Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Too Soon To Know?


strawberrygm

Recommended Posts

strawberrygm Enthusiast

my dd has just been diagnosed.

my youngest child has been getting bumps, mainly on his face but some on his shoulders and upper arms, chest and neck.

he is eating more and more table food as he is getting older.

the bumps used to not be there at all.

they dont seem to itch or bother him.

they seem to be under the skin, if that makes sense.

he also has the yellowish nasty poops (not all the time, but sometimes)

i am going on a search for gluten free foods for my dd today, so i will also be looking for baby foods and trying him on it as well to see if it makes a difference.

what do you think?

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



April in KC Apprentice

It's not too early. My 7-year-old and I were both diagnosed in the same week in early 2007. At the time, I was nursing a 9-month-old who had serious skin rashes and food reactions that did not test out as "allergies." He had vomited cereals, so I wasn't feeding him cereals, but he was still getting gluten through nursing. When I was diagnosed and went on a gluten-free diet, his skin cleared up. DH does not clear overnight...I started to see a change in the appearance of his rash within a few days, but it took 3 or 4 weeks for it to go away.

We did have him blood tested for Celiac--he was negative, but that's not unusual in an infant. The important thing was the positive dietary response.

Oh, and we have 3 boys - oldest was frankly Celiac (all blood tests positive). Our middle son, 3 years old at the time, did not have the blood antibodies but has the DQ2 gene and had been losing weight....that cleared up off gluten. Three gluten intolerant boys initially seemed preposterous to us--we had seen stats that said more like 1 in 10 or 1 in 20 family members would be affected. BUT...the mystery cleared up months later when we discovered that my husband also had Celiac too, too. (He had decades of GI problems but didn't make the gluten connection until we went gluten-free at home and he started noticing his symptoms away from home.) So, Celiac/DH mom + Celiac dad = a bunch of gluten-intolerant kids. We all now happily eat gluten-free together.

April in KC Apprentice

Also...the appearance of DH can vary a bit from person to person, child to adult. My own DH rash is the typical elbow rash...but my infant's rash was on his outer cheekbones, above his tailbone, etc. He did get also a few spots in the center of his chest, too. There is something about DH and pressure points--and if you think about it, an infant's pressure points are different.

ravenwoodglass Mentor
my dd has just been diagnosed.

my youngest child has been getting bumps, mainly on his face but some on his shoulders and upper arms, chest and neck.

he is eating more and more table food as he is getting older.

the bumps used to not be there at all.

they dont seem to itch or bother him.

they seem to be under the skin, if that makes sense.

he also has the yellowish nasty poops (not all the time, but sometimes)

i am going on a search for gluten free foods for my dd today, so i will also be looking for baby foods and trying him on it as well to see if it makes a difference.

what do you think?

I think you are a very wise Mom. You may want to consider making the house gluten free. There is a strong chance that the rest of the family will benefit as well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    2. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    3. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    4. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    5. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,883
    • Most Online (within 30 mins)
      7,748

    Jrgrimes914
    Newest Member
    Jrgrimes914
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jay Heying
      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.