Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have Celiac?


katrinacara

Recommended Posts

katrinacara Rookie

I started to develop problems about 2 months ago that seem like could be celiac disease, but I'm not sure if that's really what it is...

I hear that most people that have celiac have leaky gut...that's not the case with me. I never have that problem. When it first started I noticed that I would get really constipated...for days if i ate any grains. And I would have a swelling and sharp pain in my left rib cage.

I've tried gluten free...It does the same thing. Anything that has grain or is a substitute for grain completely stops me up.

I've thought it could possibly be dairy or soy...but when i quit those and try to eat grain or grain substitutes, it happens again.

I've tried spelt flour, almond flour, bean flour, rice flour, and soy flour. They all affect me.

does this even sound like celiac? or maybe an allergy to something else?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

You could be intolerant to grains in general. This is not uncommon.

But you would need to be tested to find out if you have Celiac since the dietary response is unclear. Blood and biopsy.

  • 5 months later...
wschmucks Contributor

You should get a food allergy test. If it was gluten you would feel a big difference even within a week. I also suffered from constipation with Celiac, and didnt notice major changes with it for a few months after going gluten free. But I did feel SOOOO much better after going gluten-free. Go to the Dr and go through the necessary tests. Stomach issues can be so complicated, it will drive you crazy trying to figure out what it is on your own.

AliB Enthusiast

Many who are gluten intolerant can't digest carbs very well at all, including sugar. Because of gut damage they appear to lack the enzymes needed.

Sometimes it can be due to a lack of or dilution of stomach acid. If the stomach cannot produce enough acid then enzyme production is not triggered properly for carb digestion further down in the duodenum.

Certain microbes, like Helicobacter can actually neutralise stomach acid to protect themselves. Have you been tested for Helicobacter?

Eating good sources of (preferably organic) raw fruits and veg (salad) can help supply enzymes too and can help the gut heal.

Leaky gut can manifest in many different ways and with different responses. Some get allergic responses but others just intolerance reactions - it depends where the Leaky gut is, how bad it is and how it manifests in the individual.

PS. Gluten itself will not normally show up as an allergy. It does not usually present as an allergic response as it is only a protein fraction of wheat, rye or barley, all of which in their entirety could show up as an allergy. Only foods that cause an histamine response - an anaphylactic reaction will show up in an allergy test. Gluten intolerance can only be picked up through IgA, IgG, IgE, TtG antibody blood tests.

If only determining gluten intolerance was as easy as having an allergy test.......

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748

    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.