W/REFLEX TO FT4:  2.91 mIU/L  (Range: 0.40 - 4.50) As you can see, I was within the acceptable range when the test was performed.
    • Known1
      I am curious: What was your initial level at? How many daily IUs were you taking via supplements and for how long? What did your level drop to? How many daily IUs are you taking now via supplements? Regards, Known1
    • Jmartes71
      Ive been dealing with skin issues and been told it was staph because I was employed as a bus driver during that horrid time that im still actively healing from currently years later. Biopsies they don't want to say its inconclusive they say.Their creams don't work.I do notice Yarrow Pom from Doterra works but of course thats expensive.Prayers
    • trents
      Welcome to the celiac.com community @MoniqueCham! Celiac disease damages the villous lining of the small bowel but, as far as I know, doesn't affect the underlying smooth muscle tissue of the bowel.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.