Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh My Goodness


Canadiangirl

Recommended Posts

Canadiangirl Apprentice

It's been awhile since I have posted. I feel like I am in a nightmare! I have been taking the same multivitamin for about 3 years. Its actually 3 pills, through a company of a freind of mine. I assumed ( first mistake) it was fine as when she introduced me to them I was just really begining to understand my Celiac and gluten awareness. A label said " no naturally occuring gluten". I assumed( again...big mistake) it was fine. I ran out of my vitamins about a month ago. I noticed within a week my skin broke out, and I was bruising easily so i ordered a new box. BUT today when it arrived I thought - may as well read the ingredients. To my horror, Maltodextrin AND Modified Food Starch are among the first non-medical ingredients. I felt sick! I called my freind and explained...her reponse? " well, i wonder how much it really contains. sometimes they have to list it b/c its made on the same equipment, or maybe it just has trace amounts" oh my word!!!! I kindly and breifly said, yet again, I cannot even have traces of gluten. Its really not good for me.

Anyways, I have sent the vitamins back. I just cant beleive this!!! And now I am thinking, HOLY COW what have I been putting in my body! Another light bulb just went on as well, I have had this terrible skin condition on my scalp for....ding ding... about 3 years!!!! I wonder if it will clear now?

What can I do to heal? I am soooo choked at msyelf for being so niave! I would sometime throw up the vitamins within 20 minutes of taking them and I thought it was just b/c they were potent! Now I know my body was like " hello!!!! please dont take these!"

Thanks for listening:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
It's been awhile since I have posted. I feel like I am in a nightmare! I have been taking the same multivitamin for about 3 years. Its actually 3 pills, through a company of a freind of mine. I assumed ( first mistake) it was fine as when she introduced me to them I was just really begining to understand my Celiac and gluten awareness. A label said " no naturally occuring gluten". I assumed( again...big mistake) it was fine. I ran out of my vitamins about a month ago. I noticed within a week my skin broke out, and I was bruising easily so i ordered a new box. BUT today when it arrived I thought - may as well read the ingredients. To my horror, Maltodextrin AND Modified Food Starch are among the first non-medical ingredients. I felt sick! I called my freind and explained...her reponse? " well, i wonder how much it really contains. sometimes they have to list it b/c its made on the same equipment, or maybe it just has trace amounts" oh my word!!!! I kindly and breifly said, yet again, I cannot even have traces of gluten. Its really not good for me.

Anyways, I have sent the vitamins back. I just cant beleive this!!! And now I am thinking, HOLY COW what have I been putting in my body! Another light bulb just went on as well, I have had this terrible skin condition on my scalp for....ding ding... about 3 years!!!! I wonder if it will clear now?

What can I do to heal? I am soooo choked at msyelf for being so niave! I would sometime throw up the vitamins within 20 minutes of taking them and I thought it was just b/c they were potent! Now I know my body was like " hello!!!! please dont take these!"

Thanks for listening:(

I'm so sorry to hear all that. I hope you feel better soon.

ShayFL Enthusiast

Try not to be too hard on yourself. We all make mistakes. You can correct it now and move on. I hope you feel better soon.

aikiducky Apprentice

Maltodextrin and modified food starch don't automatically contain gluten, they can be made of corn for example. Did you check this with the company?

Pauliina

Ursa Major Collaborator
Maltodextrin and modified food starch don't automatically contain gluten, they can be made of corn for example. Did you check this with the company?

Pauliina

Pauliina, you are right. But why would she throw up after taking them? That makes me think they may have gluten. On the other hand, maybe Canadiangirl is intolerant to corn or whatever the starch is that is in those vitamin pills?

slmprofesseur Apprentice

Usually modified food starch (unspecified source) is usually wheat. You should probably call to find out. I usually go for something that is clearly labeled. Hope you feel better soon!

ravenwoodglass Mentor
Usually modified food starch (unspecified source) is usually wheat. You should probably call to find out. I usually go for something that is clearly labeled. Hope you feel better soon!

In the US modified food starch in FOOD muct be labeled as wheat if it is and in food if it is not specified it must be corn. This same rule does NOT apply for meds or supplements. There are no labeling regs for those and the binders can change at will. Also with supplements ingredients like wheat germ oil and barley grass etc can and are often in items that are supposed to be gluten-free. We need to use care, contact the maker and verify all ingredients on any meds or supplements we use. This applies especially to generic drugs as they can change binders at will.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadiangirl Apprentice

Thanks for all of the replies! This is so nice. I actually did not verify wih the company the source of the maltodextrin and mod. food starch. I paniced! I will do this! how great would it be if i just overreacted!! But i am still pretty sure. The whole scalp/sickness thing makes me very nervous - I'll let ya'll know!

Canadiangirl Apprentice

hello all,

so the compny got back to me very quickly. how nice! however, as suspected:

"The Modified Food Starch in the Double X is derived from corn or wheat

starch, we use both.

At this time, we are not able to certify that all products available

through Quixtar are gluten free. Please note that there are currently no

Canadian regulations regarding the use of the term "gluten-free". We expect

this to change within the next few years, but at this time, a product label

may say "gluten-free" if there is no known source of gluten added to the

product. However, this does not guarantee that the product is actually free

of any trace amounts of gluten."

LAME!

Does anyone know why canada has no regulations regarding gluen free labeling?? Does this mean I can not trust "gluten free" to be gluten free ????

home-based-mom Contributor
LAME!

Does anyone know why canada has no regulations regarding gluen free labeling?? Does this mean I can not trust "gluten free" to be gluten free ????

I'm not sure about Canadian laws, but as ravenwoodglass posted, in the USA allergens in medications and supplements do NOT have to be labeled. It would seem that everyone but the FDA can see how asinine that is, but whatever . . . :angry:

Even worse, once regulations do go into effect, companies will be allowed to label a product as "Gluten Free" if the gluten it contains is below a set minimum, such as 20 ppm. So "Gluten Free" may or may not really be "Gluten Free" so no you will not be able to trust it.

Canadiangirl Apprentice

holy cow. i think this is unbelievably terrible!!!!!!!!!!!!!!!!!!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.