Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing - What All Should I Ask For?


ohsotired

Recommended Posts

ohsotired Enthusiast

I feel a little dumb asking this, as I've found many posts listing the tests involved in the Celiac Panel (Antigliadin IgA and IgG, Anti-tissue Transglutaminase Antibody (tTG), IgA and IgG, Anti-endomysial (EMA) IgA and IgG,Total serum IgA), but I'm wondering if there are additinal tests I should be asking for that might help give some clues as to what's going on.

Are there specific vitamin deficiencies that should be checked for?

Are there blood or other tests that can check for malabsorption?

Or should I just start with the celiac panel and go from there?

**My brain is super 'foggy' today, so if what I've written here doesn't make sense, please ask questions and I'll try my best to form a coherent response. :unsure:

TIA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ohsotired Enthusiast

Anyone? Or is my question really really dumb? ;)

nora-n Rookie

I had highish liver numbers, and ferritin had gone down from 60-ish to 30-something.

thyroid antibodies are common too, and I had them.

vit. D often is low.

I think there are other things too that are quite common in celiac.

ohsotired Enthusiast

Thanks for replying nora_n!

Did they find those things with blood tests?

I wonder especially about vitamin deficiencies, as I lost a bunch of weight, can't seem to gain it back, and bruise really really easily. I'm also really tired all the time.

I had some bloodwork done last November, but according to the doc, everything looked 'normal'.

I know they checked thyroid and iron levels, but I don't remember what else.

Rachel--24 Collaborator
I feel a little dumb asking this, as I've found many posts listing the tests involved in the Celiac Panel (Antigliadin IgA and IgG, Anti-tissue Transglutaminase Antibody (tTG), IgA and IgG, Anti-endomysial (EMA) IgA and IgG,Total serum IgA), but I'm wondering if there are additinal tests I should be asking for that might help give some clues as to what's going on.

Are there specific vitamin deficiencies that should be checked for?

Are there blood or other tests that can check for malabsorption?

If you're asking specifically about tests for diagnosing Celiac.....then it would be all of the ones you listed. None of the other tests are specific for Celiac.

Additional testing can be helpful in determining deficiencies or other problems/imbalances...however, they have nothing to do with diagnosing Celiac.

In addition to the blodwork listed above...there is also the endoscopy/biopsy.

Thyroid antibodies, vitmain deficiencies, malabsorption, etc....can all be found in people who do not have Celiac Disease. I actually have all of those issues...for reasons other than Celiac Disease. So those tests arent useful for making the diagnosis.

HouseKat Apprentice

Ohsotired,

Make sure that they do the DNA test too. My blood tests were invalid because I had been gluten-free beforehand, but the DNA test - which I had to argue for - found that I'm a DQ 5. Finally, after 20 years of being sick and nearly 15 years of asking doctors about celiac disease, I was vindicated. The ignorant GI doc ignored the DNA results and tried to tell me that my blood tests "proved" that I was not celiac.

My primary care doc also tests my vitamin D levels twice a year because he's worried about malabsorption leading to osteoporosis.

Kate

I feel a little dumb asking this, as I've found many posts listing the tests involved in the Celiac Panel (Antigliadin IgA and IgG, Anti-tissue Transglutaminase Antibody (tTG), IgA and IgG, Anti-endomysial (EMA) IgA and IgG,Total serum IgA), but I'm wondering if there are additinal tests I should be asking for that might help give some clues as to what's going on.

Are there specific vitamin deficiencies that should be checked for?

Are there blood or other tests that can check for malabsorption?

Or should I just start with the celiac panel and go from there?

**My brain is super 'foggy' today, so if what I've written here doesn't make sense, please ask questions and I'll try my best to form a coherent response. :unsure:

TIA

ohsotired Enthusiast

Rachel--24 - Thanks, I did mean specifically for celiac disease. I just wondered if there were common vitamin deficiencies that could be tested for as well, not necessarily to diagnose celiac disease, but to be on the look out for.

HouseKat - Is there a specific name for the DNA test? I'm still eating gluten, but went gluten-free for 4 short days as a trial and did see some results during that time.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,627
    • Most Online (within 30 mins)
      7,748

    Phyl4546
    Newest Member
    Phyl4546
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.