Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why The Food Intolerances?


holdthegluten

Recommended Posts

holdthegluten Rising Star

I ordered the OAT test. What does it sy about avoiding prior to testing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
I ordered the OAT test. What does it sy about avoiding prior to testing?

Which test kit did you order.

For the OAT test by itself you just have to avoid apples, grapes, cranberries and pears (and any product containing their juices) for 24 hours prior to collecting urine.

If you got the combo...with the yeast culture sensitivity test...then you will have to avoid the antifungals. I threw away my instructions so I dont have the list anymore....but you'll get the paperwork with the test kit. Read it all before you start the test...to make sure you're not taking/eating something that might interfere.

holdthegluten Rising Star
Which test kit did you order.

For the OAT test by itself you just have to avoid apples, grapes, cranberries and pears (and any product containing their juices) for 24 hours prior to collecting urine.

If you got the combo...with the yeast culture sensitivity test...then you will have to avoid the antifungals. I threw away my instructions so I dont have the list anymore....but you'll get the paperwork with the test kit. Read it all before you start the test...to make sure you're not taking/eating something that might interfere.

I ordered the OAT with the yeast culture. Do you remember if i need to avoid digestive enzymes. I would like to continue taking these. I m going to up my carbs and sugars prior to testing to make sure i give the test the best chance. Thanks

Rachel--24 Collaborator
I ordered the OAT with the yeast culture. Do you remember if i need to avoid digestive enzymes. I would like to continue taking these. I m going to up my carbs and sugars prior to testing to make sure i give the test the best chance. Thanks

I'm pretty sure you have to cut out the digestive enzymes.....but I dont recall the time frame. If you call Great Plains they should be able to tell you. I cant remember the specifics because I was also doing the CDSA (a 3 day stool test) at the same time and I dont recall which instructions said what. I think they both said to discontinue the enzymes.....but I think they also had different time frames.

If you feel very confidant about the yeast problem then go ahead with the yeast culture. If you're not sure you can always wait on it. If the OAT indicates that yeast is a problem you could go ahead and order the yeast culture later.

I added the yeast culture because I've already had evidence of big yeast problems in previous tests. Its cheaper if you order the COMBO....then it is to order them seperately.....but I just thought I'd let you know in case you wanna hold off on that part. You dont have to discontinue the enzymes for the OAT by itself....you'd only have to avoid the fruits I listed earlier.

holdthegluten Rising Star
I'm pretty sure you have to cut out the digestive enzymes.....but I dont recall the time frame. If you call Great Plains they should be able to tell you. I cant remember the specifics because I was also doing the CDSA (a 3 day stool test) at the same time and I dont recall which instructions said what. I think they both said to discontinue the enzymes.....but I think they also had different time frames.

If you feel very confidant about the yeast problem then go ahead with the yeast culture. If you're not sure you can always wait on it. If the OAT indicates that yeast is a problem you could go ahead and order the yeast culture later.

I added the yeast culture because I've already had evidence of big yeast problems in previous tests. Its cheaper if you order the COMBO....then it is to order them seperately.....but I just thought I'd let you know in case you wanna hold off on that part. You dont have to discontinue the enzymes for the OAT by itself....you'd only have to avoid the fruits I listed earlier.

What would you say would be the main cause of SIBO or Candida overgrowth in my situation? The Celiac has been addressed and resukts showed i am fully healed and in remission. Why would i still have a Overgrowth of yeast and/or bacteria?

holdthegluten Rising Star
I'm pretty sure you have to cut out the digestive enzymes.....but I dont recall the time frame. If you call Great Plains they should be able to tell you. I cant remember the specifics because I was also doing the CDSA (a 3 day stool test) at the same time and I dont recall which instructions said what. I think they both said to discontinue the enzymes.....but I think they also had different time frames.

If you feel very confidant about the yeast problem then go ahead with the yeast culture. If you're not sure you can always wait on it. If the OAT indicates that yeast is a problem you could go ahead and order the yeast culture later.

I added the yeast culture because I've already had evidence of big yeast problems in previous tests. Its cheaper if you order the COMBO....then it is to order them seperately.....but I just thought I'd let you know in case you wanna hold off on that part. You dont have to discontinue the enzymes for the OAT by itself....you'd only have to avoid the fruits I listed earlier.

Last night I ate quite a bit of carbs and today i feel awful. I wanted to give the best chance for the test to find whats ailing me by eating this way, but i think i should stick to the high protein because I cant stand feeling this way. What do you think

Lockheed Apprentice

Well 1) when you're not gluten free you don't absorb things correctly so maybe you weren't absorbing your food intolerances enough to have an appreciable response 2) just because you didn't notice a problem, doesn't mean there wasn't one as my bone density proved to me and 3) it's like a frog in water, if you slowly increase the heat, he'll willingly let you boil him. Those of us with intolerances didn't just develop them suddenly. It's not like an allergy in that sense. Slowly you had a reaction and eventually that reaction became a large enough response that it caught your attention. I could be way off base but that's just my thought on it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
What would you say would be the main cause of SIBO or Candida overgrowth in my situation? The Celiac has been addressed and resukts showed i am fully healed and in remission. Why would i still have a Overgrowth of yeast and/or bacteria?

If you had SIBO.....how would that have resolved without treatment?? Same with candida overgrowth....if you have stuff going on which is preventing healing....then you wont heal. You havent healed from *everything* because if you had...you would be symptom free. These other problems dont usually disappear just because you've dealt with the Celiac Disease.

The results show that the diet is working for you....you no longer have antigliadin antibodies and you no longer have damage as a result of Celiac. So that part is taken care of.

SIBO...or candida....or parasites...or anything else that you may have going on would be totally seperate from Celiac. They may have occured as a result of weakened immune system due to Celiac....or they may have actually triggered Celiac in the first place. If you have any of these issues theres no way to know what the main cause is.....only that your immune system was not capable of keeping them in check.

Either way....if you have other stuff going on....it doesnt necessarily go away just because you are now gluten free.

Thats why its good that you're having tests done to see what else might be going on.

Another common one is Lyme.....lots and lots of people have that bacteria in their system and it is weakening the immune system....causing all sorts of problems. Some of them have Celiac or gluten intolerance....they need to eliminate gluten.....but that doesnt do anything to rid them of the Lyme. They still need treatment in order to become well.

You just need to find out what else you have going on....so that you can treat it and get better. You've got an adorable baby and I hope that you can get some answers so that you can put all this other stuff behind you and just enjoy being a daddy. :)

Rachel--24 Collaborator
Last night I ate quite a bit of carbs and today i feel awful. I wanted to give the best chance for the test to find whats ailing me by eating this way, but i think i should stick to the high protein because I cant stand feeling this way. What do you think

I dont think you should do anything that is gonna make you feel miserable.

I pretty much know which foods I can get away with without feeling too bad....so I didnt push it to the point that I was feeling horrible. I can eat some sweets and not get too messed up...so I just ate some of the things which I knew for sure wouldnt cause bad reactions.

You may have overdid it. If you're feeling horrible then you shouldnt continue eating those foods. Are there any fruits...or sweet things that you can tolerate without feeling bad?? I would stick to the stuff that causes the least reaction. If you feel better eating nothing sweet at all....then stick to that....or if you can handle some sweets (in small amounts) then try that.

There is no rule about what to eat before testing. I just didnt want to be totally anti-candida diet while I was doing this.

Most important is to stop the antifungal treatments.

holdthegluten Rising Star

Thank you so much...........you are my GO TO GIRL! I appreciate your advice and help. I will keep you posted after i get the test done and receive my results. I would like to PM you, but your inbox is full. Stay tuned, im sure i will want to bounce ideas off you. Thanks for the nice comment about my baby. If you would like to view more pics of him, you can go to babysites.com and type in Levi Lung where it asks for his name. I know........its a weird last name being im not chinese.

Rachel--24 Collaborator
I would like to PM you, but your inbox is full. Stay tuned, im sure i will want to bounce ideas off you.

My inbox is almost always full.....I guess I'm better about responding to posts. :ph34r:

Just let me know if its full and you have something you want to send. You can always post a message to me in the "OMG thread" because I read there daily....so I wont miss it.

I look forward to hearing your results and I'll be keeping my fingers crossed that you get some answers. :)

I still think Lyme testing is important for anyone with chronic symtoms like this....it can lead to all of these additional problems...the Celiac, the yeast, parasites, bacteria...all of it can be a result of undiagnosed Lyme and the stress on the immune system. I think everyone here who has tested with a high quality lab has come back positive for Lyme....so its definately one of the more common reasons for these ongoing problems.

Hopefully this is enough for you....but if not...that would definately be the next thing I'd look into.

Thanks for the link....I would love to see more pics of Levi! I will definately check them out.

I love all the pics I've seen in your avatar. :)

I'm gonna clear my pm's right now if you want to send something.

  • 2 weeks later...
dbmamaz Explorer

I finally got ahold of the doctor's office. He doesnt take my insurance ( not suprising). The receptionist said "No, he doesnt have very many patients who have candida . . .). But when I mentioned chelation (which i was pronouncing wrong) she was much more animated, explaining the process, the prices, etc. I"m not sure i want to pay out of pocket to see a doctor who will most likely be looking for the metals first, rather than looking at other reasons i might be struggling with candida. Frustrating.

Rachel--24 Collaborator
I"m not sure i want to pay out of pocket to see a doctor who will most likely be looking for the metals first, rather than looking at other reasons i might be struggling with candida. Frustrating.

Actually metals are strongly linked to chronic candida problems....particularly mercury. Personally, I think I'd be more concerned if my doctors werent looking at metals as a possibility.

If there are other things that you feel are more likely to be your problem....you can definately ask to be tested for those things.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.