Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soya Lecithin


mushroom

Recommended Posts

mushroom Proficient

Okay, I know this isn't gluten, but since I have had to go soy-free also, every time I see the word soy in any shape or form I run a country mile. Of course, this has included soya lecithin, but I have been getting inklings in some posts that this can perhaps be differentiated from actual soy products. Is this so or is it just as deadly for those of us who are sensitive?

This is a very important issue to me (a chocaholic) since it makes the difference between eating chocolate and not eating any chocolate except Lindt 70% dark, which is okay but very limiting. Like no choc. chip cookies, etc.

What's the story?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Probably the only thing you can do is try some chocolate with lecithin in it. My family was intolerant to soy but do fine with lecithin now. We were totally soy free for over a year though. We will eat stuff with soyoil (like mayo) when we eat at other people's houses since we don't want to put them through any more of a headache than gluten free. We are violently intolerant though and the long break may have allowed us some minor indulgences.

Juliebove Rising Star

If you have a soy allergy, you might be able to eat soy lecithin or soybean oil. Or you might not. Or you could simply buy soy free chocolates. Here are two places where you can get them.

Open Original Shared Link

Open Original Shared Link

You do have to make sure that the product you buy is also gluten-free because they do sell some gluten containing items.

mushroom Proficient

Thank you both for your responses. I think I am too "fresh" to attempt the soy lecithin yet--maybe a little further down the road since I am not ready for the itching yet. Julie, the soyfreesales site does offer some soy- and gluten-free choc. chips. I will order some when in U.S. and then I can make cookies!

  • 7 years later...
toneb66 Newbie

Hi, 

I am new here and was searching the forums for anything to do with soy lecithin.

I'm gluten intolerant and have been gluten free now for 2 years. Throughout that time I have felt quite ill on quite a few occasions - aches in my neck/shoulders, arms and legs and just a general feeling of lethargy - the kind of feeling that you get when you have the flu. I'd always put this down to the fact that I'd maybe been glutened but I could never work out what was causing it. 

Last week I was reading that this may be being caused by soy lecithins, which are found in many products. I decided to try eliminating any foods containing them - I was surprised how many things do! 

All week I have felt fine.....until this afternoon. I ate a bowl of Whole Earth Cornflakes not realising that they contain soy lecithins and I feel awful once more. I am now in no doubt that this is the cause of the aches and pains. I'm just wondering if anyone has experienced similar?

 

  • 2 weeks later...
toneb66 Newbie

An update on this. Yesterday I popped a square of chocolate into my mouth and before I had even swallowed it I realised that it contained soy lecithin. I didn't actually swallow any but last night I felt horrible again....aches in my arms, legs and neck. I am convinced it's the lecithin - I do seem ok when I eat soy though although I try to avoid that if I can.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to science enthusiast Christi's topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

    2. - science enthusiast Christi posted a topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

    3. - trents replied to Healthierbody2026's topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

    4. - Healthierbody2026 posted a topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,462
    • Most Online (within 30 mins)
      7,748

    jjwejackso
    Newest Member
    jjwejackso
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics". 
    • science enthusiast Christi
      Hey Celiac friends,  I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation, I found out that I'm intolerant to any disaccharides (things with sucrose, maltose) and some starches. I've since figured my small intestine stopped making some digestive enzymes. Since Celiac causes the immune system to attack the small intestine, I wonder if I was getting low-level gluten contamination from my environment. (My family eats gluten in our home, and I have to use a shared kitchen at work for lunch.)  I am apparently among the 2% of Celiacs who also have a similar reaction to soy. I've been avoiding both gluten and soy for over a decade now, but sometimes you just get poisoned. For example, I love my houseplants and bought an insect-preventing spray online. After spraying it on all my houseplants, I found out it has soybean oil. Sure enough, two days later I was sick. Soy is such a big ingredient used in everything, I doubt it's possible for me to avoid it completely. Everyone uses lotions with soy on their hands, so every doorknob and switch and item I touch is risky for me.  I was just wondering, has anyone else had carbohydrate intolerance after or related to Celiac? My doctor doesn't know anything about it, especially since I can still digest lactose. Wondering if there are other people out there with similar stories. If eating was complicated before, now it's a bit crazy to be honest.  Thanks, Community! 
    • trents
      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity". 
    • Heatherisle
    • Healthierbody2026
      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.