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Please Help With Daughter's Blood Test Results!


starrymazed

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starrymazed Rookie

Hello. I have posted on here a few times, and recently I was diagnosed (through biopsy) with celiac disease. I fully believe that my daughter (possibly my son as well) has it. While they don't have a dr appt for that until July 1st, my seven year old daughter just recently had a slew of blood work done for her psych dr (she was just diagnosed as having ADHD) and I am trying to make sense of the results. Basically, her Creatinine levels, Bilirubin, Hematocrit, MPV, Neutrophil, and Lymphocyte %M levels were all low, while her Platelet count and Lymphocyte % levels were high. Does anyone know what this means? Is it celiac? She has plenty of stomach, skin, and head issues to make me believe that is what it is, but these blood results are scaring me. Please, any input would be much appreciated. The dr didn't offer much advice; she said that the celiac could explain these levels.


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betsyabailey Rookie

I'm not sure if she has celiac or not only the doc can tell you that. I can say with a diagnosed parent and behavior problems and odd lab work my guess is probably. Good luck.

Betsy

Rachel--24 Collaborator

Celiac Disease cannot be determined from those tests. You will have to wait for the Celiac tests to be done since none of these other tests are specific for Celiac.

starrymazed Rookie

I am aware that this is not a test for celiac's disease. What I was more specifically asking was if there is a connection between celiac's disease and having the Bilirubin and low blood count levels that she has. That is what I cannot determine online, and while I am awaiting the doctor, I thought I would ask on here as there seems to be quite a few people who know their stuff. :)

Rachel--24 Collaborator
I am aware that this is not a test for celiac's disease. What I was more specifically asking was if there is a connection between celiac's disease and having the Bilirubin and low blood count levels that she has. That is what I cannot determine online, and while I am awaiting the doctor, I thought I would ask on here as there seems to be quite a few people who know their stuff. :)

Yes...they can be symptoms of Celiac....or they can be symptoms from something else entirely. You will not be able to determine this (with any certainty) without knowing whether or not she has Celiac.

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    • par18
      Thanks for the reply. 
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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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