Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing - What All Should I Ask For?


ohsotired

Recommended Posts

ohsotired Enthusiast

I feel a little dumb asking this, as I've found many posts listing the tests involved in the Celiac Panel (Antigliadin IgA and IgG, Anti-tissue Transglutaminase Antibody (tTG), IgA and IgG, Anti-endomysial (EMA) IgA and IgG,Total serum IgA), but I'm wondering if there are additinal tests I should be asking for that might help give some clues as to what's going on.

Are there specific vitamin deficiencies that should be checked for?

Are there blood or other tests that can check for malabsorption?

Or should I just start with the celiac panel and go from there?

**My brain is super 'foggy' today, so if what I've written here doesn't make sense, please ask questions and I'll try my best to form a coherent response. :unsure:

TIA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ohsotired Enthusiast

Anyone? Or is my question really really dumb? ;)

nora-n Rookie

I had highish liver numbers, and ferritin had gone down from 60-ish to 30-something.

thyroid antibodies are common too, and I had them.

vit. D often is low.

I think there are other things too that are quite common in celiac.

ohsotired Enthusiast

Thanks for replying nora_n!

Did they find those things with blood tests?

I wonder especially about vitamin deficiencies, as I lost a bunch of weight, can't seem to gain it back, and bruise really really easily. I'm also really tired all the time.

I had some bloodwork done last November, but according to the doc, everything looked 'normal'.

I know they checked thyroid and iron levels, but I don't remember what else.

Rachel--24 Collaborator
I feel a little dumb asking this, as I've found many posts listing the tests involved in the Celiac Panel (Antigliadin IgA and IgG, Anti-tissue Transglutaminase Antibody (tTG), IgA and IgG, Anti-endomysial (EMA) IgA and IgG,Total serum IgA), but I'm wondering if there are additinal tests I should be asking for that might help give some clues as to what's going on.

Are there specific vitamin deficiencies that should be checked for?

Are there blood or other tests that can check for malabsorption?

If you're asking specifically about tests for diagnosing Celiac.....then it would be all of the ones you listed. None of the other tests are specific for Celiac.

Additional testing can be helpful in determining deficiencies or other problems/imbalances...however, they have nothing to do with diagnosing Celiac.

In addition to the blodwork listed above...there is also the endoscopy/biopsy.

Thyroid antibodies, vitmain deficiencies, malabsorption, etc....can all be found in people who do not have Celiac Disease. I actually have all of those issues...for reasons other than Celiac Disease. So those tests arent useful for making the diagnosis.

HouseKat Apprentice

Ohsotired,

Make sure that they do the DNA test too. My blood tests were invalid because I had been gluten-free beforehand, but the DNA test - which I had to argue for - found that I'm a DQ 5. Finally, after 20 years of being sick and nearly 15 years of asking doctors about celiac disease, I was vindicated. The ignorant GI doc ignored the DNA results and tried to tell me that my blood tests "proved" that I was not celiac.

My primary care doc also tests my vitamin D levels twice a year because he's worried about malabsorption leading to osteoporosis.

Kate

I feel a little dumb asking this, as I've found many posts listing the tests involved in the Celiac Panel (Antigliadin IgA and IgG, Anti-tissue Transglutaminase Antibody (tTG), IgA and IgG, Anti-endomysial (EMA) IgA and IgG,Total serum IgA), but I'm wondering if there are additinal tests I should be asking for that might help give some clues as to what's going on.

Are there specific vitamin deficiencies that should be checked for?

Are there blood or other tests that can check for malabsorption?

Or should I just start with the celiac panel and go from there?

**My brain is super 'foggy' today, so if what I've written here doesn't make sense, please ask questions and I'll try my best to form a coherent response. :unsure:

TIA

ohsotired Enthusiast

Rachel--24 - Thanks, I did mean specifically for celiac disease. I just wondered if there were common vitamin deficiencies that could be tested for as well, not necessarily to diagnose celiac disease, but to be on the look out for.

HouseKat - Is there a specific name for the DNA test? I'm still eating gluten, but went gluten-free for 4 short days as a trial and did see some results during that time.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,500
    • Most Online (within 30 mins)
      7,748

    HDM005
    Newest Member
    HDM005
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.