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Testing - What All Should I Ask For?

ohsotired

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ohsotired Enthusiast
ohsotired
Posted

I feel a little dumb asking this, as I've found many posts listing the tests involved in the Celiac Panel (Antigliadin IgA and IgG, Anti-tissue Transglutaminase Antibody (tTG), IgA and IgG, Anti-endomysial (EMA) IgA and IgG,Total serum IgA), but I'm wondering if there are additinal tests I should be asking for that might help give some clues as to what's going on.

Are there specific vitamin deficiencies that should be checked for?

Are there blood or other tests that can check for malabsorption?

Or should I just start with the celiac panel and go from there?

**My brain is super 'foggy' today, so if what I've written here doesn't make sense, please ask questions and I'll try my best to form a coherent response. :unsure:

TIA

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ohsotired Enthusiast
ohsotired
Posted
  • Author

Anyone? Or is my question really really dumb? ;)

nora-n Rookie
nora-n
Posted

I had highish liver numbers, and ferritin had gone down from 60-ish to 30-something.

thyroid antibodies are common too, and I had them.

vit. D often is low.

I think there are other things too that are quite common in celiac.

ohsotired Enthusiast
ohsotired
Posted
  • Author

Thanks for replying nora_n!

Did they find those things with blood tests?

I wonder especially about vitamin deficiencies, as I lost a bunch of weight, can't seem to gain it back, and bruise really really easily. I'm also really tired all the time.

I had some bloodwork done last November, but according to the doc, everything looked 'normal'.

I know they checked thyroid and iron levels, but I don't remember what else.

Rachel--24 Collaborator
Rachel--24
Posted
I feel a little dumb asking this, as I've found many posts listing the tests involved in the Celiac Panel (Antigliadin IgA and IgG, Anti-tissue Transglutaminase Antibody (tTG), IgA and IgG, Anti-endomysial (EMA) IgA and IgG,Total serum IgA), but I'm wondering if there are additinal tests I should be asking for that might help give some clues as to what's going on.

Are there specific vitamin deficiencies that should be checked for?

Are there blood or other tests that can check for malabsorption?

If you're asking specifically about tests for diagnosing Celiac.....then it would be all of the ones you listed. None of the other tests are specific for Celiac.

Additional testing can be helpful in determining deficiencies or other problems/imbalances...however, they have nothing to do with diagnosing Celiac.

In addition to the blodwork listed above...there is also the endoscopy/biopsy.

Thyroid antibodies, vitmain deficiencies, malabsorption, etc....can all be found in people who do not have Celiac Disease. I actually have all of those issues...for reasons other than Celiac Disease. So those tests arent useful for making the diagnosis.

HouseKat Apprentice
HouseKat
Posted

Ohsotired,

Make sure that they do the DNA test too. My blood tests were invalid because I had been gluten-free beforehand, but the DNA test - which I had to argue for - found that I'm a DQ 5. Finally, after 20 years of being sick and nearly 15 years of asking doctors about celiac disease, I was vindicated. The ignorant GI doc ignored the DNA results and tried to tell me that my blood tests "proved" that I was not celiac.

My primary care doc also tests my vitamin D levels twice a year because he's worried about malabsorption leading to osteoporosis.

Kate

I feel a little dumb asking this, as I've found many posts listing the tests involved in the Celiac Panel (Antigliadin IgA and IgG, Anti-tissue Transglutaminase Antibody (tTG), IgA and IgG, Anti-endomysial (EMA) IgA and IgG,Total serum IgA), but I'm wondering if there are additinal tests I should be asking for that might help give some clues as to what's going on.

Are there specific vitamin deficiencies that should be checked for?

Are there blood or other tests that can check for malabsorption?

Or should I just start with the celiac panel and go from there?

**My brain is super 'foggy' today, so if what I've written here doesn't make sense, please ask questions and I'll try my best to form a coherent response. :unsure:

TIA

ohsotired Enthusiast
ohsotired
Posted
  • Author

Rachel--24 - Thanks, I did mean specifically for celiac disease. I just wondered if there were common vitamin deficiencies that could be tested for as well, not necessarily to diagnose celiac disease, but to be on the look out for.

HouseKat - Is there a specific name for the DNA test? I'm still eating gluten, but went gluten-free for 4 short days as a trial and did see some results during that time.....

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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