Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why The Food Intolerances?


holdthegluten

Recommended Posts

holdthegluten Rising Star

I ordered the OAT test. What does it sy about avoiding prior to testing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
I ordered the OAT test. What does it sy about avoiding prior to testing?

Which test kit did you order.

For the OAT test by itself you just have to avoid apples, grapes, cranberries and pears (and any product containing their juices) for 24 hours prior to collecting urine.

If you got the combo...with the yeast culture sensitivity test...then you will have to avoid the antifungals. I threw away my instructions so I dont have the list anymore....but you'll get the paperwork with the test kit. Read it all before you start the test...to make sure you're not taking/eating something that might interfere.

holdthegluten Rising Star
Which test kit did you order.

For the OAT test by itself you just have to avoid apples, grapes, cranberries and pears (and any product containing their juices) for 24 hours prior to collecting urine.

If you got the combo...with the yeast culture sensitivity test...then you will have to avoid the antifungals. I threw away my instructions so I dont have the list anymore....but you'll get the paperwork with the test kit. Read it all before you start the test...to make sure you're not taking/eating something that might interfere.

I ordered the OAT with the yeast culture. Do you remember if i need to avoid digestive enzymes. I would like to continue taking these. I m going to up my carbs and sugars prior to testing to make sure i give the test the best chance. Thanks

Rachel--24 Collaborator
I ordered the OAT with the yeast culture. Do you remember if i need to avoid digestive enzymes. I would like to continue taking these. I m going to up my carbs and sugars prior to testing to make sure i give the test the best chance. Thanks

I'm pretty sure you have to cut out the digestive enzymes.....but I dont recall the time frame. If you call Great Plains they should be able to tell you. I cant remember the specifics because I was also doing the CDSA (a 3 day stool test) at the same time and I dont recall which instructions said what. I think they both said to discontinue the enzymes.....but I think they also had different time frames.

If you feel very confidant about the yeast problem then go ahead with the yeast culture. If you're not sure you can always wait on it. If the OAT indicates that yeast is a problem you could go ahead and order the yeast culture later.

I added the yeast culture because I've already had evidence of big yeast problems in previous tests. Its cheaper if you order the COMBO....then it is to order them seperately.....but I just thought I'd let you know in case you wanna hold off on that part. You dont have to discontinue the enzymes for the OAT by itself....you'd only have to avoid the fruits I listed earlier.

holdthegluten Rising Star
I'm pretty sure you have to cut out the digestive enzymes.....but I dont recall the time frame. If you call Great Plains they should be able to tell you. I cant remember the specifics because I was also doing the CDSA (a 3 day stool test) at the same time and I dont recall which instructions said what. I think they both said to discontinue the enzymes.....but I think they also had different time frames.

If you feel very confidant about the yeast problem then go ahead with the yeast culture. If you're not sure you can always wait on it. If the OAT indicates that yeast is a problem you could go ahead and order the yeast culture later.

I added the yeast culture because I've already had evidence of big yeast problems in previous tests. Its cheaper if you order the COMBO....then it is to order them seperately.....but I just thought I'd let you know in case you wanna hold off on that part. You dont have to discontinue the enzymes for the OAT by itself....you'd only have to avoid the fruits I listed earlier.

What would you say would be the main cause of SIBO or Candida overgrowth in my situation? The Celiac has been addressed and resukts showed i am fully healed and in remission. Why would i still have a Overgrowth of yeast and/or bacteria?

holdthegluten Rising Star
I'm pretty sure you have to cut out the digestive enzymes.....but I dont recall the time frame. If you call Great Plains they should be able to tell you. I cant remember the specifics because I was also doing the CDSA (a 3 day stool test) at the same time and I dont recall which instructions said what. I think they both said to discontinue the enzymes.....but I think they also had different time frames.

If you feel very confidant about the yeast problem then go ahead with the yeast culture. If you're not sure you can always wait on it. If the OAT indicates that yeast is a problem you could go ahead and order the yeast culture later.

I added the yeast culture because I've already had evidence of big yeast problems in previous tests. Its cheaper if you order the COMBO....then it is to order them seperately.....but I just thought I'd let you know in case you wanna hold off on that part. You dont have to discontinue the enzymes for the OAT by itself....you'd only have to avoid the fruits I listed earlier.

Last night I ate quite a bit of carbs and today i feel awful. I wanted to give the best chance for the test to find whats ailing me by eating this way, but i think i should stick to the high protein because I cant stand feeling this way. What do you think

Lockheed Apprentice

Well 1) when you're not gluten free you don't absorb things correctly so maybe you weren't absorbing your food intolerances enough to have an appreciable response 2) just because you didn't notice a problem, doesn't mean there wasn't one as my bone density proved to me and 3) it's like a frog in water, if you slowly increase the heat, he'll willingly let you boil him. Those of us with intolerances didn't just develop them suddenly. It's not like an allergy in that sense. Slowly you had a reaction and eventually that reaction became a large enough response that it caught your attention. I could be way off base but that's just my thought on it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
What would you say would be the main cause of SIBO or Candida overgrowth in my situation? The Celiac has been addressed and resukts showed i am fully healed and in remission. Why would i still have a Overgrowth of yeast and/or bacteria?

If you had SIBO.....how would that have resolved without treatment?? Same with candida overgrowth....if you have stuff going on which is preventing healing....then you wont heal. You havent healed from *everything* because if you had...you would be symptom free. These other problems dont usually disappear just because you've dealt with the Celiac Disease.

The results show that the diet is working for you....you no longer have antigliadin antibodies and you no longer have damage as a result of Celiac. So that part is taken care of.

SIBO...or candida....or parasites...or anything else that you may have going on would be totally seperate from Celiac. They may have occured as a result of weakened immune system due to Celiac....or they may have actually triggered Celiac in the first place. If you have any of these issues theres no way to know what the main cause is.....only that your immune system was not capable of keeping them in check.

Either way....if you have other stuff going on....it doesnt necessarily go away just because you are now gluten free.

Thats why its good that you're having tests done to see what else might be going on.

Another common one is Lyme.....lots and lots of people have that bacteria in their system and it is weakening the immune system....causing all sorts of problems. Some of them have Celiac or gluten intolerance....they need to eliminate gluten.....but that doesnt do anything to rid them of the Lyme. They still need treatment in order to become well.

You just need to find out what else you have going on....so that you can treat it and get better. You've got an adorable baby and I hope that you can get some answers so that you can put all this other stuff behind you and just enjoy being a daddy. :)

Rachel--24 Collaborator
Last night I ate quite a bit of carbs and today i feel awful. I wanted to give the best chance for the test to find whats ailing me by eating this way, but i think i should stick to the high protein because I cant stand feeling this way. What do you think

I dont think you should do anything that is gonna make you feel miserable.

I pretty much know which foods I can get away with without feeling too bad....so I didnt push it to the point that I was feeling horrible. I can eat some sweets and not get too messed up...so I just ate some of the things which I knew for sure wouldnt cause bad reactions.

You may have overdid it. If you're feeling horrible then you shouldnt continue eating those foods. Are there any fruits...or sweet things that you can tolerate without feeling bad?? I would stick to the stuff that causes the least reaction. If you feel better eating nothing sweet at all....then stick to that....or if you can handle some sweets (in small amounts) then try that.

There is no rule about what to eat before testing. I just didnt want to be totally anti-candida diet while I was doing this.

Most important is to stop the antifungal treatments.

holdthegluten Rising Star

Thank you so much...........you are my GO TO GIRL! I appreciate your advice and help. I will keep you posted after i get the test done and receive my results. I would like to PM you, but your inbox is full. Stay tuned, im sure i will want to bounce ideas off you. Thanks for the nice comment about my baby. If you would like to view more pics of him, you can go to babysites.com and type in Levi Lung where it asks for his name. I know........its a weird last name being im not chinese.

Rachel--24 Collaborator
I would like to PM you, but your inbox is full. Stay tuned, im sure i will want to bounce ideas off you.

My inbox is almost always full.....I guess I'm better about responding to posts. :ph34r:

Just let me know if its full and you have something you want to send. You can always post a message to me in the "OMG thread" because I read there daily....so I wont miss it.

I look forward to hearing your results and I'll be keeping my fingers crossed that you get some answers. :)

I still think Lyme testing is important for anyone with chronic symtoms like this....it can lead to all of these additional problems...the Celiac, the yeast, parasites, bacteria...all of it can be a result of undiagnosed Lyme and the stress on the immune system. I think everyone here who has tested with a high quality lab has come back positive for Lyme....so its definately one of the more common reasons for these ongoing problems.

Hopefully this is enough for you....but if not...that would definately be the next thing I'd look into.

Thanks for the link....I would love to see more pics of Levi! I will definately check them out.

I love all the pics I've seen in your avatar. :)

I'm gonna clear my pm's right now if you want to send something.

  • 2 weeks later...
dbmamaz Explorer

I finally got ahold of the doctor's office. He doesnt take my insurance ( not suprising). The receptionist said "No, he doesnt have very many patients who have candida . . .). But when I mentioned chelation (which i was pronouncing wrong) she was much more animated, explaining the process, the prices, etc. I"m not sure i want to pay out of pocket to see a doctor who will most likely be looking for the metals first, rather than looking at other reasons i might be struggling with candida. Frustrating.

Rachel--24 Collaborator
I"m not sure i want to pay out of pocket to see a doctor who will most likely be looking for the metals first, rather than looking at other reasons i might be struggling with candida. Frustrating.

Actually metals are strongly linked to chronic candida problems....particularly mercury. Personally, I think I'd be more concerned if my doctors werent looking at metals as a possibility.

If there are other things that you feel are more likely to be your problem....you can definately ask to be tested for those things.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    2. - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    3. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,267
    • Most Online (within 30 mins)
      7,748

    Kristine Ryder
    Newest Member
    Kristine Ryder
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory. Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.