Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cracks In The Corners Of My Mouth Brought Me Here

The-P-Lady

Recommended Posts

The-P-Lady Newbie
The-P-Lady
Posted

I have felt weird all winter long, cold, shaky, fatigued, achy, gassy, bloated. In early May my symptoms kicked into overdrive. I started missing work and headed to the doctor to be informed that I have a cyst on my gallbladder. After CBC's, Liver Panels, Ana Scans, Rheumatoid Factor, hormone workups, and inflammation panels, nothing significant showed up. A surgeon was too eager to remove my gallbladder but I insisted that I know what was behind these odd symptoms. Then about six weeks ago, the corners of my mouth started cracking. I was horrified. I have never had so much as a cold sore in my whole life! I started investigating. Long story short I ended up at this wonderful site. My family doc was at a loss, so I suggested seeing an gastro. She couldn't argue. I have my appointment in two days. I have so many of the symptoms you talk about , I couldn't ignore the information.

Ironically enough, I work in a laboratory that sends several Celiac Panels to Mayo Clinic each day, but I really didn't know much about the disease, I just knew the lab work.

Being able to read the postings over the past few weeks has been such a comfort to me. Thanks for keeping this fantastic site going. I have a feeling that I will be using this site much more in the future. :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted

Hello

Me too I had the corners of my mouth cracking. Awful feeling. I hope you soon find the answer to your symptoms. Don't' go gluten free before your tests, cause they may be false.

Meline

ShayFL Enthusiast
ShayFL
Posted

Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.

HouseKat Apprentice
HouseKat
Posted
Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.

Shay's correct, a Riboflavin deficiency will cause the cracks at the corners of your mouth (and make your eyes sensitive to light). I had them for years and wasn't able to get rid of them until I started taking a B vitamin complex supplement.

I always know when I've forgotten to take my daily multi-vitamin for a while, when I start to get a mouth crack...

Kate

Generic Apprentice
Generic
Posted

I too had problems with cracks at the corners of my mouth when I was growing up. My mom would give me vitamin B 12 or 6 or which ever one it was and it would go away. It always came back if I quit taking it. Of course since going gluten free 20 years ago I haven't had an issue.

The-P-Lady Newbie
The-P-Lady
Posted
  • Author

I was very confused at first. I couldn't figure out how I could be deficient in any vitamins. I really don't eat that badly, plus I am very diligent about taking a quality high potency multi-vitamin. That is when I started to dig for more answers. I thought, "How could I possibly be deficient in any vitamins unless my body is not absorbing nutrients?".

I went to see the Gas Doc last week for my first visit. I was completely lost in a brain fog during the visit. I didn't say everything I wanted to say because I was so zoned out. I was surprised to find my blood pressure was a bit high (128/83..I am usually around 110/60) and my pulse was racing. I was too zoned out to be nervous!

The doctor really didn't say anything too specific. Although, I haven't had any blood work confirming any vitamin deficiency, I was sitting there with what I call my "clown mouth", all red and cracked, and he did say that we will start with an endoscope to see "why your body is not absorbing nutrients". That is July 29th. Do I insist on the Celiac Panel blood work no matter what?

April in KC Apprentice
April in KC
Posted
That is July 29th. Do I insist on the Celiac Panel blood work no matter what?

I would definitely ask for the panel. Damage can be patchy, so biopsies can miss it - you need all the puzzle pieces to help put it together.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.