Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soya Lecithin


mushroom

Recommended Posts

mushroom Proficient

Okay, I know this isn't gluten, but since I have had to go soy-free also, every time I see the word soy in any shape or form I run a country mile. Of course, this has included soya lecithin, but I have been getting inklings in some posts that this can perhaps be differentiated from actual soy products. Is this so or is it just as deadly for those of us who are sensitive?

This is a very important issue to me (a chocaholic) since it makes the difference between eating chocolate and not eating any chocolate except Lindt 70% dark, which is okay but very limiting. Like no choc. chip cookies, etc.

What's the story?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Probably the only thing you can do is try some chocolate with lecithin in it. My family was intolerant to soy but do fine with lecithin now. We were totally soy free for over a year though. We will eat stuff with soyoil (like mayo) when we eat at other people's houses since we don't want to put them through any more of a headache than gluten free. We are violently intolerant though and the long break may have allowed us some minor indulgences.

Juliebove Rising Star

If you have a soy allergy, you might be able to eat soy lecithin or soybean oil. Or you might not. Or you could simply buy soy free chocolates. Here are two places where you can get them.

Open Original Shared Link

Open Original Shared Link

You do have to make sure that the product you buy is also gluten-free because they do sell some gluten containing items.

mushroom Proficient

Thank you both for your responses. I think I am too "fresh" to attempt the soy lecithin yet--maybe a little further down the road since I am not ready for the itching yet. Julie, the soyfreesales site does offer some soy- and gluten-free choc. chips. I will order some when in U.S. and then I can make cookies!

  • 7 years later...
toneb66 Newbie

Hi, 

I am new here and was searching the forums for anything to do with soy lecithin.

I'm gluten intolerant and have been gluten free now for 2 years. Throughout that time I have felt quite ill on quite a few occasions - aches in my neck/shoulders, arms and legs and just a general feeling of lethargy - the kind of feeling that you get when you have the flu. I'd always put this down to the fact that I'd maybe been glutened but I could never work out what was causing it. 

Last week I was reading that this may be being caused by soy lecithins, which are found in many products. I decided to try eliminating any foods containing them - I was surprised how many things do! 

All week I have felt fine.....until this afternoon. I ate a bowl of Whole Earth Cornflakes not realising that they contain soy lecithins and I feel awful once more. I am now in no doubt that this is the cause of the aches and pains. I'm just wondering if anyone has experienced similar?

 

  • 2 weeks later...
toneb66 Newbie

An update on this. Yesterday I popped a square of chocolate into my mouth and before I had even swallowed it I realised that it contained soy lecithin. I didn't actually swallow any but last night I felt horrible again....aches in my arms, legs and neck. I am convinced it's the lecithin - I do seem ok when I eat soy though although I try to avoid that if I can.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Curious question

    2. - Jmartes71 replied to Jmartes71's topic in Super Sensitive People
      2

      Alarming

    3. - trents commented on Scott Adams's article in Origins of Celiac Disease
      10

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    4. - RMJ replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

    5. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Barilla gluten free pasta

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,449
    • Most Online (within 30 mins)
      7,748

    KeSmith
    Newest Member
    KeSmith
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      I APPRECIATE you validating everything because this is a nightmare and the only reason why im fighting is because I don't want future generations to deal with this bs and medical should take responsibility for their lack of actions. Autoimmune disorder aka " food allergies " should be a mandated reportable disease for the safety of the patients. 
    • Jmartes71
      Im sorry I didn't read until just now, thankyou.its pretty scary because again as I keep stating down played because of what im currently going through and validated by you guys, thank you very much for that because this is mentally challenging especially when asking, begging for medical help.In that note, I looked at my next appointment with gi whose my "new care",i thought. I had  scheduled appointment in March zoom call just to be dump, it was CANCELLED on their part! My appointment isn't there anymore! I do have appointment with Mayo clinic Tuesday on the phone. I also did talk to our local representative in Stanislaus office this past Friday, yesterday and ( Justin) thinks he knows about celiac disease. I don't think he understands because he told me he knows all about celiac! Well Justin why am I dealing with this bs in your county? Hintz the reason why I feel the need to go to city hall meeting yet I  don't have the medical  support....
    • RMJ
      I would not eat it. Some people are more sensitive to small amounts of gluten than others. Until you know how sensitive you are It is probably best to be extra careful. Is this a crustless pizza?  I looked on the Papa Murphy website, clicked on nutrition and filtered by “avoid gluten”. The only pizzas that it said were gluten free were crustless slices. Papa Murphy’s nutrition  
    • Colleen H
      Has anyone had a reaction to gluten free pasta ?  I made ground beef pasta and gluten free sauce and I'm having every symptom there is.  Nausea ,  constipated,   burning pins and needles, anxiety...etc   lots of pain 😞 headache 😭  Does this sound familiar?   I'm literally bed ridden.  
    • Known1
      Thank you for your reply.  I read the same thing about distilled water.  Oddly, drinking that has not caused any sort of reaction in my gut.  Nothing I can hear and feel anyway.  🤣  With that said, I have also switched over to spring water for drinking.  My traditional go to grocery store charges the exact same thing ($1.39) for a gallon of pre-bottled spring, distilled, or RO water.  The manual gallon refills of RO water have an attractive price of $0.49 per gallon, provided you use your own container.  Knowing it causes major bubble gut (and likely other issues) for me, I am avoiding all RO water moving forward.  In fact, I will gladly drink tap before RO water. Here is what Google says when searching "European study regarding reverse osmosis water". --Begin quote: European studies indicate that while reverse osmosis (RO) is highly effective at removing contaminants, it strips essential minerals (calcium, magnesium) and creates low-mineral, slightly acidic water.  Research suggests this may have long-term health implications, such as mineral deficiencies, while also negatively affecting the sensory quality (taste) of water. Key Findings from European Research & Reviews: Health Concerns: Epidemiological studies in Europe have associated low-mineral water consumption with increased risks of cardiovascular disease, cognitive decline, and reduced intake of essential nutrients. Mineral Depletion: RO systems can remove up to 95%+ of solutes, including minerals that are vital for health. Sensory and Quality Impact: Studies show that reducing the mineral content (TDS) of water makes it taste bitter or flat, with optimal, "fresh" taste found in water with a TDS between 190 and 350 mg/L, suggesting post-RO remineralization is necessary for better quality. Regulatory & Safety Context: While not banned, European regulations under the Drinking Water Directive emphasize the importance of mineral content, and countries like Germany often favor alternative treatment technologies that retain minerals. Industrial Application: In Europe, RO is widely accepted for industrial applications (e.g., food, beverage, pharma) due to its high purity output, but it poses challenges like membrane biofouling. Environmental Impact: RO is recognized to use more energy and waste more water (up to 15% more) compared to conventional treatment methods, raising environmental concerns in some municipalities.  Recommendations: Due to the loss of minerals, many experts recommend remineralizing RO water before drinking to improve taste and nutritional value.  --End Quote
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.