Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cracks In The Corners Of My Mouth Brought Me Here

The-P-Lady

Recommended Posts

The-P-Lady Newbie
The-P-Lady
Posted

I have felt weird all winter long, cold, shaky, fatigued, achy, gassy, bloated. In early May my symptoms kicked into overdrive. I started missing work and headed to the doctor to be informed that I have a cyst on my gallbladder. After CBC's, Liver Panels, Ana Scans, Rheumatoid Factor, hormone workups, and inflammation panels, nothing significant showed up. A surgeon was too eager to remove my gallbladder but I insisted that I know what was behind these odd symptoms. Then about six weeks ago, the corners of my mouth started cracking. I was horrified. I have never had so much as a cold sore in my whole life! I started investigating. Long story short I ended up at this wonderful site. My family doc was at a loss, so I suggested seeing an gastro. She couldn't argue. I have my appointment in two days. I have so many of the symptoms you talk about , I couldn't ignore the information.

Ironically enough, I work in a laboratory that sends several Celiac Panels to Mayo Clinic each day, but I really didn't know much about the disease, I just knew the lab work.

Being able to read the postings over the past few weeks has been such a comfort to me. Thanks for keeping this fantastic site going. I have a feeling that I will be using this site much more in the future. :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted

Hello

Me too I had the corners of my mouth cracking. Awful feeling. I hope you soon find the answer to your symptoms. Don't' go gluten free before your tests, cause they may be false.

Meline

ShayFL Enthusiast
ShayFL
Posted

Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.

HouseKat Apprentice
HouseKat
Posted
Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.

Shay's correct, a Riboflavin deficiency will cause the cracks at the corners of your mouth (and make your eyes sensitive to light). I had them for years and wasn't able to get rid of them until I started taking a B vitamin complex supplement.

I always know when I've forgotten to take my daily multi-vitamin for a while, when I start to get a mouth crack...

Kate

Generic Apprentice
Generic
Posted

I too had problems with cracks at the corners of my mouth when I was growing up. My mom would give me vitamin B 12 or 6 or which ever one it was and it would go away. It always came back if I quit taking it. Of course since going gluten free 20 years ago I haven't had an issue.

The-P-Lady Newbie
The-P-Lady
Posted
  • Author

I was very confused at first. I couldn't figure out how I could be deficient in any vitamins. I really don't eat that badly, plus I am very diligent about taking a quality high potency multi-vitamin. That is when I started to dig for more answers. I thought, "How could I possibly be deficient in any vitamins unless my body is not absorbing nutrients?".

I went to see the Gas Doc last week for my first visit. I was completely lost in a brain fog during the visit. I didn't say everything I wanted to say because I was so zoned out. I was surprised to find my blood pressure was a bit high (128/83..I am usually around 110/60) and my pulse was racing. I was too zoned out to be nervous!

The doctor really didn't say anything too specific. Although, I haven't had any blood work confirming any vitamin deficiency, I was sitting there with what I call my "clown mouth", all red and cracked, and he did say that we will start with an endoscope to see "why your body is not absorbing nutrients". That is July 29th. Do I insist on the Celiac Panel blood work no matter what?

April in KC Apprentice
April in KC
Posted
That is July 29th. Do I insist on the Celiac Panel blood work no matter what?

I would definitely ask for the panel. Damage can be patchy, so biopsies can miss it - you need all the puzzle pieces to help put it together.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748
    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.